Dear Andrea and Joel, Thanks for posting here, and please keep up apprised of status. First of all, Joel's cancer is apparently in the very early stages. You...
I wish you well as you begin your experience at MPRI. Kim is great and you will find that everyone is very caring and genuine. Be sure to find Griffey Lake...
Rick Otey Read your response to Andrea. We like her are in the middle of the research and have reduced our options down to robotic and proton. You mentioned in...
Glad to meet you and welcome. I only know personally one man who did robotic on May 12, 2005 and he has had issues since. He still wears pads in his underwear...
Aubrey pilgrim, whom I consider a personal friend although we have never met in person, in undergoing a personal life trial, and apparently has (reported by...
Fuller Thanks for helping. Original PSA in 12/07 was 4.5. Last week it was 4.76. Gleason in January was 3+3 and a 3+3. 4 out of 18 cores; 2 on each side....
Tom, I'm going to chime in here. My 59 year old husband, Gregg(maybe he'll chime in as well) was treated just a little over a year ago in Loma Linda. In fact...
Fuller and friends of Aubrey's, I found a phone number for Aubrey and tried calling. No answer and no message machine. There are a number of Pilgrims living in...
Tom, the link below is why I said that your PSA, for all practical purposes is holding. There is obviously variation in PSA from day to day for no particular...
Tom: Tell your knees to stop quaking! There is not that much of a rush. Are you sure that Florida PTI is two months behind? How do you know that? Did you...
This morning, we received an e-mail from UFPTI. Basically, we were informed that an information package has been sent to us which includes a checklist of...
This is a request of the proton graduates(you know who you are). We have had several new members join recently asking for input without much response, except...
Andrea, I just want to clarify that the brief medical history isn't something you have to prepare yourself. There's a 1/2 page of questions Joel will have to...
Laurel Thanks for the support and kind words. We have been scouring YANA since I got Fullers recomendation. Great site. Will be talking with you soon. Tom? ......
Fuller I'm hoping this is semantics. We had a consultation at Florida last week. Four weeks till they schedule the next treatment/cast then another 2-4 weeks...
That is exactly the schedule we were given last week. We are in the holding period before the workup. Nerve racking to say the least. The bottom line is we...
Thanks to all for the FPTI scheduling inputs, it helps to know these things. The Florida scheduling is apparently starting to exhibit the crush of applicants...
"7) Are you taking Plavix or Coumadin or any other bood thinning medications (if so, have physician send note stating you can stop Plavix 10 days prior and...
Fuller, The form is entitled, "University of Florida Proton Therapy Institute, Required medical records to obtain for prostate cancer consultation." I have no...
Hey Tom, I just returned from my friend chucks house. He just got home from MD Anderson and his words "What a great experience I had". Enough said. They are...
<snip>The time period between the consultation and the 3 day workup is 5 to 6 weeks.<snip> (FPTI) This part of the message is indicative of the delay due to...
Good morning Marilyn and Laws, If you go to the MPRI site, www.mpri.org and click on The MPRI Experience and then click on virtual tour to the left of the...
Thanks Rick for asking Chuck to give us an update. We really need a recent rundown on how things are going at M. D. Anderson, their current timelines, and if...
Tom - I think the treatment at M.D. Anderson is great, but I have no comparison in the proton treatment area. As far as other opinions go you can read Ban...
Thanks Joe, A few things I did not know here, and certainly those who are interested in Anderson and Houston should read this. One thing he says is: "I now...
Joe I could not have asked for a better response to my inquiry. That was an excellent story and very similar to my search results so far. Thank you so much for...
This is horrible news, worse than the suspected Alzheimer's. He clearly knew that something was very wrong. Aubrey posted his address on the prostate pointers...