Sent from my iPhone ... Sent from my iPhone Begin forwarded message: From: "Fuller" < protoninfo@... > Date: February 26, 2012 10:52:57 AM CST To:...
7728
David O Stevens
lupronlegion...
Mar 1, 2012 11:52 am
Sent from my iPhone ... Sent from my iPhone Begin forwarded message: From: "Fuller" < protoninfo@... > Date: February 26, 2012 11:47:17 AM CST To:...
7729
David O Stevens
lupronlegion...
Mar 1, 2012 11:53 am
Sent from my iPhone ... Sent from my iPhone Begin forwarded message: From: "jerry_delaware" < alal19808@... > Date: February 26, 2012 5:18:35 PM CST To:...
7730
David O Stevens
lupronlegion...
Mar 1, 2012 11:54 am
Sent from my iPhone ... Sent from my iPhone Begin forwarded message: From: "Fuller" < protoninfo@... > Date: February 27, 2012 5:36:11 AM CST To:...
7731
sheila Dorman
sheila_dorman
Mar 3, 2012 4:31 pm
Hi Folks,  I would like to thank all that helped  in traveling this journey,,,We went to Mass.General in a snow storm and we were lucky enough to get the...
7732
Fuller
protoninfo
Mar 3, 2012 8:46 pm
Sheila: the MRI you are referring to is probably MRI Spectroscopy with endo-rectal coil. If not with the coil, I would ask why not. This test is used in...
7733
Roxanne Herrera
rox201
Mar 3, 2012 11:47 pm
Sheila, Make sure their MRI is a high resolution "3T" type. (Ask the group for information as to why if you have questions.) Val ... From: Fuller...
7734
Richard Vance
richardlvance
Mar 4, 2012 8:19 pm
Hi Sheila, Good luck on that journey. I'm giving you a little advice on doctors and biases. Yes they have biases. Its the Anthony Zietman(sp?) guy I'm...
7735
zz Jones
zzzzjones
Mar 4, 2012 9:34 pm
Hi All, Lurkers too, To augment Richard's information, when I was diagnosed in 2000 and started learning what this journey was about, I began attending a...
7736
jerry_delaware
Mar 4, 2012 11:01 pm
Let's not forget that Sheila's concern was that her husband had failed IMRT. That was on the basis of a positive Prostascint which is notoriously unreliable...
7737
John Roehm
jofroehm
Mar 5, 2012 6:31 pm
I find the final paragraph of ZZ Jones below most interesting. At MGH, surgery is promoted and proton Rx diminished. Couple that with the extensive publicity...
7738
Fuller
protoninfo
Mar 6, 2012 3:01 am
All you guys (and gals) that have time to do some quick checking and research: Anyone know of examples of a PSA "spike" immediately following radiation...
7739
David Stevens
lupronlegion...
Mar 6, 2012 3:52 am
Fuller, As luck would have it, late last week Joe Landry and I just got through using an illustration of just such a phenomenon in the Proton Pals Newsletter....
7740
Fuller
protoninfo
Mar 6, 2012 4:34 am
Dave, Attachment will not work on Yahoo-- please send the attachment to my standard email: cnsjones "at" yahoo.com thanks Fuller...
7741
Fuller
protoninfo
Mar 6, 2012 11:25 am
Never mind Dave, I sent him the link to the Proton Pals issue. Thanks Fuller...
7742
Milt
gb421028
Mar 6, 2012 12:33 pm
I was told by my doctor (Jabola) at Loma Linda that the reason they recommend a first post-proton radiation PSA test and DRE at the five month point is because...
7743
Milt
gb421028
Mar 6, 2012 3:30 pm
A fellow member of this board reminded me offline that Loma Linda recommends a PSA check and DRE at FOUR months after completion of treatment not five months...
7744
Wayne H
harding.wayn...
Mar 6, 2012 3:38 pm
David, you mentioned below the current Proton Pals Newsletter, where you wrote a very informative and helpful article. I have a couple of questions from your...
7745
David Stevens
lupronlegion...
Mar 6, 2012 4:12 pm
... And the MDA Proton Center sets the first checkup THREE months after completion of proton therapy. DAVE ________________________________ From: Milt...
7746
David Stevens
lupronlegion...
Mar 6, 2012 4:51 pm
Wayne, thank you for your questions and interest. 1. The doubling conclusion comes from the 2.78 Hazard ratio. Here's the text I got it from: "On multivariate...
7747
Jan Krouwer
jkrouwer
Mar 6, 2012 5:12 pm
I had a consult at MGH in early 2009 and to be fair, I would not agree that surgery was promoted. At my consult, there was a surgeon, a radiation oncologist,...
7748
zz Jones
zzzzjones
Mar 6, 2012 6:00 pm
Makes one wonder if Dr. Zeitman and his friends have an interest in trapping Medicare dollars by steering patients to something nearby and so scientifically...
7749
Fuller
protoninfo
Mar 7, 2012 2:09 pm
I agree that surgery is not necessarily promoted, but know by the experiences of several men that proton therapy for prostate cancer is NOT encouraged. As I...
7750
jwwright
jwwright2
Mar 7, 2012 2:35 pm
I really believe they just can't schedule as many Proton sessions as they can surgeries. Radiation takes a significant part of the machine's capability. Think...
7751
davewil@...
davewil3
Mar 13, 2012 7:26 pm
Has anyone heard of the TrueBeam STx system? http://www.variantruebeam.com/ There was a story in our local paper stating it reduced treatment time from 7 weeks...
7752
Fuller
protoninfo
Mar 13, 2012 9:05 pm
Any of these "systems" that purport to shorten the treatment duration (by increasing dosages)increase radiation dosages above the amount that has been tried...
7753
Richard
richardlvance
Mar 14, 2012 6:32 pm
Yes that's correct Fuller. In the world of external beam radiation using x-rays (waves) every, EVERY, so called enhancement is an attempt to make waves only...
7754
Richard
richardlvance
Mar 16, 2012 5:57 pm
Well y'all have been a great source of information and encouragement during these last two years while I fought insurance companies and ignorant urologists for...
7755
jwwright
jwwright2
Mar 16, 2012 6:15 pm
Thanks for all that info, Richard. That is good news. I don't think the cancer is gone, but given that scenario I think I would wait also. My only other...
7756
Fuller
protoninfo
Mar 16, 2012 7:19 pm
Thanks Richard for the good advice and congrats! Fuller...
