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Reply | Forward Message #478 of 4952 |
Re: New Member

Andrea,

I just want to clarify that the brief medical history isn't
something you have to prepare yourself. There's a 1/2 page of
questions Joel will have to answer. The other things I listed you
could probably start collecting now.

Sharon

--- In protoninfo@yahoogroups.com, "sharon93_19008" <sfgordon93@...>
wrote:
>
>
> >
> > I'm sure that all of you have received a similiar letter but I
> > thought I'd share. Is there anything we can antipicate in the
package
> > so we can get a head start on preparation?
> > Thanks,
> > Andrea NY
> >
> >
>
>
> Hi Andrea,
> 5 I just remembered that we received a packet, although Don
never
> applied to FPTI for treatment. Here's what is asked for:
>
> 1) Brief medical history
> 2) Copy of insurance card, front and back
> 3) Pathology slides and biopsy reports, all prostate biopsy done
in
> past, different sites, including negative biopsy report.
> 4) All PSA reports and other recent labs
> 5) Any dictated notes from your Urologist visit
> 6) Any imaging studies within the past year- such as bone, CT,
PET,
> MRI scans (written results)
> 7) Are you taking Plavix or Coumadin or any other bood thinning
> medications (if so, have physician send note stating you can stop
> Plavix 10 days prior and Coumadin 5 days prior during treatment if
> needed for bleeding complications.
>
> Also, there ar a few authorization forms to sign. I hope this
> helps you prepare. Please remember, that according to Joel's
stats, he
> has plenty of time; there shouldn't be an urgency to his beginning
> treatment.
>
> Sharon
>





Fri May 2, 2008 12:21 am

sharon93_19008
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Forward
Message #478 of 4952 |
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... Hi Andrea, 5 I just remembered that we received a packet, although Don never applied to FPTI for treatment. Here's what is asked for: 1) Brief...
sharon93_19008
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May 2, 2008
12:11 am

Andrea, I just want to clarify that the brief medical history isn't something you have to prepare yourself. There's a 1/2 page of questions Joel will have to...
sharon93_19008
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May 2, 2008
12:21 am

Very accurate post Sharon. Smiling at cha. Richard--- In protoninfo@yahoogroups.com, "sharon93_19008" ... if ... this ... beginning...
Richard Mallory
smilingoldcoot
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May 3, 2008
4:00 pm

"7) Are you taking Plavix or Coumadin or any other bood thinning medications (if so, have physician send note stating you can stop Plavix 10 days prior and...
Fuller Jones
protoninfo
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May 2, 2008
2:27 am

Fuller, The form is entitled, "University of Florida Proton Therapy Institute, Required medical records to obtain for prostate cancer consultation." I have no...
sharon93_19008
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May 2, 2008
3:13 am

Stoping blood thinners and such is required because the implanting of seed markers to aim the Proton beam is done through what they call a reverse biopsy....
Richard Mallory
smilingoldcoot
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May 3, 2008
3:57 pm

Thanks Richard, that explains it-- LLUMC does not use markers, so I did not have to stop my Plavix. Fuller...
Fuller Jones
protoninfo
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May 3, 2008
4:35 pm

That is exactly the schedule we were given last week. We are in the holding period before the workup. Nerve racking to say the least. The bottom line is we...
play36@...
safebett
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May 2, 2008
12:46 am

Thanks to all for the FPTI scheduling inputs, it helps to know these things. The Florida scheduling is apparently starting to exhibit the crush of applicants...
Fuller Jones
protoninfo
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May 2, 2008
2:14 am

<snip>The time period between the consultation and the 3 day workup is 5 to 6 weeks.<snip> (FPTI) This part of the message is indicative of the delay due to...
Fuller Jones
protoninfo
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May 2, 2008
11:14 am

Andrea, See my other post here. Pleas do your research and consider contacting all the Proton sites. Please don't panic and make sudden decisions. With what...
Richard Mallory
smilingoldcoot
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May 3, 2008
3:53 pm

