We welcome alk1475 and Ron, who say: alk1475: My husband had Proton Therapy and I have a friend with prostate cancer who is being pushed for surgery. We'd...
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Fuller Jones
protoninfo
Oct 1, 2008 9:36 pm
For an overview of current and planned centers see the "Proton Center Status Update" in the Files. This was as of last June, but pretty much still up to date....
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Ron Kohlin
rkohlin
Oct 2, 2008 12:29 am
Actually, only one newly-minted Proton patient ;-) Since my wife Anita (alk1475) and I use different computers, we took the liberty of joining this group...
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rick otey
ricksdetailing
Oct 2, 2008 1:50 am
Welcome Ron, I enjoyed reading about your experience with protons and it reminded me of my positive one at MPRI in the summer of 2005. I also looked at your...
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Fuller Jones
protoninfo
Oct 2, 2008 2:14 am
Rick, took the liberty of deleting the duplicate post. Ron, sorry about the mix-up. Welcome again to you and your wife. If you don't mind, what was your...
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Fuller Jones
protoninfo
Oct 2, 2008 11:35 am
Hi Ron and Anita, Ron, I took a look at your blog this am. Great job, and enjoyed the pics tremendously. BTW, I know the Copperhill TN area well, as had a ...
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Ron Kohlin
rkohlin
Oct 2, 2008 1:38 pm
I guess I didn't mention that I had two biopsies. The first, done in Chattanooga, took ten samples. It came back T-1-C, 3+3. The second was done in...
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Fuller Jones
protoninfo
Oct 2, 2008 2:19 pm
Understand, Ron, and thanks. You may know this already, but with that Gleason there are those doctors that would argue for at least a year of ADT. Others here...
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wonderwhat
wonderwhat72
Oct 2, 2008 7:59 pm
Friends, I consider myself to be an advocate for those of us who have endured prostate cancer. My insurance company requires a PreAuth for any ED drugs. I...
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Ron Kohlin
rkohlin
Oct 2, 2008 8:35 pm
It's my understanding that all my DRE's indicated a smooth, elastic surface. I assume that's why it remained T-1-C even with the 4+5 Gleason. Ron ... From:...
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Jon Cooke
jonco53
Oct 2, 2008 9:50 pm
HelloGroup: I am diagnosed as a T1c with a Gleason 6. My prostate volume is 56. (larger than average). Â I have been anxiously trying to get started with...
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Bradford Hooper
bradfordhooper
Oct 3, 2008 1:14 am
I have been on lupron for almost two months. It has made me get tired real easily. Of course theres no lead in the pencil. I have to take another shot during...
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zz Jones
zzzzzzjones
Oct 3, 2008 1:32 am
Hi Jon, This is a voice from Been, There, Done That: when I started this journey eight+ years ago, I was put on Zoladex (another hormone ablation drug, but...
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Fuller Jones
protoninfo
Oct 3, 2008 3:30 am
Hi Jon, Is it the doctors at MPRI that are recommending the ADT or your local doctor? With a Gleason of 3+3=6, I am not sure why they would be recommending...
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rick otey
ricksdetailing
Oct 3, 2008 12:03 pm
Hi Jon, I was treated at MPRI in the summer of 2005 with PSA 4.1, Gleason 3+3=6 and Staging T2b. Dr. Thornton at MPRI prescribed an Endorectal MRI at Indy,...
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Jon Cooke
jonco53
Oct 3, 2008 4:29 pm
Hello Fuller: Â It is the doctors at MPRI that said to take the Lupron for two months prior treatments, and possibly 4 months post. What concerns me I was...
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Fuller Jones
protoninfo
Oct 3, 2008 5:05 pm
Jon: Are you saying that you would try to drive back and forth every treatment day? Two hour drive (approximately). Could get dicey in the winter with a snow...
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Jon Cooke
jonco53
Oct 3, 2008 6:48 pm
Hello Fuller:  My psa went to 7.5 from 5.0 over a 3 year period. My new family doctor doesn't do dre's lile my old Doctor so it was a while between exams....
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Stephen Ellington
n4lq
Oct 3, 2008 7:49 pm
Jon I live in La Grange and am currently being treated for PC at MPRI. I would be happy to talk with you or help in any way I can. I'm staying at "Jill's...
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Fuller Jones
protoninfo
Oct 3, 2008 7:56 pm
Hello Jon: I had no symptoms either except some increased urinary urgency and getting up at night. But I went through the same loop. I am now 75, and so was...
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Fuller Jones
protoninfo
Oct 3, 2008 8:03 pm
Hey Steve! Thanks for that offer to help Jon. That is why we are here! Howzit goin'? Let us know how you are doing and some more impressions. Best, Fuller ...
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rdrombos
Oct 4, 2008 1:40 am
Hi, I had my 1st visit to MPRI today. I think the size problem is caused by the MPRI cyclotron not being powerful enough to get the particles through hips...
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Fuller Jones
protoninfo
Oct 4, 2008 2:42 am
Just estimates-- we are all different in our conditions and temperament. Rule of thumb: Gleason 7 or higher; and/or PSA 10 or higher; and/or PSA increasing...
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n4lq
Oct 4, 2008 3:18 am
Fuller: Initially, things weren't going well with my treatments at MPRI. It wasn't their fault however. I quickly developed an intolerance to the balloon and...
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wonderwhat
wonderwhat72
Oct 4, 2008 3:45 am
Fuller, Let me say that I was GS 6 (3+3) and PSA 3.8 (it had gone from 1.3 in 2/07 to 2.5 in 2/08 and 3.78 in 5/08). I may have hit the panic button a bit, but...
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Ron Kohlin
rkohlin
Oct 4, 2008 5:30 am
Hi, Fuller and the rest of y'all ;-) Fuller, I just read your story at Yananow, and ordered the book you wrote. I continue to be amazed at this brotherhood...
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Fuller Jones
protoninfo
Oct 4, 2008 10:03 am
I replaced the first reply as it was not clear on a couple of things, and add a bit.... ... Ron, thanks for the kind words. The reason for this group is for...
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Bill Smith
bill_s_22032
Oct 5, 2008 2:04 am
Any tips on this subject would be appreciated. I'm going down (from Northern Virginia) the last week in October for the three day with treatment to begin 2-3...
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charles coryn
corynski
Oct 5, 2008 2:28 am
Hello Bill Another suggestion for lodging my daughter sent me was the Craigslist sublets/temporary: http://jacksonville.craigslist.org/sub/ I've been looking...
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Anita Kohlin
alk1475
Oct 5, 2008 2:42 am
Hi Bill, The UFPTI website has compiled a list of many of the places Proton patients have stayed. ...
