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ptc · This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encourag
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***********TEMPORAY********* NEW MEMBERS WILL BE APPROVED UNTIL SPAM GETS UNDER CONTROL! SORRY:(***************************************
This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.

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Shunt revision
Hello everyone- Hope all is well with everybody. It has been a while since I have posted on here. I had a vp shunt revision done on January 20th 2009. In
Posted - Wed Nov 11, 2009 1:32 am
 bbailey1804924
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a devotional for us
Hiya ptc family, I ran across a devotion for today that is helpful to any of us ptc'ers who are spiritual; Here's the link:
Posted - Thu Nov 5, 2009 1:29 pm
 Kenyon Smith
kenmuf
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Re: Shunt tubing
Wow! It's really disheartening to hear so many issues with the shunts! I'm not the sufferer of PTC, but my best-friend is. She is allergic to sulfa, a main
Posted - Thu Oct 29, 2009 12:06 pm
 starrieangel03
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Re: Diamox side effects
I am taking Lamictal for seizures and my neuro said it is a good med, even in the long run. I also am on diamox, lasix and a eyedrop to help keep fluid out of
Posted - Thu Oct 29, 2009 4:47 am
 jwtooblsd blessed
jwtooblsd
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Re: Shunt tubing
I implore all of you who may have had an abnormal MRV to seek an Interventional Neuro-radiologist to explore this further. We were told that our daughter's
Posted - Thu Oct 29, 2009 3:58 am
 SherylRB@...
sheryl.busch
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 25 11 38 61 8 4 24 14 37 2
2008 30 13 21 38 14 1 80 177 16 41 10 122
2007 69 107 90 95 12 52 87 73 32 27 10 13
2006 157 140 89 38 61 84 68 47 71 89 55 46
2005 157 164 147 58 95 227 76 146 119 138 109 79
2004 177 167 460 430 172 188 151 341 107 141 71 117
2003 456 505 601 454 316 370 524 380 393 425 414 270
2002 342 572 938 1314 1007 574 463 408 591 675 421 442
2001 172 150 216 393 167 461 483 393 419 405 214 333
2000 77 378 360 340 342 370 316 446 268 338 249 128
1999 49 22 16 41 21 31 55 33 37 28 103 68
1998 402 413 259 162 100 42 37
1996 5
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