I am in the study with Dr. Gluek. I e-mailed him as suggested. My period had been going and going, then if finally stopped. Last night it started again. I had...
Hello Everyone, I was just diagnosed with ptc on Feb 10,2005.needless to say that it took 8 years of complaining and taking meds that didnt work and a new...
Ok here is a thought... Has there ever been any research that it may be hereditary? I just talked to my dad my grandmother(his mother) became blind at age 45,...
I got significantly better every month after starting a wheat free, gluten free, celiac diet.... no barley or rye... I am also lactose intolerant... so I stay...
Hello all... I am Mary Wyckoff, a 50 year nurse practitioner and I have PTC. I have been ill with this devastating disease for 5 years now. I have greatly ...
Hello, Everyone! Sorry I've been unreachable but haven't gotten internet,cable, or phone services yet. Just wanted to let everyone know I"m still alive. I've...
I've had ptc for some time, but now I have a new problem. Before I was diagnosed, I took a monsterous amount of birth control to keep my period going. As soon...
Hi, I just got out of the hospital with a flare-up. My spinal fluid was relatively low, 260, but my vision was awful. I get a lumbar puncture with flourscopy...
All Jasmine's blood work came back normal. No anemia,thyroid is ok, ANA was negative for lupus thank GOD! She still has the papilledema and ptc and the doc...
Hey Guys... Have been in terrible flare since last week. Rash, some joint pain (not bad though) mild fevers. Worst of all was the headaches. The pain in the...
Hello everyone, Night before last I was reading some of the postings from members of this group. One person in particular was talking about the trouble that...
Hi, first time actually in a chat room much less the ptc chat room (message board). I just found out I had ptc one month ago when my eye doctor sent me to the...
What you are about to read might sound unusual but it could be very enlightened The Simple Life of Muhammad If we compare the life of Muhammad before his...
Hi, I'm Sandy. I have PTC, but I didn't get a shunt. Mine is a sting story of dealing with PTC. I was on Diamox and many pain meds for over 2 years, when I...
Hi, I haven't posted in awhile. I've been diagnosed, treated and told I was in the clear twice now for PTC. I recently had to have a total hysterectomy...
ITALIAN PASTA DIET IT REALLY WORKS !! 1) You walka pasta da bakery. 2) You walka pasta da candy store. 3) You walka pasta da Ice Cream shop. 4) You walka pasta...
I'm hoping that everyone's silence is because you are all out enjoying life and just too busy to post. Since that isn't the case for me, I am going to ask a...
someone suggested to us that if u tape the traffic noise or the sea and play it back when ringing is bad it helps to dull the ringing as the its the quiet...
Hi All, Most of us are not posting cause we just don't feel good! I never get over 2 hours of sleep before the fluid starts draining and I have to get up. If...
Have any of you noticed that there is a direct correlation between the rise in your pressure and your emotional state? I know that as the weather changes, my...
Greetings everyone! I have been a critical care RN for 15 years and until November, I've never heard of PTC. Like a lot of you, I found out "something was...
Does anyone know what the average pressure is for Cerebral Spinal Fluid? My doc was talking about Spinal taps and people he's known with PTC that have had...
Hi Ralpha, My representative who is fighting for my disability was leary of me sending all my med records to an unknown organization or new organization. What...
I'm looking for someone with experience with ptc and menopause. I have a referral to an ob/gyn and am trying to put my thoughts together ahead of time--and...
Hi All, Im Tracy, I found this group quite by accident. My partner Dave is currently suffering with something. He is still undergoing testing (has been since...
Greetings from the Pacific Northwest...where it is, of course, raining (or as the locals say: we are blessed with liquid sunshine which makes the trees grow) ...
Hi all. I know it has been a long time since I have been on but we have been a busy family lately. Just to update you on Jazzy, they are still assuming she has...
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