Cara, No hormones...just slipped through menopause with no problems, so my primary care said not to mess with it...but now I'm wondering if my ptc was starting...
All Jasmine's blood work came back normal. No anemia,thyroid is ok, ANA was negative for lupus thank GOD! She still has the papilledema and ptc and the doc...
Hello Melonie. It's interesting to me that you have lupus and your daughter has ptc because my mother has a form of lupus and I have ptc. It certainly is a...
Kristy, Hello. Thanks for the prayers. It is interesting to know how similar or situations are. I think I will mention that to my daughters neurologist next...
I use one from GNC called Waterix (I think). If you go into GNC and tell them that you want their brand of water pills, they'll lead you right to them. ...
Hi, I just got out of the hospital with a flare-up. My spinal fluid was relatively low, 260, but my vision was awful. I get a lumbar puncture with flourscopy...
I've had ptc for some time, but now I have a new problem. Before I was diagnosed, I took a monsterous amount of birth control to keep my period going. As soon...
Loraine - I joined a study as well but the glucophage was for polycystic ovarian disease - several of us in the group have this in addition to the ptc and...
Ok here is a thought... Has there ever been any research that it may be hereditary? I just talked to my dad my grandmother(his mother) became blind at age 45,...
I suspect that it's genetic even though all of my docs say no. My "other mother" (the genetic one) died just days before I was diagnosed, but she had also...
my brother is going blind - he also has a neuro/opthamologic problem but not ptc - can[t remember the name of it - but also has to do with the optic nerves -...
From reading the early posts in the group, I've learned that there are many mothers, daughters and sisters with PTC. My youngest son had an eye exam after I...
Hello, Everyone! Sorry I've been unreachable but haven't gotten internet,cable, or phone services yet. Just wanted to let everyone know I"m still alive. I've...
I hope you feel better. I am wondering about the Lupus. For the last two years I have been getting awful fibro pain all over my body then my face will break...
I think heredity is a definite possibility. My grandmother had terrible headaches in her early thirties. She was hospitalized often and she also had severe...
Thank you Kristy, I've been in the hospital with a flare up. Spinal fluid was 250 ml psi and they like mine to be 150. they did a lumbar puncture and dropped...
Hello all... I am Mary Wyckoff, a 50 year nurse practitioner and I have PTC. I have been ill with this devastating disease for 5 years now. I have greatly ...
I have problems with wheat, have had my gallbladder out due to failure, endomitriosis, and severe migraines. Am I sensing a pattern here? ... From: Cara...
Just curious, did you PTC improve after eliminating wheat? We have gone to great lengths to eliminate all wheat, corn, sugar, and all processed foods from our...
Hi Cara, Its been about 4 months since I eliminated processed foods from our diets and I have noticed an improvement. Actually, its when I fall back into old...
Hi Everyone, I only have a few minutes before this new medication kicks in and knocks me out. Is there anyone who has had side effects like I'm having i.e....
Hi Susan. I don't know about the Celexa but my daughter Jasmine is on Diamox. It makes her sleep all the time. She can't seem to get enough sleep. She also has...
I got significantly better every month after starting a wheat free, gluten free, celiac diet.... no barley or rye... I am also lactose intolerant... so I stay...
Dear Susan, No, you're not going crazy. Some of my meds have the same effect on me. Like today, for instance. I am so tired that I can hardly keep my eyes...
Hi Susan, Just wanted to let you know you are not alone - diamox made me so sick - I hated it! I couldn't stay awake and was having lots of nausea with it -...
no. My PTC came after the wheat problem was found ... From: Cara Thomas To: ptc@yahoogroups.com Sent: Sunday, February 13, 2005 1:59 PM Subject: RE: [ptc] Re:...
I am in the study with Dr. Gluek. I e-mailed him as suggested. My period had been going and going, then if finally stopped. Last night it started again. I had...
HI MY NAME IS MICHELE ... MY GIRLFRIEND HAS PTC AND HER EYE SIGHT IS GETTING WORSE... I WAS WONDRING IF THERE IS ANY KIND OF SURGERY THAT CAN HELP.. I LOVE HER...
Hello! I think I responded to you - and suggested you email dr. glueck - did he respond back yet? I have some of the same problems with my cycle you have - but...
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