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This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.
Hi Gina, vp shunts are wonderful as long as they keep working. Sounds like your having your "honeymoon" is over headache as I call it. I've had 4 vp shunts
Hi Gina, I have a vp shunt and i get those twinge pains all the time in my head ...Like at any minute I will be getting a headache. But I have had this shunt
Hello Everyone. This is my first time here. I found this group doing a search for support groups. I was looking for a place I can talk to people about PTC that
Thank's again Glen 4 your advice. Sorry 4 having 2 write so big, but with such blurred vision, this way I know @ least a bit of what I am writing. Since I
Hey Terri, Boy that's a toughie. IH and Meniere's can overlap in more than a few ways. Meniere's is such a bugger and from what you have said before you have