Thanks Brenda. I am feeling a little better I think that maybe this won't be so tough this week. Thanks for emailing and making me feel better. Sincerely nina...
1783
nina azarian
ninanina@xxxxx.xxxx
Nov 15, 1999 6:07 pm
Thanks darlene. I think I will check into another doc. The neuroligist I have I think has only me with this for a patient. I know in his group with other...
1784
Ug-Mo@xxxxx.xxxxxxxxxx)
Ug-Mo@xxxxx.xxxxxxxxxx
Nov 15, 1999 8:52 pm
I'm new to computers and the internet and I know that if I want to quit a list (i'm on three now) that all I have to do is go to one list and go to MY ONELIST...
1785
Schverak, Amy
ASchverak@xxxx.xxxx
Nov 15, 1999 9:20 pm
Thank you ug-mo! That's all I was asking for. Someone to give me a complete, thoughtful answer without slamming me. I certainly don't feel I (or anyone else...
1786
nina azarian
ninanina@xxxxx.xxxx
Nov 16, 1999 12:40 am
good luck to you , Ug-Mo!!! Sincerely nina ... From: Ug-Mo <Ug-Mo@...> To: ptc@onelist.com <ptc@onelist.com> Date: Monday, November 15, 1999 3:52 PM ...
1787
Carrie Felguth
cfelguth@xxxxxxx.xxxx
Nov 16, 1999 1:21 am
Thank you for saying that, Amy! Julie, I will pray for you, as you obviously have forgotten the golden rule: "Do unto others as you would have others do unto...
1788
Julie Parks
shy25@xxxxxxx.xxxx
Nov 16, 1999 2:57 am
Your welcome! :) ... Dear Julie, I have personally tried several times in the last couple of weeks to unsubscribe from this list - hardly for just a day or...
1789
Julie Parks
shy25@xxxxxxx.xxxx
Nov 16, 1999 3:15 am
BTW, <I do have a brain (perhaps not as large as yours)> I don't recall indicating that my brain might be any larger than yours, or that you might not have...
1790
Julie Parks
shy25@xxxxxxx.xxxx
Nov 16, 1999 3:25 am
<<Julie, I will pray for you, as you obviously have forgotten the golden rule: "Do unto others as you would have others do unto you." >> Thank you, that's...
1791
lucky
lucky@xxx.xxxx
Nov 16, 1999 1:57 pm
1792
Edouard Pazzi
epazzi@xxxxxxxxx.xxx
Nov 16, 1999 7:13 pm
... Hi everyone, I just wanted to vent a little bit and this web site seemed to be more understanding than anyone else I know. I had to take another medical...
1793
Helen Shelton
hshel@xxxxxxx.xxxx
Nov 16, 1999 7:41 pm
... Dear Nina, If you have lost eyesight because of the inaction of your doctor you should have grounds to sue for malpractice. Sounds like they let you go too...
1794
Bren930@xxx.xxx
Nov 17, 1999 12:32 pm
Tammy, It is difficult, but what I try to do is enjoy the heck out of the days that aren't as bad. I know they're far and inbetween, but let me tell you when...
1795
Edouard Pazzi
epazzi@xxxxxxxxx.xxx
Nov 19, 1999 12:32 am
Brenda, Thanks for letting me vent and also for understanding what I am going through, not very many people do. I have a very supportive family and an...
1796
CBrown9475@xxx.xxx
Nov 20, 1999 6:13 pm
nina, My name is Christine. I am from kansas city, mo. This is the first e-mail that I have ever sent. Your story is exactly what is happening to me. My ...
1797
bekka koe
bekka33@xxxxxxx.xxxx
Nov 20, 1999 7:46 pm
Hi christine! My name is bekka and you are not alone!!! I have a LP shunt and it was a godsend.. however they are not a cureall mine has recently failed but i ...
1798
bekka33@xxxxxxx.xxx
Nov 20, 1999 7:57 pm
Hi i am very new and want to make sure that i responded to the right place ! bekka...
1799
Snomittens@xxx.xxx
Nov 20, 1999 9:59 pm
You did very well hon. Sno...
1800
Snomittens@xxx.xxx
Nov 20, 1999 10:21 pm
Christine, I understand your concern and depression, they are normal with this illness. I know that that does not help but it is so. Are you a single Mom? Try...
1801
bekka koe
bekka33@xxxxxxx.xxxx
Nov 21, 1999 3:53 pm
Hi my name i s bekka, I was diagnosed with PTC in the fall of 1995 Prior to that time I had gone to many doctors in an attempt to find a remedy for the mind...
1802
Edouard Pazzi
epazzi@xxxxxxxxx.xxx
Nov 21, 1999 6:05 pm
Christine, Hi my name is Tammy, I'm 29 and was diagnosed with PTC in April,1998 and none of the non-invasive measures (Diamox and weight loss) worked so by ...
1803
Snomittens@xxx.xxx
Nov 21, 1999 7:34 pm
Welcome Bekka, Glad you found us but sorry that you had to. This site and the pts-support-group@onelist.com are both life savers. You can get so much info from...
1804
Snomittens@xxx.xxx
Nov 23, 1999 1:55 am
Hello Everyone, Well, I finially did it. I called and made an appointment with this other neuro. It is for Wed afternoon. I will let you all know how it goes. ...
1805
Darlene Paul
darlene@xx.xxxx
Nov 23, 1999 5:27 am
bekka, Welcome to the group. I know what you mean about your daughter, i have one that is 11 also. She thinks she knows everything, she even tells me how to...
1806
Suzin@xxxxx.xxxxxxxxxx)
Suzin@xxxxx.xxxxxxxxxx
Nov 23, 1999 5:34 am
Hi all!! I could really use your help again!! Melanie is now 10 yrs old and has had PTC for tooooo loong. It will be 3 yrs in March. I had thought she was...
1807
Snomittens@xxx.xxx
Nov 23, 1999 5:39 am
Suzin please give her a big hug from me and tell her that I am in awe of her. She is such a strong little girl. She is a walking little miracle. Big hugs to...
1808
Snomittens@xxx.xxx
Nov 23, 1999 6:42 am
HAPPY THANKSGIVING EVERYONE! MANY, MANY MORE HAPPY ONES!...
1809
bertrand.comeau@xxxxx...
Nov 23, 1999 7:16 pm
I joined this group to help understand this problem. My name is Donna-lee, I'm from Montreal, Canada and my bestfriend Tammy was diagnosed with ptc one and...
1810
Snomittens@...
Nov 23, 1999 9:17 pm
Welcome Donna - lee. Glad to have you here supporting Tammy in Montreal. You are a good friend to do this. By the way I love that city. Sno...
1811
Snomittens@...
Nov 23, 1999 9:26 pm
I want to say thank you for all the cheering on that all of you have done concerning the new Dr. I needed it. It is hard to leave one DR and go to another one...