Rick Otey Read your response to Andrea. We like her are in the middle of the research and have reduced our options down to robotic and proton. You mentioned in...
play36@...
safebett
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May 1, 2008
2:27 pm

Glad to meet you and welcome. I only know personally one man who did robotic on May 12, 2005 and he has had issues since. He still wears pads in his underwear...
rick otey
ricksdetailing
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May 1, 2008
3:07 pm

Hi Tom: Please give us your age, where you are located, and the full Gleason (like 3+4=7 or 4+3=7) The 4+3=7 is the more aggressive. Go here:...
Fuller Jones
protoninfo
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May 1, 2008
5:16 pm

Fuller Thanks for helping. Original PSA in 12/07 was 4.5. Last week it was 4.76. Gleason in January was 3+3 and a 3+3. 4 out of 18 cores; 2 on each side....
play36@...
safebett
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May 1, 2008
7:13 pm

Tom, I'm going to chime in here. My 59 year old husband, Gregg(maybe he'll chime in as well) was treated just a little over a year ago in Loma Linda. In fact...
Laurel
yellow_laurel
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May 1, 2008
10:12 pm

Laurel Thanks for the support and kind words. We have been scouring YANA since I got Fullers recomendation. Great site. Will be talking with you soon. Tom? ......
play36@...
safebett
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May 2, 2008
12:34 am

Tom: Tell your knees to stop quaking! There is not that much of a rush. Are you sure that Florida PTI is two months behind? How do you know that? Did you...
Fuller Jones
protoninfo
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May 1, 2008
10:48 pm

Fuller I'm hoping this is semantics. We had a consultation at Florida last week. Four weeks till they schedule the next treatment/cast then another 2-4 weeks...
play36@...
safebett
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May 2, 2008
12:42 am

Hey Tom, I just returned from my friend chucks house. He just got home from MD Anderson and his words "What a great experience I had". Enough said. They are...
rick otey
ricksdetailing
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May 2, 2008
4:04 am

Tom - I think the treatment at M.D. Anderson is great, but I have no comparison in the proton treatment area. As far as other opinions go you can read Ban...
Joe Landry
rob61roy
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May 2, 2008
2:59 pm

Thanks Joe, A few things I did not know here, and certainly those who are interested in Anderson and Houston should read this. One thing he says is: "I now...
Fuller Jones
protoninfo
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May 2, 2008
3:55 pm

Joe I could not have asked for a better response to my inquiry. That was an excellent story and very similar to my search results so far. Thank you so much for...
play36@...
safebett
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May 2, 2008
5:14 pm

Fuller - There are 4 bays. Three bays have gantries, 2 of the gantries are active and used with patients for other tumors plus to some extent prostate cancer...
Joe Landry
rob61roy
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May 2, 2008
6:53 pm

Fuller The third gantry is done. I'm told that May will largely be a shake out period with patients hopefully being admitted in June. Nothing is certain but...
play36@...
safebett
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May 2, 2008
7:06 pm

My only comment concerning MD Anderson is there orbitrary denial of Proton for high Gleason scores. They are only 3 hours from my home and we have family in...
Richard Mallory
smilingoldcoot
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May 3, 2008
4:11 pm

Richard, I was also rejected by Anderson on my initial phone call because my Gleason (initial reading) was 8. MGH at Boston also will not accept any patients...
Fuller Jones
protoninfo
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May 3, 2008
8:12 pm

Fuller. Are we saying here that metasisis is a direct function of the Gleason? Sent wirelessly via BlackBerry from T-Mobile. ... From: "Fuller Jones"...
THOMAS DALTON
safebett
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May 3, 2008
8:30 pm

We know that advanced prostate cancer is cancer that has metastasized, and "escaped" from the capsule, but many factors enter into it. A very high PSA...
Fuller Jones
protoninfo
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May 3, 2008
9:04 pm

Fuller Thanks for the reference. Aquick question for you and only because its Saturday and I don't know which golf course my urologist is on: I've been told...
play36@...
safebett
Offline Send Email
May 3, 2008
10:12 pm
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