Does anyone belong to the Pseudotumor Cerebri Society and celebrate, Purple Ribbon Day? Dr. Deborah Friedman has really done a lot of rechearch. I have fond...
Beth, I wrote you at the yahoo address but it returned, maybe your ISP address would be better. I was ever so excited about finding someone in my area with the...
No, I've never heard of that organization. Do they have a website? Thanks! Lisa ... From: jessysgram@... To: ptc@yahoogroups.com Sent: Sunday, August 01,...
We can go on chat anytime...we tried it out a couple of weeks ago. I posted directions and several of us tried it out. We were thinking that posting a topic...
I have sent the group a few of my favorite sites. Beth, as a Research Lab, I am sure they have some kind of web site, but I usually use the mail for contact....
... From: Werner069@... To: igpold@... Sent: Sunday, August 01, 2004 2:20 PM Subject: Old Records can still Bite Old records can still bite!!!! "One...
This is inappropriate for a group that was founded to support sufferers of PTC. _____ From: igp [mailto:igpold@...] Sent: Monday, August 02, 2004 7:28 PM ...
I completely agree. Whomever did this irritates me very much. ... From: Sue Reiner To: ptc@yahoogroups.com Sent: Monday, August 02, 2004 8:26 PM Subject: RE:...
Hi Everybody, This is a question for those who have successfully appealed state aid medical insurance. I'm not talking about SSI/SSD. In my case, my state...
HI All, These sorts of posts have been popping up on several other groups I belong to. The intent is to get people on the list arguing with each other and...
Isn't it sad people have nothing else to do! I was one who got upset several months ago until I realized it was exactly as you said - it stopped for a while...
sorry have had ptc for 20+ years been around in this group for a very long time, read the emails but rarely email, I guess because people conplain about what I...
HI IRIS...hope you are having a pain free day....wow...20 years huh?...that's an awful long time to be dealing with this darned ptc....i think maybe u may be...
Hi all! Kim from Utah here. I was told a few nights ago, by an ER doctor that my PTC should be gone by now. That it goes away on its own. I have had it since...
Hi Kim, While in a small percentage of cases of primary PTC spontaneous remission does occur it is not the norm. The ER doc is uninformed. Most likely he...
chdblwinnr@...
Aug 4, 2004 4:04 am
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Kim, That doctor must have gotten the Clift notes for med school...just joking. However, my first bout with ptc-symptoms happened in 1981...thought I had the...
I know it was a shock to hear from the person that has had PTC for 20 years. That is why I said I was lucky, I was getting an eye exam 18 years ago this March...
Hello Kim, I have not heard that before that is for sure, thats not fair to say to you I think. I do hope you get some releif soon. I would sugest a trip to...
Thanks Glen! I figured that he didn't know what he was talking about. And my headache was so bad that I needed the pain shot. I rarely ever go to the ER...
Hello, Ralpha! Long time, no chat! Thanks for responding to my post! I agree with you about the cliff's notes. LOL Glad to hear that your move went well! My...
Hi, Trina! OOOH I am so jealous! How come you didn't pack me in your suitcase? LOL The kids and I went to Disneyland last year and I did feel better there. I...
what have I learned after 20+ years with Ptc? not much. how did they treat it than? I was told lose weight, you are fat that is why you have it, and how lucky...
