Hi, all, I just became aware of this group through Rick's blog. Here's the information I was asked to provide: 1. My name is Jay Ashman and I'm from...
My name in Warren Sunnland and I live in the Honolulu, Hawaii. I'm 63, married with 2 children in their early 20's. I was diagnosed w/ Cap PCa about 2 weeks...
My name in Warren Sunnland and I live in the Honolulu, Hawaii. I'm 63, married with 2 children in their early 20's. I was diagnosed w/ Cap PCa about 2 weeks...
Warren, I am about to embark on my LLUMC adventure. They are currently making application to my ins. co. (Anthem Blue Cross / PERS Choice with CalPers in...
Jay, there is a successful appeal letter in the files, if you have not seen it. Don't remember the circumstances. Bob Marckini has a person that is pretty good...
Aloha Ken, Thank you very much for replying so quickly. I have recently heard similar cost estimates for treatment and accommodation while receiving treatment...
Jay, Another thought. Try to go ahead and join the Brotherhood of the Balloon (Bob Marckini's Group) If you are this far along with the decision process for...
Warren, I think the $37K was an estimate for PBT only. I don;t know what the hormone therapy would cost. LLUMC also can put you in touch with a company that...
Ken, thanks for that great post. Good stuff!! You said: "I was like you, researching options like crazy, then I relaxed a bit when I read Bob's book and saw...
Just a few notes - my husband had a 70cc prostate prior to PBT and no treatment was deemed necessary prior to treatment per radiologist at Loma Linda. He was...
who says: "Tying to find help with my proton therapy treatment coverage with Humana insurance. I will be going to Loma Linda in CA for treatment." Welcome, Is...
It just might be significant that about two years before I was dx, I had low testosterone, and my doc prescribed "androgel" -- often wondered if it may have...
Hi Steve By the time this email is posted you are well past your halfway mark in your treatment schedule and I hope things continue to go well. Good going...
Regarding John Hopkins Information. I am not a medical doctor, and I did once upon a time use John Hopkins information to learn about prostate cancer, but...
I just got the results from my three month MDA post treatment checkup. My PSA shows 0.5 which seems very low to me at three months. (pre-treatment PSA = 7.4) ...
Yes, Paul, I completely agree. The same thing is now going on here in Philadelphia. Now that the Roberts Proton Center at Penn is open, Fox Chase Cancer...
Bias is everywhere; it is natural. It is also useful and probably can even be classified as healthy to some degree. If a distinction is worth trying to make in...
It is possible that the Philly center has all the prostate business they can handle and need not advertise. A comment by one of the Philly doctors during an...
Jess I haver spoken to other men who were on Lupron prior to and during PBRT treatment and their PSA's were somewhat lower than pre-lupron numbers and that...
PSA after Lupron: YES what you have is completely normal. As Hugh says above, the effects of Lupron (and I mean almost ALL the effects) continue for quite a...
This comes under the heading of "Don't get me started!" I hope the Roberts Center does not follow the MGH model and almost ignore the needs of prostate cancer...
Thanks Fuller, Your info relieves a tiny doubt in my mind about the accuracy of my PSA test. With hindsight (and the prompting of your info), I realize that ...
Fuller/Jess I keep hearing a lot about hormone therapy in conjunction with PBT. I am currently awaiting info from LLUMC as to whether my ins.co. has...
I was placed on Zoladex (similar to Lupron) immediately after being diagnosed in 2000 (GS 6, psa 9.6 rising, age 59) by my uro. I was scared by the diagnosis...
Ken - "Does everyone receive hormones with PBT? and if so is it prior to or during PBT? or do some guys get PBT by itself?" The short answer is No. And...
