There's a Yahoo group -- PSCMOMS -- about 50 members with kids from preschool to young adult. My son was dx with PSC at age 6. He got a whole cadaver liver at...
my daughter is 6 years old got diagnosed when she was 2 with ulcerative colitis and psc. she has been doing well so far taking medication and seeing her doc...
Hi, everyone, I haven't been on here in a long time, because I have been doing pertty well, but April 23 2007, I was put in the Hospital because my stomach my...
Hi Mary Kay, I was diagnosed in 2000 and am doing very well. I take 250 x 6 per day. They started me off on 250 x 4 per day, however I was ending up in the...
Hi, my name is Mary Kay. I have been diagnosed with psc right around the time of my colectomy and j pouch surgery for high grade dysplasia in the colon on...
I maintained a positive attitude all the way through despite the disease. I modified my diet to reduce salt intake and introduced more organic foods into my...
Benjamin, why do you want to know this info? ... From: Benjamin Allen Rakozy To: primarysclerosingcholangitis@yahoogroups.com Sent: Wednesday, July 12, 2006...
... From: Benjamin Allen Rakozy To: primarysclerosingcholangitis@yahoogroups.com Sent: Wednesday, July 12, 2006 12:35 AM Subject: [Primary Sclerosing...
I'm curious to know what are some of the changes that have happened in your lives since you were diagnosised with PSC. How has it affected your social habits,...
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
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Feb 6, 2006 5:46 pm
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Hello, Diagnosis: My name is Brian Bisaillon and I am currently 24 years old at the time of writing this (June 2004). I was officially diagnosed with ...
Title: Current management of primary biliary cirrhosis and primary sclerosing cholangitis Source: Journal of Hepatology 38 (2003) S24–S37, Division of ...
My Dad has PSC. For several years he was in and out of the hospital with ERCPs and such. Since Thanksgiving, he has been nauseous. It seemed to correspond...
I am a 25 yr. old female wit PSC. I was diagnosed when I was 13, and was also diagnosed with Ulcerative Colitis. I have bouts of right upper abdominal pain,...
Hi Shahina --- Maybe someone else will offer their experiences. From observing my son, I don't think he ever completely recovered after a cholangitis bout....
Hi all, Thanks for the welcome to the group. It does feel good to have people to talk to. I was just curious after one of you have had a serious cholangitis...
Hi Carol, thanks for the the information but i know actually what psc is. I think people who has psc is different. Different scaring in the ducts are...
Very good advice Pam. This disease has no barriers when it comes to age. It must be particularly difficult for a 6 yr. old and their family. Having this...
It always seems wierd to say welcome to the group -- especially considering what the cover charge is -- but it is good that you found other people to talk to...
Hi Li Mah, exercise is a very good thing for all individuals especially those with PSC. It is good that you are doing them to keep your back strong and weight...
Hello Sannon and Everyone, I can't sleep as well at night and i have alot of back pains too. But i have found out that by doing 1/2 hour streching and little...
USA, Alabama Shannon Carol Reid <carolreid@...> wrote: Shannon, it is just me again. I was going to ask if you live in the U.S. or Canada. Thanks ... ...
Hi Carol and everyone, Yes I do agree with Carol on this "not being able to sleep" thing being related to PSC. I tend to fall asleep for 2hrs and wake up and ...
I work at a Shcool system and we get the free check up things each year and they did my bone scan and it was bad. I'm 28 and it said that i had bones of a...
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