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How many people are disabled because of Pseudotumor?   Message List  
Reply | Forward Message #28586 of 28660 |
Re: How many people are disabled because of Pseudotumor?

Have any of you been denied SSD because your spouse makes too much money? I've
only had PTC since June but I'm thinking of the long term ramifications because
of how it's effecting me daily. I had a LP shunt placed, but am still having low
pressure headaches everyday. I have permanent vision loss in my left eye but
not enough to be consider disabaling.

--- In ptc@yahoogroups.com, jwtooblsd blessed <jwtooblsd@...> wrote:
>
> I am on disability due to the vision loss from PTC. I recently had a seizure,
so now I am on seizure medicine. I am hopeful that one day I will regain more of
my vision.
> Janine/Tex
>
>
>
> --- On Thu, 4/30/09, crystal WILLIAMS <timmycrystal@...> wrote:
>
>
> From: crystal WILLIAMS <timmycrystal@...>
> Subject: [ptc] How many people are disabled because of Pseudotumor?
> To: ptc@yahoogroups.com
> Date: Thursday, April 30, 2009, 9:30 AM
>
>
>
>
>
>
>
>
>
>
>
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> Hi everyone!
> I was wondering how many of you are disabled from having Pseudotumor Cerebri
and are receiving Social Security Disability? This disease has been horrible for
me and I have had surgery 3 times for a shunt. They have tried twice to put a VP
shunt in my head with no success. I have a LP shunt now but I still suffer from
chronic migraine headaches. I have been off from work since September of last
year. Some days I am barely able to get out of the bed.
>





Sun Jul 19, 2009 11:07 pm

redpinky...
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Message #28586 of 28660 |
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I am on disability due to the vision loss from PTC. I recently had a seizure, so now I am on seizure medicine. I am hopeful that one day I will regain more of...
jwtooblsd blessed
jwtooblsd
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Apr 30, 2009
9:42 pm

Have any of you been denied SSD because your spouse makes too much money? I've only had PTC since June but I'm thinking of the long term ramifications because...
Kellie
redpinky...
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Jul 19, 2009
11:08 pm

My daughter has been in the hospital 6 times since March and is missing a LOT of work, plus had to have the shunt removed because of an infection and can't get...
Shannan Bridgewater
shannanh1
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Jul 19, 2009
11:16 pm

There is a required Teresa A. Carter-Mealer vision advocate Prevent Blindness America/ National Federation of the Blind ... From: Shannan Bridgewater...
TERESA MEALER
tamealer
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Jul 20, 2009
12:41 pm

There is a required 6 mos waiting list in which the patient cannot work. During this time, you need to stay in contact with your case worker. For instance, one...
TERESA MEALER
tamealer
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Jul 20, 2009
12:46 pm

It took me going before the judge to get mine I used to do security and could not go back to it due to PTC. I have headaches and blindness due to mine Tia...
Blind Princess
jenkins_tia
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Jul 20, 2009
1:20 am

I got my disability the week that I was diagnosed w/ptc and was in the hospital to have my 1st vp shunt. I had severe head aches and lots of vertigo, as I also...
TERESA MEALER
tamealer
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Jul 20, 2009
12:38 pm

Your spouse's income should not be a part of the decision as to whether you received SSD or not.  The issue is your disability not your household income. ...
Crystal Carey
ugacarey
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Jul 20, 2009
6:39 pm

Her spouse's income would count aggenst her on SSI not SSD if they don't have enough into social security they will make you get SSI tip is the more you have...
Blind Princess
jenkins_tia
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Jul 21, 2009
12:14 am

I am confused because my hubby's income had nothing to do with my ssd and I called the local ss office and I am not eligible for ssi. I need to call and find...
jwtooblsd blessed
jwtooblsd
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Jul 21, 2009
2:08 am

All., The link below should help out with all of our confusions :) LOL http://www.wceca.org/publications/SSIvSSD.pdf ________________________________ From:...
Crystal Carey
ugacarey
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Jul 21, 2009
2:23 pm

Right, but she asked specifically about SSD. Obviosuly, they take into account living expenses and necessaries even with SSI. ________________________________ ...
Crystal Carey
ugacarey
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Jul 21, 2009
2:21 pm

I have not worked in five years. I am lucky. I have had the money to fall back on thanks to the .com bubble in the stock market in the late 90's. Now I'd...
luv2view69
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Sep 23, 2009
6:50 pm

Also I wanted to add regarding the waiting period. I had short term diability through my job and then it turned into long term disability. The insurance...
jwtooblsd blessed
jwtooblsd
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Apr 30, 2009
9:56 pm

Wow! That is great! I hope they see it like that for me. I am getting long term disability through Metlife. The man told me that they have to keep paying me...
crystal WILLIAMS
timmycrystal...
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Apr 30, 2009
10:16 pm

Denia, Thanks for your response. Carly has had about 10 spinal taps and they are excruciatingly painful for her - lasting up to two hours, even under ...
SherylRB@...
sheryl.busch
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May 5, 2009
12:06 am

She does seem to sleep better when she's hospitalized, with her bed at an angle, so I'll suggest she try propping herself up with pillows. ANYTHING! In a...
SherylRB@...
sheryl.busch
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May 5, 2009
12:07 am
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