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This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.
Hi me again My digestive tract wasnt working last year after they put me on synthetic throid I went to mayo and asked if it was the meds they said go back on
 HI,  My symptoms are many. Recently diagnosed with arthritis head to toe fibromyalgia. hoshimotos hypothyroidism have been told I have an overactive
Dear Janine, Thank you so much. I understand the chiari being caused by a shunt. Mine was caused by a spinal tap, gone awry. I will pray that your syrinx
Dear Sue, I am sorry I did not see your post sooner; it has been a hard few days. Would you be able to go to New York, for a two-day trip, to see a doctor at