I put in for this Advocacy Institue training in Washing Dc March 26-
31 and I won't know till I get accepted to go till Feb 15th. Will you
all just say a Prayer that the Lord will let it go his way not mine.
1.I hate flying it makes my ears hurt for days afterward
2.I get too homesick
3.I will come home to everything rearranged in kitchen.
I just want what the Lord wants for me.In a way i really and truely
want to go and then in a way I don't for the above listed reasons so
I need a peace to wait till Feb 15th so long to wait.
But soon as I get the answer I will post too.
Heidi

Merry Christmas and Happy New Year !  Hope all will have a safe
holidays this  year, staying at home or traveling.

I will be praying for you and your husband,          Mary Lee
   -----Original Message-----
   From: Heidi [mailto:furkid12@...]
   Sent: Thursday, November 20, 2003 11:53 PM
   To: prayersfornf@yahoogroups.com
   Subject: [Prayers for NF] Husband has no work at job till Dec 8th or 9th
:(


   My husband came home from work where he was only working one day a
   week and now they laid him off tilldec 8th and 9th . He hates it. nad
   they cut his hours so bad. At age 61 and with his brain damage from
   the wreck it is hard to fuind work. He cannot get on disablility we
   arllready tried. then he is being stupid with this not wanting me to
   work full time for what happpened with his first wife who divorced
   hiom in 1972. I had to give up driving for my angina and dizzy spells
   too. But I really want to get a job or have him get one. So pray for
   us I donot need this added stress with my Bp and Anginia allready
   acting up sop very bad.
   Heidi (AKA the encourager)


         Yahoo! Groups Sponsor
               ADVERTISEMENT




   To unsubscribe from this group, send an email to:
   prayersfornf-unsubscribe@yahoogroups.com



   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


[Non-text portions of this message have been removed]

My husband came home from work where he was only working one day a
week and now they laid him off tilldec 8th and 9th . He hates it. nad
they cut his hours so bad. At age 61 and with his brain damage from
the wreck it is hard to fuind work. He cannot get on disablility we
arllready tried. then he is being stupid with this not wanting me to
work full time for what happpened with his first wife who divorced
hiom in 1972. I had to give up driving for my angina and dizzy spells
too. But I really want to get a job or have him get one. So pray for
us I donot need this added stress with my Bp and Anginia allready
acting up sop very bad.
Heidi (AKA the encourager)

yes i am in there right know and freedom and other people  so i will meet u
there ok

noreen19742003 <noreen19742003@...> wrote:is anyone in chat tonight it
noreen


Yahoo! Groups Sponsor
To unsubscribe from this group, send an email to:
prayersfornf-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Do you Yahoo!?
Protect your identity with Yahoo! Mail AddressGuard

[Non-text portions of this message have been removed]

is anyone in chat tonight it noreen

It is good to see some activity. I normally check every day, but
during the last week, I have not been. I hope all here are doing well
and to wish everyone a Happy Thanksgiving. I like to thank all the
turkies who will make this season possible.

Keeping all of you in our prayers too.

Rick



---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.516 / Virus Database: 313 - Release Date: 09/01/2003

thankyou hope to talk soon noreen

seesnow99 <seesnow@...> wrote:Noreen,
Welcome to the group!  Glad you found us.

Scott,
I will keep your son Brett in my prayers.  We just got the final word
that my son is free of spinal tumors so we are grateful.

Cynthia


Yahoo! Groups SponsorADVERTISEMENT

To unsubscribe from this group, send an email to:
prayersfornf-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Want to chat instantly with your online friends? Get the FREE Yahoo!Messenger

[Non-text portions of this message have been removed]

Noreen,
Welcome to the group!  Glad you found us.

Scott,
I will keep your son Brett in my prayers.  We just got the final word
that my son is free of spinal tumors so we are grateful.

