Sue, Your welcome. I'm glad that someone could understand it since I don't understand what I wrote, LOL! Oh, well. I can just blame it on the PTC! E In a...
I'd call the neuro and tell him that you are taking her to the ER, and ask him/her to meet you there or if you should have them call him/her with any test...
Thanks so much for all the answers! I live in Utah and beth lives in Maine. She called me last night very ill and I didn't know esle to tell her except to go...
I applied and was denied, I made an appeal and was denied a 2nd time and now have given up trying to get it... Mali in Indiana ... Stop worrying about...
`Mali R
angelle417@...
May 1, 2004 9:08 pm
23456
Mali R --- What are your limitations? In other words, what symptoms of PTC keep you from working or being productive in a work environment? Just wondering to...
John & Jenn
rupp6288@...
May 1, 2004 11:40 pm
23457
Ralpha, I just got back from the hospital and I have a packet that was mailed to me. Do you know is this what I have to fill out and send back? My revision...
Hello everyone! My name is Beth. I am a new member. I just joined the group today. I found out that I had PTC a year ago. I have had to go on Diamox and have...
Welcome Beth, This is a great place for all your needs with ptc. I have been in this group for over 3 years and it has been a god send. Your family here. If ...
I'm sorry I'm not around more to take part in the group, but when I come here regularly, I find myself too focused on the disease and not enough on my life....
I also had the same problem with my eyes. I actually didnt notice but my nan did. When I was viewing my MRI photos, I thought I looked like Marty Feldman....
Hello Everybody. Hoe every one is having a pain free day. My name is Beth Engberg. Kim sent in a message for me the other day do to me not feeling well. I am...
Beth, I have not been in to see my neurosurgeon since he removed my stitches a few weeks after my shunt surgery. Is there a reason you want to see a ...
Hi Kristy - I've not noticed protruding eyes with the ptc - swollen and puffy yes - especially when I have a really bad high pressure headache - I just wanted...
Sue- Thanks for replying. I have been through 2 shunt revisions and both of them were done by different drs. I have been to see my pcp and he's tried and I...
You are welcome Beth. I wish I could do more to help you. You should not have to travel far to find quality health care. Tell your neurosurgeon that you need a...
Hey Beth, Glen here. Who are you seeing up there for neurosurgery? That is completely unacceptable behavior from them. Perhaps I can refer you to somebody...
chdblwinnr@...
May 4, 2004 6:11 am
23470
Glen- Thanks!I see Dr. Mahalic in Portland. I live in Canaan. It's near Skowhegan/Waterville area. So Portland is about a 2 hr drive for me. I tried to get...
Hi all, Hope this finds everyone pain free :) Well as you all know I have had ONSF on both eyes in the past month and it worked :) My visual field shows that...
That is wonderful news Kris! Hope you can find a way to lessen the headaches. Have you tried massage for the neck pain? You might want to try water aerobics...
To Everyone, Your stories continue to amaze John and me. We're so thankful that John has not lost his eyesight!! And you ladies who are dealing with ...
John & Jenn
rupp6288@...
May 4, 2004 7:25 pm
23476
Arlanda Yes...fill it out...thanks so much!!! Ralpha ... Do you Yahoo!? Win a $20,000 Career Makeover at Yahoo! HotJobs...
Jennifer and John- My neuro/opth told me I couldn't work when after a spinal and topamax wasn't helping with my headaches. I was in constant pain, so bad I...
`Mali R
angelle417@...
May 4, 2004 8:35 pm
23478
Hi Beth, I didn't have PTC while I lived in Maine (actually I did but I didn't know it yet). I practiced in Lewiston/Auburn for 6 years. I sent 95+% of my ...
chdblwinnr@...
May 4, 2004 9:57 pm
23479
Hi Jenn - you sound like me - I was way overactive with my thyroid just as I was graduating college - lost a ton of weight -very sickly looking and FEELING!...
Thanks Glen! I did go to the websites and got his address and phone #. I will try calling his office tomorrow. It can't hurt to try. I did go see my...
