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This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.
Hi Martha, Unfortunately, the information in your oh-so-helpful paperwork is nothing more than what has been floating around regarding IIH (which is all too
I am also a Dr. McHenry patient and I did see Dr. Chai. His office told me that they would send out letters when they find out something. Has anyone gotten a
Thanks for the info Susan. Most of these doctors everyone posts do not take Medicaid which is my biggest problem. I won't go see a doctor that no one has
As I live in California and would not be able to see your doctor, could you share with us what he perscribes to you. I think my doctors are great but they