Cynthia

thankyou for getting back to me talk soon noreen

marylee starr <mlstarr@...> wrote:Noreen,
I have nf1 and enjoy emailing others,so please feel free to write me.
Mary Lee
   -----Original Message-----
   From: noreen19742003 [mailto:noreen19742003@...]
   Sent: Saturday, November 15, 2003 7:24 PM
   To: prayersfornf@yahoogroups.com
   Subject: [Prayers for NF] hi


   i am glad there is a room like this hope to talke to someone soon i
   have nf1


         Yahoo! Groups Sponsor
               ADVERTISEMENT




   To unsubscribe from this group, send an email to:
   prayersfornf-unsubscribe@yahoogroups.com



   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


[Non-text portions of this message have been removed]


Yahoo! Groups SponsorADVERTISEMENT

To unsubscribe from this group, send an email to:
prayersfornf-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Want to chat instantly with your online friends? Get the FREE Yahoo!Messenger

[Non-text portions of this message have been removed]

Noreen,
I have nf1 and enjoy emailing others,so please feel free to write me.
Mary Lee
   -----Original Message-----
   From: noreen19742003 [mailto:noreen19742003@...]
   Sent: Saturday, November 15, 2003 7:24 PM
   To: prayersfornf@yahoogroups.com
   Subject: [Prayers for NF] hi


   i am glad there is a room like this hope to talke to someone soon i
   have nf1


         Yahoo! Groups Sponsor
               ADVERTISEMENT




   To unsubscribe from this group, send an email to:
   prayersfornf-unsubscribe@yahoogroups.com



   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


[Non-text portions of this message have been removed]

i am glad there is a room like this hope to talke to someone soon i
have nf1

will be praying      Mary Lee
   -----Original Message-----
   From: scott stelly [mailto:get_a_yeh@...]
   Sent: Monday, November 03, 2003 10:42 PM
   To: prayersfornf@yahoogroups.com
   Subject: [Prayers for NF] nf


   my  son   name is brett  and he has nf1  just like me  well he has a tumor
on the inside his scull and   the tumor has grown in the las year   since
his mri   its growing around his wind pipe   and his next m r i is in 6
months so he needs all the prayers he can get,


   ---------------------------------
   Do you Yahoo!?
   The New Yahoo! Shopping - with improved product search

   [Non-text portions of this message have been removed]


         Yahoo! Groups Sponsor



   To unsubscribe from this group, send an email to:
   prayersfornf-unsubscribe@yahoogroups.com



   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


[Non-text portions of this message have been removed]

my  son   name is brett  and he has nf1  just like me  well he has a tumor on
the inside his scull and   the tumor has grown in the las year   since his mri  
its growing around his wind pipe   and his next m r i is in 6 months so he needs
all the prayers he can get,


---------------------------------
Do you Yahoo!?
The New Yahoo! Shopping - with improved product search

[Non-text portions of this message have been removed]

Will do, I'll pray for safe traveling mercy to and from the camp and no one gets
hurt and no Hurricanes. The one in the Atlantic is suppose to turn toward the
north and the opne in the gulf is suppose tio bring the West Coast of Fla. and
way inland rain. So I'll be praying for good weather too.Please let us know how
everything went.
Heidi (the encourager)

jptex00 <no_reply@yahoogroups.com> wrote:
There will be several people flying into Dallas from California, and
some driving from out of state to attend the 12th Annual NF Family
Camp. 164 people are expected to come. Please pray for safe travel,
great fellowship with one another and rain-free weekend (last wyear
we had rain from a hurricane).


Yahoo! Groups Sponsor
To unsubscribe from this group, send an email to:
prayersfornf-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


---------------------------------
Do you Yahoo!?
Yahoo! SiteBuilder - Free, easy-to-use web site design software

[Non-text portions of this message have been removed]

There will be several people flying into Dallas from California, and
some driving from out of state to attend the 12th Annual NF Family
Camp. 164 people are expected to come. Please pray for safe travel,
great fellowship with one another and rain-free weekend (last wyear
we had rain from a hurricane).

