I am new to the group. Diagnosed with papilledema yesterday, waiting to see a neuro-ophthalmologist. I have polycystic ovarian syndrome having had 3...
Sorry, didn't do the intro thing. I live in between Akron and Cleveland Ohio; I am 39, married, with three children; 7, 11, 14. I was diagnosed with...
Hi Leslie - Welcome to the group - you will find a lot of comfort here - I was diagnosed just over a year ago - I also have pcos and the classic body type as...
HI Leslie - Denia here again - there are meds that can control the papilledema and help with the headaches - you may be put on topamax, diamox, lasix, or bumex...
Hi Leslie, Sorry to hear about all of your problems. I would be happy to point you in the right direction about your lumbar disc problems if you are...
chdblwinnr@...
Mar 1, 2003 6:39 pm
18075
Hi Folks, I am sending this letter to both groups in the hopes that I get the responses I need to help a friend of mine. I will keep this long story as short...
chdblwinnr@...
Mar 1, 2003 7:37 pm
18076
Hey Suzann; Thanks for the upbeat encouragement. Yesterday was not a good day for me. Today I'm in a better spirit. Ready to "kick butt" with these doctors. I...
Leslie Ann--Welcome and great questions! First, it took almost a year for me to get the diagnosis...way too much waiting...and now too little action. So:...
My father just had a VP Shunt installed this past Wednesday. He had a blood clot at the base of his brain and it has affected his balance. However, he is...
Hey Glenn - I can't help you with a neuro in the area you are looking in - and I'm sure he and his parents have already thought of this but just wanted to make...
-- Hi Leslie, Nice to meet you, My name is Linda, I'm your age and new to this group too, as of last week. It sounds as if we have some of the same types of...
Dear Glen, I couldn't even make it through your entire post. Im already dissappointed that our government obviously could give a rats behind about our men and...
hey glen i have ptc with out papilledema. my husband is an active duty memeber of the army we are station at fort bragg.being i am not active duty everyone i...
Hi Leslie, Im glad to meet you!! I just hate it that we have to meet this way. I hope you find some of the answers you need here and I know you will find great...
Dear Glen, I can only imagine the anger that you are having over your friend's situation. I went without a diagnosis for 7 years and was pleading with the...
Hello Family!! I really need your prayers right now. It's for a job that I am hoping to get at my daughters daycare. I am really excited about it, and am ...
Glen, I had the same thought for your friends son. My husband ended up with a psychological discharge instead of the much needed medical, and now does not get...
Hi all - just wanted to ask for input on the bad day I'm having - am taking Keppra for the headaches - or to try to prevent them - haven't had a dose since...
... along. ... a urine sample, a stool sample and a ... 'WHAT?"..."What did he say? What's he want?"...
Sunfloweryell123@...
Mar 4, 2003 4:32 am
18091
Thank you so much for the encouraging words Denia, Glen, Ralpha, Linda, and Michelle H. The list and all of you have eased my fear some. I will be going to...
The one thing that stuck out in your post was the part about not being able to finish a sentence. I have that problem and it is becoming really really...
Hi leslie, I'm Trina and the lying down thing is something I get and I talked to my Dr. about it and she said it is cause the fluid is rushing to the brain...
Hi Leslie, When my head hurts, it does make it worse when I lie down. And I also had the horrible stiffness in my neck and shoulders before diagnosis. And I do...
Dawn, I am sure you are still a very intelligent person. Even for some of the smartest people, they cant always get their words right and forget to. And you...
Michelle, Thanks for the encouraging words. I wish that I could believe them all right now, though. It just hurts so darn bad that I can't communicate the way...
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