Chris, I am not sorry for doing it, the ADT did not really disrupt my life all that much, it made it a bit more uncomfortable. The main reason I wanted off of...
7106
jwwright
jwwright2
Sep 1, 2011 2:35 pm
Hi Steven, I wasn't on ADT and wasn't offered ADT, but I'm believe there are cancer benefits other than prostate. The question in my mind is with a rising...
7110
Thomas
christianmir...
Sep 4, 2011 12:10 am
It sounds like you should not go with PT, or if you are set on PT, get another opinion from another facility. Wishing you all the best Thomas Reed...
7118
Gary Cordes
gjcordes
Sep 5, 2011 5:01 pm
Fuller, Earler is my research concerning PBT I read about different immobilization methods used during PBT. Bob Marckini described the LL pod method very well ...
7119
Sharon Gordon
sharon93_19008
Sep 5, 2011 8:40 pm
Gary, If you don't feel good about the final resolution at MDA, why not contact LLUMC and request a second opinion? I'm guessing that if you describe your...
7120
Fuller
protoninfo
Sep 6, 2011 12:02 am
Hi Gary, When you have your sit-down, be sure and ask about the pencil beam option as Tom suggested, and different gantry angles as I did. Now if the idea of...
7121
jwwright
jwwright2
Sep 6, 2011 12:45 pm
Sorry about your experience, Gary. I think you mean how do they hold the prostate in the same position, each time and keep organs away from radiation, etc. In...
7122
Chris Ellefson
csellefson
Sep 6, 2011 3:49 pm
Gary, To expand on what JW said: I was treated on Gantry 3 pencil beam at MDA PTC. The X marked initially on the hips was just to position me on the table and...
7123
Fuller
protoninfo
Sep 6, 2011 11:18 pm
Maybe I will try to post this at least once a week: "When you apply to this Group, PLEASE PROVIDE YOUR FIRST NAME OR 'HANDLE,' AGE, PSA, GLEASON SCORE, AND ANY...
7124
warrensunnland@...
warrensunnland
Sep 7, 2011 1:39 am
Sent via BlackBerry by AT&T ... From: "Fuller" <protoninfo@...> Sender: protoninfo@yahoogroups.com Date: Tue, 06 Sep 2011 23:18:08 To:...
7126
zz Jones
zzzzjones
Sep 9, 2011 11:38 am
This looks suspicious... a hack job? Cal Jones (BOB 8/00) zzzzjones@... Liberty Station, Point Loma, California, USA Sent by my ACER AspireOne Black...
7127
general44@...
mcporet_usn
Sep 9, 2011 11:45 am
My feelings exactly. I certainly did not click on it! Dave K Pinehurst, NC...
7128
Fuller
protoninfo
Sep 9, 2011 6:26 pm
Dunno, but I deleted it! Fuller...
7129
Fuller
protoninfo
Sep 9, 2011 6:28 pm
Warren, no body in your message-- Fuller...
7130
zz Jones
zzzzjones
Sep 9, 2011 7:12 pm
Hi Dave, I too did not click on it. I was hoping the person whose computer was hacked would get my message and take measures to clean his/her computer. What I...
7131
general44@...
mcporet_usn
Sep 9, 2011 8:32 pm
Hey Cal, No general here; rather, a retired Navy E-9. The "general" in my email address is for general purpose. Dave On Sep 9, 2011, at 3:12 PM, zz Jones...
7132
zz Jones
zzzzjones
Sep 9, 2011 9:52 pm
... in that case, I will follow the general rule: you are promoted to Admiral Cal Jones (BOB 8/00) zzzzjones@... Liberty Station, Point Loma,...
7133
Fuller
protoninfo
Sep 10, 2011 6:05 pm
I dunno, but I just approved a new member who said: "Am a former prostate cancer patient of UofF Proton Therapy Institute " What we need here is for new...
7134
Fuller
protoninfo
Sep 16, 2011 11:12 pm
"I am a prostate cancer patient diagnosed 4/13/11 with Gleason 7. I am receiving proton therapy at M.D. Anderson and will complete treatment on 9/30/11. I am...
7135
DonM
donaldmuridan
Sep 18, 2011 4:15 am
Hey Everyone, Well here is an update since my last post. It's bee a little of a roller coaster ride. Just a recap, I was diagnosed at 42 with PCA in 2009. I...
7136
Dave Cowan
mthok1e
Sep 18, 2011 4:18 am
Wow. Thanks for the update, Don. You and I were the 2 "young guys" there in June 2009. Sounds like you are getting excellent follow-up care. Dig in, stay...
7137
Sharon Gordon
sharon93_19008
Sep 18, 2011 1:12 pm
Don G. and I will be praying for you. Your positive attitute also bodes well for you. Please continue to keep us updated. Sharon...
7138
N.
arivia_2
Sep 18, 2011 3:39 pm
Don, thank you for the explanation of the route/s you took to make the best decision for you at this point. Also, congratulations on your blessing of a boy...
7139
zz Jones
zzzzjones
Sep 18, 2011 6:38 pm
Hi Don M., You have shared a good description of relevant aspects of your diagnosis and treatment decisions/choices. Obviously all relevant to you personally,...
7140
therushings
therushings@...
Sep 19, 2011 12:26 am
Don, I am so sorry that you had a recurrence of your cancer. You and your family are in our prayers. Laws & Marilyn Rushing...
7141
DonM
donaldmuridan
Sep 19, 2011 2:14 am
Thanks, it's appreciated :) don m....
7142
zz Jones
zzzzjones
Sep 19, 2011 4:37 am
Hi Don M., You have shared a good description of relevant aspects of your diagnosis and treatment decisions/choices. Obviously all relevant to you personally,...
7143
DonM
donaldmuridan
Sep 19, 2011 5:28 am
Hello and thank you for your very informative reply. I flew down to llumc and met with Dr bush in June. At that time I didn't have my endo-rectal mri nor a...
7144
Fuller
protoninfo
Sep 19, 2011 10:58 am
Don, this is my opinion and mine only. I am not a medical doctor and certainly Dr. Bush has the qualifications to advise you and I do not. Nevertheless, as...
7145
David Stevens
lupronlegion...
Sep 19, 2011 2:46 pm
Hi DonM, As a Gleason 9 and graduate of MDA Proton Therapy (November 2010 - January 2011), as well as being on a two year stint of ADT (August 2010 to August...