My father went Home to be with the Lord,the funeral is on Wed.Sept3.
Also pray for safety for family members traveling,we are leaving on
Tuesday.
Thanks,
Mary Lee

Mary Lee,
Thank you for your words of kindness.

Heidi,
I will be praying for you and your hubby Stanley.
Love Shawn

__________________________________
Do you Yahoo!?
Yahoo! SiteBuilder - Free, easy-to-use web site design software
http://sitebuilder.yahoo.com

Heidi,I'll be praying for you and Stanley.  Mary Lee (quieebaby)
   -----Original Message-----
   From: furkid12 [mailto:furkid12@...]
   Sent: Wednesday, August 27, 2003 3:56 PM
   To: prayersfornf@yahoogroups.com
   Subject: [Prayers for NF] prayers for stanley & me again


   We got to go see Byron our oldest ask him when and where the closing
   will be this Sat on his grandparents house. His dad signed the
   paperwork for him to sell the house with the understanding he would
   tell us when and where and the time the closing will be. He is not
   responding to any calls at home or on his cell etc.. Pluse I am
   praying about a decision the church asked us to be and my health
   tests coming up in Sept. a thiallium stress test and a holter
   monitor. I have angina and CAd but now they think it is Microvascular
   angina what ever that could be and this stress is aggraviting my
   angina major big time. So just prayers for stanley and me to deal
   with Byron tonight about where the closing will be Sat and then my
   health.
   Heidi (encourager)


         Yahoo! Groups Sponsor
               ADVERTISEMENT




   To unsubscribe from this group, send an email to:
   prayersfornf-unsubscribe@yahoogroups.com



   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


[Non-text portions of this message have been removed]

We got to go see Byron our oldest ask him when and where the closing
will be this Sat on his grandparents house. His dad signed the
paperwork for him to sell the house with the understanding he would
tell us when and where and the time the closing will be. He is not
responding to any calls at home or on his cell etc.. Pluse I am
praying about a decision the church asked us to be and my health
tests coming up in Sept. a thiallium stress test and a holter
monitor. I have angina and CAd but now they think it is Microvascular
angina what ever that could be and this stress is aggraviting my
angina major big time. So just prayers for stanley and me to deal
with Byron tonight about where the closing will be Sat and then my
health.
Heidi (encourager)

Shawn,I'll be praying for you and your family at this diffcult time. Mary
Lee
   -----Original Message-----
   From: Shawn Norris [mailto:blissnorris@...]
   Sent: Tuesday, August 26, 2003 1:20 AM
   To: prayersfornf@yahoogroups.com
   Subject: [Prayers for NF] Still here!


   Hey all,
   I only get to the group once a month but it is great knowing the list is
here. I have plans to check it once a week so please, please don't end the
list.

   So much is happening in our lives right now that I have not had much
chance to focus on my son's nf. I keep praying and putting him in the Lord's
hands that nothing is changing.

   At the moment, my mom is in the hospital with very little chance of
surviving. She has end stage lung disease and her body is shutting down. Her
lung doctor told her it will only get worse, that she isn't going home from
the hospital. She has refused all life-saving measures and tomorrow she
signs all the papers directing them to remove everything. Don't know how
long it will take. She has peripheral vascular disease along with the lung
disease and the stints they have place have collapsed and her arteries to
her legs, arms and neck have collapsed (there is only one to her neck to her
brain open). The Red Cross flew my brother in from the Navy and my other
brother drove in 16hrs. We 3 sisters live around mom.

   Please pray the Lord will keep Heath's NF on an even keel until I can
focus back on him like I ought to.
   Thanks everyone.
   Shawn Bliss.


         Yahoo! Groups Sponsor
               ADVERTISEMENT




   To unsubscribe from this group, send an email to:
   prayersfornf-unsubscribe@yahoogroups.com



   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


[Non-text portions of this message have been removed]

Hey all,
I only get to the group once a month but it is great knowing the list is here. I
have plans to check it once a week so please, please don't end the list.

