Hi Ralpha - it has been a while since I've felt like getting on and posting to be honest - my neuro would sometimes use a short course of steroids - a medrol dose pack - to break my pain cycle - and it usually worked - in the short term - I think it also depends on the dosage used - but...like you said, not enough known about us by the medical community! Hope Oregon is going well!
Denia
----- Original Message ---- From: Ralpha <rstaeger@...> To: ptc@yahoogroups.com Sent: Tuesday, January 15, 2008 6:45:51 PM Subject: Re: [ptc] steroids
Denia--good to see you posting.
I understand that one suspected cause of IH is withdrawal from steroids...and that for some patients carrying a diagnosis of IH that steroids sometimes cause a flare of symptoms. So...maybe it is a chicken or egg, which comes first? Physicians frequently use short courses of steroids to try to "break" the pain cycle from pressure, along with meds like Diamox.
What do your doctors say about your compromised vision and the relationship with steroids. I used high dose steroids for 13 years following eye surgery for cancer, when I stopped taking them, my IH symptoms returned (after 20 years of remission). The medical community does not know enough about us...so I feel it is up to us...try www.ihrfoundation. org and join 900 patients in searching for answers!
Peace and prayers,
Ralpha
on the road in Santa Rosa CA, but heading for Portland OR tomorrow!!!!
----- Original Message ---- From: Daniel Mcneill <de_mcneill@yahoo. com> To: ptc@yahoogroups. com Sent: Monday, January 14, 2008 7:48:03 PM Subject: Re: [ptc] steroids
Hi - thanks for your prayers - I wish I could blame the cancer on ptc but I honestly don't believe they're associated at all - I was diagnosed with stage III breast cancer in June - had a mastectomy a few days later and am currently waiting to start the radiation - which is every day for about 6 1/2 weeks - After having the shunt removed, have you seen any improvement in your vision? What does the neurologist say?
I hope you find some answers!
Denia
----- Original Message ---- From: jwtooblsd blessed <jwtooblsd@yahoo. com> To: ptc@yahoogroups. com Sent: Friday, January 11, 2008 11:16:59 PM Subject: Re: [ptc] steroids
I hope everything is going ok with you and the chemo, is it related to the PTC in any way? While I was in the hospital awaiting to get my vp shunt, my neuro opth had me on 1000mg of solumedrol and 5000mg of diamox. Now I have fuzzy vision, unable to drive and on disability. I ended up having the shunt removed 8 months after it was put in and so it's been almost 5 months without it and no fluid build up or headaches. I am truely blessed. I will keep u in my prayers. --- Daniel Mcneill <de_mcneill@yahoo. com> wrote:
> HI - I can't say for sure it is caused by the > steroids - however, I have just completed 6 rounds > of chemo and prior to each chemo infusion, I was > given an IV bag of steroids and then for the 3 > following days I took a high dose of steroids - I > always
got a huge headache and have had some blurred > vision - my neurologist says the blurred vision can > be caused sometimes by the chemo - so...not sure if > that includes steroids or not - good luck! > Denia > > > ----- Original Message ---- > From: jwtooblsd blessed <jwtooblsd@yahoo. com> > To: ptc@yahoogroups. com > Sent: Friday, January 11, 2008 9:37:18 AM > Subject: [ptc] steroids > > Hello everyone, I hope you had a wonderful holiday > and > have a blissful New Year. I was wondering has anyone > experience vision problems due to high doses of > steroids? > > ____________ _________ _________ _________
_________ > _________ _ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo. com/r/hs > > > > > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > >
Hi everyone, I thought I would tell you what I have recently noticed with my medication. Last week I had a relapse with my asthma, for those who don`t know, ...
Mark Rigby
rigbyrigerby@...
May 21, 2000 2:08 pm
Hello everyone, I hope you had a wonderful holiday and have a blissful New Year. I was wondering has anyone experience vision problems due to high doses of...
HI - I can't say for sure it is caused by the steroids - however, I have just completed 6 rounds of chemo and prior to each chemo infusion, I was given an IV...
I hope everything is going ok with you and the chemo, is it related to the PTC in any way? While I was in the hospital awaiting to get my vp shunt, my neuro ...
Hi - thanks for your prayers - I wish I could blame the cancer on ptc but I honestly don't believe they're associated at all - I was diagnosed with stage III...
Well I believe my vision is very very slowly improving because I read now w/o my glasses and I have always kept them on no matter what. I go back to my neuro ...
Yes, that is me - it has been a while since I've been online - thank you for your thoughts and prayers - let me know how the visit with the neuro/opth goes! ...
Denia--good to see you posting. I understand that one suspected cause of IH is withdrawal from steroids...and that for some patients carrying a diagnosis of IH...
Hi Ralpha - it has been a while since I've felt like getting on and posting to be honest - my neuro would sometimes use a short course of steroids - a medrol...
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