AMEN Fuller, et al!!! This is no place for politics...take it somewhere else! Going to UFPRI soon for initial interview. Will continue to followup. ... in our...
Steve has his consultation scheduled for May 18 at LLUMC. What can he expect after the consult? The coordinator tells us it will be one to three weeks after...
Debby, When Don had his consult at LLUMC, we traveled to Loma Linda all the way from Pennsylvania. Because of the distance, he was scheduled to start his...
Paul had his consultation moved up by three weeks by our asking about being put on the wait list. This was in 2007. His treatment start date was 2 1/2 weeks...
Try phoning the doctor with whom you have the consult. You will likely be able to speak to his nurse. Some of us have had our consults significantly earlier...
Hi: You said: "i am trying to join but it keeps saying only 200 characters...i got it down to only 50 and same message "--- You are now a member. and can post...
Paul says: "Paul, 46, PSA 2.8, Gleason 6. Keystone Health Plan East (HMO of Independence Blue Cross in Philadelphia) denied request for treatment at UFPTI...
Additional Suggestions: Get a second opinion on the biopsy slides to confirm Gleason 6. You would not be the first to find that a second opinion found no...
My name is Anthony Davis, but most people call me Tony. When I had my consultation at the University of Florida Proton Treatment Institute in May 2008, they...
Thanks Tony You are encouraging us that we are going the right way debby theiler ... From: Anthony Davis <ammo8095@...> Subject: Re: [protoninfo] Welcome...
Hi Paul, The insurance denial based on proton therapy being experimental/investigational is such bulls**t. There is a woman who is married to a Loma Linda...
I had a one-year checkup on my prostate cancer today and came away with a good report. Leaving the clinic in Jacksonville, we drove north along the coast and...
For those who have not visited Ron's Blogspot, please do so. His complete proton experiences are well documented, including photos of the Jax. facility. ...
Welcome new member Leo, who says: "Have recently been diagnosed and am exploring treatment. Since I live in the Delaware area I will need to make housing...
Don and I would like to welcome Leo also. Actually Leo is our cousin. He's just been diagnosed and we're trying to educate him about proton therapy. We can...
About a week ago I had my first quarterly follow up exam since completing proton treatment at MPRI. The DRE "felt" like everything was normal. The PSA results...
Congratulations Ron on your really good PSA number! Thank you too for the eagle pictures! It's nice to stop and (smell the roses)/take eagle pics....while...
We've just returned from 2 days at MD Anderson. We were very impressed with the beautiful Proton Center, the efficiency and care of the doctor and all the...
I had proton and hormone treatment last year at MD Anderson and know of several options for local accommodation. I shall send details to your aol address. ...
Who says: "I'm currently receiving proton treatments at Loma Linda. My experience here has been wonderful and proton treatment information needs to be shared...
I believe that Fuller had hormone therapy prior to Proton Therapy. In my own case, I was given hormones afterward, as a follow-on to Protons. I had two shots...
Marianne - It's unfortunate that they didn't include a housing guide in your husband's new patient packet. Here's a link where you can access the same...
Just received my Newsletter from LLUMC in which they detail progress on the new robotic positioning system. I presume this is Gantry #1, as the preps for this...
... I'm taking the patients "Proton tour" here at Loma Linda tomorrow so will have a more info after that. I have about four weeks left in my treatment and...
Hi All, I cannot answer Fuller's question with the precision I am sure he is looking for, but I think I can add some to this thread since I recently spoke with...
All of this sounds alot to me like the pencil beam at MDA. It has about a twelve foot diameter verticle circle with a table to lay on in the center. Xray...
Bradford, that was my first thought also, but in reading the article in "Proton" about it, even though they call it "Image Guided Proton Therapy," there is no...
Mariann, May name is John, I do volunteer work at MDA Proton Center on Monday afternoon. I was born in Houston about a mile from what now is the hospital. As a...
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