So much is happening in our lives right now that I have not had much chance to
focus on my son's nf. I keep praying and putting him in the Lord's hands that
nothing is changing.

At the moment, my mom is in the hospital with very little chance of surviving.
She has end stage lung disease and her body is shutting down. Her lung doctor
told her it will only get worse, that she isn't going home from the hospital.
She has refused all life-saving measures and tomorrow she signs all the papers
directing them to remove everything. Don't know how long it will take. She has
peripheral vascular disease along with the lung disease and the stints they have
place have collapsed and her arteries to her legs, arms and neck have collapsed
(there is only one to her neck to her brain open). The Red Cross flew my brother
in from the Navy and my other brother drove in 16hrs. We 3 sisters live around
mom.

Please pray the Lord will keep Heath's NF on an even keel until I can focus back
on him like I ought to.
Thanks everyone.
Shawn Bliss.

Hello Everyone
Well it's been awhile since I wrote so warning this will
probably be long.  I've praise and thank God for this last year. The
doctor's remove two tumors and done a biopsy on one and none was
cancer.
At church last night we prayed for a family that the friend work
in our community with the church for a long time. He was diagnosis
with cancer last year and now the doctor gives him 2 weeks to live.
It was a sad time for all of us last night. Please pray for this
family.
I saw my doctor in July and everything is going better. My last
CT Scan show that the tumor on my pancreas has not grown. But
according to my stomach doctor after he did another scope down my
stomach, he said that the tumor is aggravating my stomach causing me
to have gas and some stomach pain. Since I saw my stomach doctor in
July my stomach has settle down and I had a couple of episodes where
my stomach hurt but not much. My doctor is hoping that the tumor will
not grow and he will not have to do surgery which the surgery part is
another story.
I've been to the dentist and had 6 fillings on my teeth. During
the time I was sick at my stomach alot the acid in my stomach ate at
the enamel on my teeth and cause shallow cavities which the dentist
fix with no problem. I've been having headaches after waking up in
the morning for the last two months or so and the dentist said I was
clinching my teeth. So now during the day I have to make myself not
clinch my teeth and I have a night guard which is a mouthpiece I use
at night to help with the clinching. My dentist hope that we caught
it in time so it will not effect my jaw no more then it has. Because
when I eat most of the time it pops.
I think the Lord for answering a prayer. Last month I received
100% disability from the VA. This means enough money to cover my
doctor bills what the insurance will not pay. My husband has been
sick so if he don't work this extra money will cover his income and
so we will not get behind in our bills. With the back pay money we
were able to buy my son a truck it's a 1989 but it only had 38,000
miles on it. An older guy drove it and had a fender bender. My dh
cousin end up with it and he fix it up and done a paint job and we
got a good price for it. We are building on our house and my youngest
ds will have a new bedroom. I will get a kitchen, dining room and a
new bedroom. So God is good.
My oldest ds started school this week and my youngest doesn't
start until next week. My youngest goes to a private school. We had
probllems with the public school so he change schools 2 years ago and
now is doing great.
I'm hoping now since we found the problem of my headaches I can
start cleaning my house, clean my office and start doing some
scrapbooking. I won't to do a scrapbook for my mil for Christmas but
she thinks I'm doing it for my husband when I went to her house to
get pictures.
Well I guess that's enough I better go and get some work done.
Have a good day and God Bless.
Robin

to all the new people!!!;)  Feel free to invite others to join if you
like.

Cynthia

This will be a great site for all of us Thanks for inviting me to
join.
Heidi

Sesnow,
This is a great idea! Thanks for inviting me to join.

Everyone,
My dad most likely had a stroke last evening so please keep my parents
in your prayers.

Cynthia

Timmy's mom,
prayers are on the way from washington.
Mark

No spinal tumors - just lymph nodes in his neck.  He has 2 bright
spots - one more than we knew about last year.  They did say that
there were "extensive chronic changes" in his sinuses so we are being
referred to an ENT for that.  All in all, a very positive report for
my little guy! WOOHOO and praise God!;)

Cynthia