I had an appt with my primary and she said she'd talk to the staff neuro and they pulled my MRI I had done in July of this year and he reviewed it and said he won't do the spinal tap she suggested looks like their could be a malfunction. I was floored when she called telling me this yesterday. I told her I'm afraid now and feel like not going further with this and just dealing with the headaches. She said I can't do that I must call the neuro today that did my shunt (the non-programmable kind - VP I think) at university Illinois Chicago - Dr. Slavin and get an apointment ASAP and if I can't get in with in 7 days I will have to be sent somewhere to check my eyes but to call today and see when they can get me in and call my primary back. I'm scared. I've had 3 good years of health, but before that my 6 months of PTC before the shunt was a life of sudden hell. Anyone experience any type of relapse like this, and can share your story?
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