Hi All, sorry it's been awhile. as of today i officially have the diagnosis of ptc. my opening pressures were 45. i have been started on diamox 250 mgs. three...
Self limiting? goes away on its own? who does he think he is kidding? not from what I've seen! I would personally be looking for another dr and a neurologist...
Hi Marni, I can't speak for anyone else but I will always have PTC. I've had it for twelve years and have really never gone into remission. My eyesight is ...
MY dr in his infinite wisdom ( that was a huge joke) said that weight loss and medication put the disease into remission, But that its always lurking in our...
Please don't take what they say at the VA at face value. Unfortunately, they have a tendency to act like they know even when they don't. There is so much...
Hi Marni, when I couldn't afford my Neuro any longer I also felt that there wasn't much she could do for my PTC. She recommended I have my visual fields...
HI everyone, Well, I finally got in for my tap today! You are not going to believe it but my pressure was 17! I am so confused. I had blood in my fluid and the...
Hi Kristina, You are not alone hon. Yesterday a tap (lumbar puncture) shows my pressure to be at 15 but at the same time I'm in alot of pain and both of my...
Marni, Good to hear from you again. My great aunt used to say: "If wishes were horses, we'd all go for a ride." I think your Dr. subscribed to the same wish...
Ken, You and your family remain in my prayers. I mentioned that my symptoms were lessening. Quite strange. I went to my retina specialist this week, and he...
Dear Ralpha - i just wanted to tell you that I'm thinking of you and your family at this time - not the move as I know that will be a wonderful thing for you...
Ralpha, God bless you for all you are doing for your husband. You both need a break, and it is so hard on you I imagine. So sorry you have to go through all...
The blood could have could have come from the tap. It's known to happen on occasion without necessarily meaning anything. Were there any other differences...
Hi my name is Jenn. I live in upstate NY. I am 22 years old and have two wonderful children and a very supportive (sometimes) husband. I have joined this list...
Ralpha, My prayers are with you also. I cannot begin to imagine what you must be going through emotionally right now. Please look at the end product and how...
I know I do not email that ofter but the word needs to go out on this Please forward this to all your contacts you can also gets updates at the websight listed...
Hi Jeni, Welcome to the group, sorry we have to meet this way. Wow you have really been through a lot, I am on Diamox and have no problem however there are a...
Thanks, Denia. I've managed to cry myself into being bleary eyed...but crying is such a release. Spent most of today labeling clothing--just like going to...
Ken, Thanks for your prayers. I know it will work out...it's just my temper-tantrum because it is God's plan, not mine...so I'll just have to get over it! ...
Had to stop taking the Diamox already as I started itching all over from it. I was told to "stop taking it and call back on monday to talk to your regular dr."...
Dear Ralpha - sometimes crying is the best therapy - sort of like laughter - but there is a time for crying also. I have been feeling very blue myself lately -...
That generally means it was due to the inseertion ... From: Kristinalynn01@... To: ptc@yahoogroups.com Sent: Saturday, August 02, 2003 10:33 AM Subject:...
Bless your heart. I'm so sorry. That is such a hard disease to deal with. You've taken a hard step, but it will give you time to get things set up in the...
Bless your heart! Don't get discouraged. Things will get better. Diamox isn't the only med out there. Maybe this is what you needed to get the docs ...
Sometimes mint tea is good for nausea - I couldn't drink the stuff myself but my neighbor and mother in law love the stuff! so it would be worth a try! also...
I woke up after dreaming that I was at Sam's club. One of them food sample people were giving samples of free fried pork brains. It tasted ok until I really...
I finally went back to work (had lp shunt placement on june 4) My shunt seems to be working fairly well, I'm off *ALL* meds I took before, which included: 1000...
