I found this website trying to found out more information about PTC.
My sister was diagnosed in November 2007 so we're pretty unfamiliar
with the disease and it seems like the doctors are too. It just seems
odd to me that she can be so sick that she can't move from the couch
and when she calls the doctor he says to up the water pills - it seems
that's his answer to everything (She's taking 80mg of Lasix...is that
normal?) Our family has a lot of unanswered questions and I'm hoping
to find some answers here...
Hello everyone, I just wanted to introduce myself. My name is Sandy Avvari, I am 21 years old and live in Toronto, Ontario, Canada. I was diagnosed with PTC at...
Sandy A
sandybandy@...
Jun 9, 2000 5:46 pm
Hello all. Well I am still without my vehicle. I have been driving my mom's old van which has no A/C and the heat index here has been as hi as 110 degrees....
Glenda D. Palomino
gpalomin@...
Aug 10, 2001 7:52 pm
Hi, I'm sorry about your car. As if you didnt have enough problems already. ken ... _____________________________________________________________ Get a free...
Kenyon Smith
worship@...
Aug 11, 2001 12:32 pm
Dear Glenda, Sure hope you have your own vehicle back by now. Know what your are going through as we are in almost a similar situation. Hang in there!!!! ...
Cheryl Cubbage
kraftiladi2@...
Aug 11, 2001 6:47 pm
I found this website trying to found out more information about PTC. My sister was diagnosed in November 2007 so we're pretty unfamiliar with the disease and...
... PTC. ... seems ... seems ... that ... hoping ... Hello, First thing is I am glad that you found this group. Secondly your sister needs to get to a doctor...
Thank you for the response. She does see an opthamologist probably once a month to check on her papalledema...right now she has it and when she told her neuro...
Hello, My name is Terri, from TN. I just read your email regarding your sister. First of all, I want 2 thank u 4 taking the time to do this research. I am over...
DaShaunda, Your sister needs a new neurologist NOW. Lasix can be used to treat IH (PTC) but not at that low of a doseage. When you say the Diamox made her...
DaShaunda, Also, this is EXTREMELY imortant! Tell your sister to STOP TAKING the Tramadol. Tramadol has a warning and should NOT be used by anyone with IH/PTC...
I agree. Stop taking the TRAMADOL RIGHT NOW. That has to be one of the worst drugs I have ever taken as far as making my IH symptoms worse. I had four...
Hello, I haven't posted in a long while due to dealing with cancer treatments on top of the IH - however, the use of tramadol caught my attention. I have been...
Hi, After going thru agony for 6 years I finally got a vp shunt put in around late April of this year. I can tell you it is a wonderful thing. I will say,...
atrophy is when something is damaged. In my case.. part of my optic nerve is damaged with no chance of repair. ... From: TERESA MEALER To: ptc@yahoogroups.com ...
Does that mean like my optic nerves have scar tissue on them, and they will never heal? Teresa Mealer vision advocate Prevent Blindness America ... From: Gina...
Atrophy is a wasting away of the body or its parts. Not so much scar tissue. Usually atrophy is irreversible. But that is a question for your eye doc....
What is visual rehab? I don't mean to sound dumb, but I have a focus prob and have been seeing drs for yrs. I have NEVER heard this terminology b4. I only have...
I just wanted to thank everyone for all the information...it is much appreciated and I will pass this info on to her. She needs all the help she can get. ...
I was very lucky on disability. I applied the first time and got it the week I was diagnosed. I am approved for 3 yrs, almost 2 down,and 1 more to go. However,...
Yes. Well thats what has happened with me. It doesn't do that to everyone. So dont worry. ... From: TERESA MEALER To: ptc@yahoogroups.com Sent: Monday, July...
According 2 my mobility instructor, I have only a small porthole to see in. Everything else is gone. I am in the process of putting together a meeting for the...
DaShaunda, You and your sister need to arm yourselves with current knowledge--the best place I know of is the Intracranial Hypertension Research Foundation...
Hi Ralpha, I'm glad you replied - I guess i should have looked at all the posts before writing that hopefully you would join the conversation! Denia ... From:...
Denia, Good to hear from you. I loved the conference in Houston...however, your Texas rain/hail gave me pause--I sat in the rental car terminal for about...
Yes, the weather here can be very unpredictable and the summer months are just usually incredibly hot and the nearer the coast you get, the more humidity of...
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