I too have had bad luck with doctors just keep geting no where prayer is helpful and a healing priest named Father Christopher Crotty/ check out web...
Hi Brandy, I live in Illinois and yes, it is very hard to find quality health care that knows about IH. Where in IL are you? I have a really nice Neuro in...
You live in IL? If you can make it to the Chicago area, try talking to Anil Gulati (he’s my neuro…haven’t seen him for years, though, since my symptoms...
Hello everyone, I hope you are having a great Monday. I wanted to know if anyone has experienced or know anyone has experienced optic nerve damage? I have it...
I hate to break it to you, but if it's been like that for a while, it's not going to get better. Nerves are a type of cell that doesn't really...
Ocean, Yes I have a neuro opth. I see him next month. I had a vp shunt for 8 months, but miracously my pressures are down. I believe in the power of Prayer and...
Kiki.. Hang in there.. life can throw some curve balls at you.. and it does not help that your head is hurting all the time.. but hang in there... and I am...
Hi Sue, I see Dr. Zabiega (neuro) in Joliet. His phone is: (815) 744-6460. Then the IH specialist I see in Baltimore is Dr. Robin Wilson. Here is her info: ...
yes...good luck Kiki... I was diagnosed in 91 and there have been a lot of good years and some not so good ones but the thing with this disease is that you can...
, it might be you some day! Date : Attachments Name Type Save View Part 1 text/plain Save Part 2 text/html Save ... An elderly gentleman... Had serious hearing...
I haven't posted in a while, but have a couple of questions. Glen I hope u r reading this, u know I depend on u a lot, lol. I had to have my vp shunt removed...
Hey Terri, Boy that's a toughie. IH and Meniere's can overlap in more than a few ways. Meniere's is such a bugger and from what you have said before you have...
chdblwinnr@...
Apr 28, 2008 6:44 pm
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Thank's again Glen 4 your advice. Sorry 4 having 2 write so big, but with such blurred vision, this way I know @ least a bit of what I am writing. Since I...
Hello Everyone. This is my first time here. I found this group doing a search for support groups. I was looking for a place I can talk to people about PTC that...
Hi Gina, I have a vp shunt and i get those twinge pains all the time in my head ...Like at any minute I will be getting a headache. But I have had this shunt...
Hi Gina, vp shunts are wonderful as long as they keep working. Sounds like your having your "honeymoon" is over headache as I call it. I've had 4 vp shunts...
I posed this question over on ObesityHelp.com and got no responses related to the issue. I'm trying to find out if anyone has ever had a shunt (VP, VA, or LP...
Ocean, Great to see someone post! I thought everybody was throwing a party and I wasn't invited!!! I don't have a shunt...but have talked with lots of people...
Thanks, Ralpha! I had talked to my neurosurgeon about doing a VA shunt when I saw him last week, but he was gung-ho for a VP shunt instead. I've had some...
Ocean I have talked to my doctor before on this and he has told me that it is not a good Idea with a shunt because the two types of surgery they do for that ...
Thanks Tia! My neurosurgeon uses the Medtronic Strata programmable shunt, which is an excellent shunt valve similar to the Codman-Hikam valve but has less risk...
I have had mine for over 7 years I am the first one in Kentucky to ever get it and I have had no problem with reprogramming the only time I have to worry is to...
Hi, I was reading your posts and wanted to post. I hope no one minds. I am going to have or am scheduled to have the lap band surgery 6-10, I am told by my...
Hi, Sorry, I saw your original post- I am a little slow- I spent the day in the hospital with my mom. She went in the ER last night and was admitted long...
Hi, Sorry it didnt work for you. It work for me and this is where it should have taken you. Pseudotumor cerebri This site is for people living with PTC,...
the correct URL is: http://groups.msn.com/pseudotumorcerebri I have gone through the entire site and have found nothing specifically for people with shunts and...
Hello Everyone, Nice to be back on line, and check and see how ever one is doing. And glad I didn't miss the "Texas Get Together". I have been without my...
