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This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.
I have a lumbar shunt in the base of my spine since 1991 and it still works well ... From: "Dee" <msdreamylatina@...> To: ptc@yahoogroups.com Sent: Monday,
HELLO ALL AM IN NEED OF INFORMATION ON SHUNTS. AM IN MY SECOND ROUND OF THIS TERRIBLE DISEASE. AM TO THE PT WHERE MY NEUROGLIST WANTS TO SEND ME TO A NEURO