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Intracranial Hypertension Registry for patients   Message List  
Reply | Forward Message #27982 of 28660 |
Re: [ptc] Texas patient gettogether

Hello Everyone,
 
Nice to be back on line, and check and see how ever one is doing.   And glad I didn't miss the "Texas Get Together".   I have been without my computer since the first part of the year.   It's nice to be connected to the world again.
 
Martha
Dallas, 52yrs
 
 


Daniel Mcneill <de_mcneill@...> wrote:
Hi Lori,
I grew up in Bronte and went to college in Abilene - how far are you from there? We probably just need to pick a weekend in June and - or whenever and set it up somewhere - I look forward to meeting you!
Denia/Temple

Ldunn821@aol.com wrote:
Hey y'all,  I live north of Abilene and would love to try to get together with y'all at some point , if I am not intruding.  I have had IH (hard not to say  PTC still....lol)  since 1997. Have a VP shunt and 24/7 headache and other "stuff". 
Look forward to hearing for you.  Lori Dunn 




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Tue Jun 17, 2008 1:26 pm

softndark2
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Forward
Message #27982 of 28660 |
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I thought you might like to know about this chance to make a difference...in your life and mine!!! Not enough is known by the medical community about the...
Ralpha
rstaeger
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Mar 12, 2008
12:34 am

Hello Ralpha, Martha from Dallas 52, Thank You!!! For this information. I hope there will not be too much info to fill out in the packet that comes in the...
softndark2
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Mar 12, 2008
6:38 pm

Hello Martha, my name is Janine and I live in Fort Worth. Are your physicians in Dallas? I am looking for some second opinions regarding my vision. ... ...
jwtooblsd blessed
jwtooblsd
Offline Send Email
Mar 12, 2008
8:40 pm

Hi everyone! I went to the site via the link, but unfortunately wasn't able to submit my information to join the registry. I did call the phone number listed,...
Heather
badg00dgirl
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Mar 13, 2008
7:47 pm

Hello Martha, I live in Temple Texas and know that Janine is in Ft. Worth - perhaps sometime we could have a ptc gathering? Either in Ft. Worth or perhaps...
Daniel Mcneill
DE_McNeill
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Mar 14, 2008
6:28 pm

Hello Denia, That sounds like a Wonderful Idea!!! I would enjoy meeting someone else that understands how I feel, and sure both you ladies would also. I...
MarthaBlack
softndark2
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Mar 17, 2008
1:56 pm

Hey Denia and Martha, I would really enjoy meeting u both. I am only about 45min from Hillsboro, actually we were at the outlet mall 3 weeks ago. I know there...
jwtooblsd blessed
jwtooblsd
Offline Send Email
Mar 18, 2008
12:50 pm

Hello Janine, Yes, my Dr. is at www.utsourthwestern.edu/ophth . I Love my Doctor, of course I feel he saved my life (smile). John G McHenry UT Southwestern...
MarthaBlack
softndark2
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Mar 14, 2008
6:29 pm

My sister, Diana has PTC also. She lives in Corsicana,Tx, goes to the Dr. in Dallas too. She would love to be included in your get together if she is able. She...
Tina Rose
harrisfurnit...
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Mar 19, 2008
1:06 pm

Hi Tina, I would love to meet your sister - if you think she would feel up to joining us - the more the merrier! That would make at least 4 of us - now just to...
Daniel Mcneill
DE_McNeill
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Apr 2, 2008
8:46 pm

Hi Martha, Thank you for your thoughts and prayers - sorry I have been out of touch for several days - my Mother passed away on the 17th and we were out there...
Daniel Mcneill
DE_McNeill
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Apr 2, 2008
8:46 pm

Thank you. Just let me know when and where. Thanks, Tina ... From: Daniel Mcneill <de_mcneill@...> To: ptc@yahoogroups.com Sent: Wednesday, March 26,...
Tina Rose
harrisfurnit...
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Apr 3, 2008
5:47 pm

Well, i live in Longview. And I wouldn't mind driving out to visit if there were a few of us getting together. It would be nice to talk to someone who...
Ravenweed
l_ravenweed
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Apr 4, 2008
12:35 pm

Hey y'all, I live north of Abilene and would love to try to get together with y'all at some point , if I am not intruding. I have had IH (hard not to say PTC...
Ldunn821@...
Send Email
Apr 8, 2008
4:15 am

Hi Lori, it would be nice for all of us Texans to get together. I had a VP shunt, but it was removed almost a year ago. I seem to be doing great w/o it. ... ...
jwtooblsd blessed
jwtooblsd
Offline Send Email
Apr 8, 2008
9:52 pm

Hi Lori, I grew up in Bronte and went to college in Abilene - how far are you from there? We probably just need to pick a weekend in June and - or whenever and...
Daniel Mcneill
DE_McNeill
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Apr 9, 2008
1:17 am

Hello Everyone, Nice to be back on line, and check and see how ever one is doing. And glad I didn't miss the "Texas Get Together". I have been without my...
MarthaBlack
softndark2
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Jun 17, 2008
1:26 pm

This is starting to sound, really exciting!!! I would like to let the group know: That I have not driven in years but use the "Dart Paratransit" service. I...
MarthaBlack
softndark2
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Apr 11, 2008
12:52 pm

Hello Tina, Martha and everyone, Sorry I haven't been on in a little bit - My Mother passed away on the 17th of March and we have been taking care of things...
Daniel Mcneill
DE_McNeill
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Apr 4, 2008
12:53 pm

Sorry to hear of your lose, I lost my mother in 2003 so I know it can be devastating.Yes, a saturday in may or june is fine with me. Tina ... From: Daniel...
Tina Rose
harrisfurnit...
Offline Send Email
Apr 11, 2008
12:52 pm
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