***********TEMPORAY********* NEW MEMBERS WILL BE APPROVED UNTIL SPAM GETS UNDER CONTROL! SORRY:(***************************************
This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.
HELLO ALL AM IN NEED OF INFORMATION ON SHUNTS. AM IN MY SECOND ROUND OF THIS TERRIBLE DISEASE. AM TO THE PT WHERE MY NEUROGLIST WANTS TO SEND ME TO A NEURO
My heart and prayers go out to you Beth. I also pray for all of you suffering from this cruel illness. Love, Ken ... Beth, I may not be in Maine or even close
Beth, I may not be in Maine or even close to where you are, but you are in my prayers and I hope that this will be the FINAL revision. Janine/Texas ... From:
Hey Beth, Long time no hear. I am so sorry that things are not going well for you. If there is anything I can do for you please let me know. You can email me
Hello everyone- Hope all is well with everybody. It has been a while since I have posted on here. I had a vp shunt revision done on January 20th 2009. In