Hi Everybody, I've got a question for those of you who have had proton therapy. Gregg had an episode of blood in his urine, including a blood clot, which he...
Hi Laurel, I am also at 2+ years as you know, and I have NOT had any such episodes. Have not had any more rectal bleeding either except for one time at about...
Because of my anxiety, my initial post was a bit sloppy. I hadalready given Fuller some getting started info, and, not realizing how these groups work, I just...
Jim I think the main difference you will find between UFPTI and MPRI is how they administer the balloon or lack thereof. MPRI slips rubber bladder over a...
Wow! Thanks Jim! I highly recommend that you join YANA http://www.yananow.net/ and cut/paste this into the "Mentor Experiences" under the Proton heading....
"Name is Joe - currently undergoing treatment at MD Anderson age 53, PSA 5.2 Gleason 3+3 would like to communicate with others about all aspects of tretment--"...
Good news yesterday... Steve's original consultation at LLUMC was May 18 but he got a call yesterday morning to move it to April 30 and then yesterday...
Hello Everyone, Can someone please refer me to a site (or sites) showing stats for Proton Therapy vs. Surgery? Also, as you may or may not already know per my...
Don, My husband (another Don) was also worried about the wait for proton treatment, but it really was no problem. He was diagnosed in January, 2008 and began...
Sharon Same here. Diagnosis in January began Proton at MDA mid June. PSA 4.5 Gleason 4+3 age 60. In addition to all the case history's at YANA that gave me...
Speaking of stats, it would be helpful to get stats on how successful it is to go for surgery now as opposed to waiting 3-6 months. A certain amount of...
As most here know, I am EXTREMELY biased against surgery as a treatment for prostate cancer. I personally feel that prostate surgery (all varieties including...
I can't provide any documentation, but during one of the discussions with my urologist, he mentioned a study in which patients whose treatment started very...
PS: I see by the last line in my post that there is a popular inference that can be drawn from the apparent stats that are available. That is that it is...
Thanks Don, Well I guess you know the "downside" of proton therapy, which are: #1, the expense (insurance usually pays but some will not)-- Medicare does, but...
i read these words from a man on another list, and I completely agree with him. Laurel I am convinced that we are poorly served by the urological/medical...
Hi Debby, Very good news about Steve's consult appointment being moved up. I have heard nothing but great things about Dr. Grover. I get the impression that he...
Hi, I logged on a month or so ago. I am scheduled to receive proton treatment at MGH-Boston end of April or very beginning of May 2009. I just found out that...
My understanding is that the initial treatment stimulates cancer cells to grow so waiting is not an option. The treatment should continue without delay until...
When we were at LLUMC between June and August of 2008, it was not unusual to have a gantry down for a day. Most of the men had one or 2 such incidents during...
I hate to be cynical and skeptical, but a gantry down for that period of time seems ridiculous in this day of technological knowledge, especially if the...
Thank you for the quick response.I was checking my gmail account rather than the yahoo that I was prompted to in order to reach proton info.I am almost 70...
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