This same thing happen to me. Started in Late, 2001 amd not sure how long before the remission. At that time effecting only one eye. When it returned the end...
Thanks for the info The thing is that the ringing in the ears has never left, but for the past 3 wks the headaches have returned, and am not sure if its due...
Ooooh I am so sorry.... I live this every day also. So I do understand, and it seems like no 2 cases are just alike!!! Or the Doctor's treating this. I...
Hello MsDelite143: I hope that all is well with you. I was diagnosed with PTC in 2005 but am almost certain that I had it long before that and did not know it...
Hello everyone, I am normally a quiet visitor but i am going into hospital on the 13th of February to have decompression surgery and as the day comes closer...
Hello from Dallas TX, I am about to go to bed, but had to drop you a note. Do you mean the Orbital Decompression, on your eye's? I had mine done during the...
Hey Martha, I think she meant brain decompression because she has a Chiari Malformation. I have one as well, but I am hoping and praying that I don't have to ...
Kathy, I was diagnosed with PTC in 1997 and I have a LP shunt with abdominal valve. I developed a chiari due to the shunt and had decompression surgery in...
What is decompression surgery, why is it done? ... valve. I developed a chiari due to the shunt and had decompression surgery in 2001. The preparation for it...
I had my decompression surgery in 2001 and since then I have had headaches but they are manageable. I basically have a stiff neck each day but other than that...
Piha, New Zealand. Hi Everyone – I have been lurking for a long time. Old time group members will recall I have had both optic nerves operated on and 5...
Crystal, I am doing pretty good right now. My VP shunt was removed in Aug. 06 because it was leaking through my abdomen. I feel blessed. I have low spinal ...
thanks so much for those words, and i think you're right, i think my main problem is the waiting!my head fills up with more and more thoughts about it each...
Freeda and MsDelite...ditto for me! It took three years to get a diagnosis, at which time, my vision had regressed to legal blindness (couldn't leave the...
Hello everyone,  I hope you had a Blessed weekend. I have a question about when you are in remission. I had my vp shunt removed almost a year ago. I am...
About 4 years ago I went into remission. Oh it lasted maybe 4 months but no more then 6 months before it came back. I wasn't sure exactly what you were asking....
Thanks Gina, my eyes are not like they use to be, but at my last appt, the doc said it looked like the optic nerve was less swollen. I guess I am in...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Offline 
Send Email