Colleen,<br>I am anxious to get my own eye exam and have my parents tested, but we haven't done anything on it yet. I will wait to have the girls tested when...
Cynthia,<br><br> Your faith is so strong. I hope that I grow to have as such strong faith as you !!! You are really a inspiration to me. <br><br> Anyways, I...
Thanks for your kind words. From what I understand about Lisch Nodules is that they are nothing more than like cafe au lait spots on the eye - little freckly...
Colleen,<br>I could try to log on some night if we set up a time. I usually like to let my hubby have the computer in the evenings since I have it all day!...
HI again Cynthia<br><br> I guess I could get on in the morning too. I always check my mail at around 7:30 am and then Im on until about 8:00 am. Its only a ...
Hi Cynthia...<br>Wanted to post to see how you are and how are things going as far as knowing if you have NF or not?<br>Am praying all will turn out well for...
Hi Dee!<br><br>I have your letter in my REPLY TO bin and just haven't made it there yet. I really appreciated your thoughts about Timmy. We have no new news ...
Hi, I'm going to be going to an growth doctor soon for aurora she is 5 but, is the size of a 2yr 9mt old child she is only 28lbs. So that will happen on the 13...
I like the idea, but it is another of the over 25 NF clubs just on Yahoo!<br>I just finished "joining" all of the Active NF boards on Yahoo; except for the one...
Dawna,<br>I have been meaning to write to you too. I have been so busy lately! Tonight is Juliana's birthday party and she is just getting over a fever so we ...
Hi Dawna...<br>Yes, growth problems are a common finding in NF. In quite a bit of the literature out there shortness of stature is commonly listed in...
I had my hubby stay home with me on Wednesday. He never misses either, but his boss was wonderful about letting him stay with me. I have been pretty useless...
In our newpaper it was on the front page. You could tell his son was in shock. My husband even collected his cars. I hope and pray that his son will not let...
My name is Dawna Schneider and I have three kids. Me and two of my kids have nf. I did not know much about nf untill I had my daughter. She was born with a ...
Our 8-month old son has NF1. When he was born he had a large plexiform neurofibroma on the bottom of his foot (which we were told for 5 months was a "fatty...
Hi Momma of 2 ! <br><br> I know just how you feel. Although it is me that has NF. Im 34 years old and a married mother of 2 age 14 and 9. I was looking up...
Hi dawna! <br><br> I havent checked the board in sometime so sorry I didnt get to reply to your mail sooner. I know how you feel. I have Nf and didnt find out ...
Hi colleen, hope you are doing good. went to the orthepid dr. She now wants to see dexter once a year. He does not have scolossis, or just yet. he has one leg ...
Hello momma of 2. <br>My oldest son also has a large plexiform neurofibroma. but, his is in a different location than your sons What has the doctor said. Also...
Hi everyone My nameis Donna and my son and I have nf1. I am going back to social security disability court this Thursday and need your prayers for a yes ...
Hi Donna !! <br><br> You've got my prayers coming !! Glad that you could make it here ! This board has been alittle slow, maybe thats good news?? I hope and ...
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