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proteinlosingenteropathy · Protein Losing Enteropathy
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This group is dedicated to education of, and support to, people affected by Protein Losing Enteropathy in children or adults with Congenital Heart Disease, namely those with "Fontan anatomy".  We aim to increase survival and quality of life by sharing what we've learned through speaking with our doctors, and doing our own research.
 
By joining together, we CAN find an answer to this mysterious disease!
 
Protein Losing Enteropathy Group
 
*A Sister-Group of the Hope for Children with HLHS Group*
www.hopeforhlhs.com

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2009 4 1 1
2008 2 7 1
2007 5
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