I put in for this Advocacy Institue training in Washing Dc March 26- 31 and I won't know till I get accepted to go till Feb 15th. Will you all just say a...
I have a echocardiogram schedualed for 9:30 tomorrow A.M. Thursday 2:30 a Meeting with the Lady that runs the city's Community Cardiovascular Health Program ...
Heidi,I'll be praying. Mary Lee ... From: Heidi [mailto:furkid12@...] Sent: Tuesday, January 13, 2004 4:15 PM To: prayersfornf@yahoogroups.com Subject:...
My echocardiogram went so-so he told me .He has to have the head cardiologist look at it.Then he sent me up an Appt for a MRI/Chest X- ray to see if I hav any...
Evidently I haven't been getting these messages for a few months. I thought I had changed it, but they were still being sent to my old address that is now...
I have been having severe pain in my right arm again.I see the neurologist on Monday.I've been on Neurotion,so I increased it myself to get some relef,it...
wil be praying for you Mary Lee. Heidi Mary Lee Starr <mlstarr@...> wrote: I have been having severe pain in my right arm again.I see the neurologist...
http://www.schneeway.info/nf_pa_picnic.htm Above is the link for information about the 2004 picnic which is scheduled for June 26th. All are invited...
To all, Our resident spammer has been banned and deleted. Sorry for the inconvenience. The PA picnic plans are coming along well. We have people from 4 ...
HI ALL MY NAME IS LISA BOLE I AM THE ONLY ONE IN MY FAMLIY STILL LIVE WITH NF. SINCE THEY START THIS CHAT ROOMS MY HEATHY HAVE START GOING DOWN WHERE I CAN...
Hi Lisa! I haven't hung out in the chat rooms in ages. I mainly post on the NNFF BBoard. I like it that way because I can go back and read whenever I have...
Hello, prayersfornf member. This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best interest rates...
Hi, New member here - was diagnosed with NF at 16. This sounds like a great club. :) Always good to find support from other people with NF. Anyone from...
Hello, all. I rarely post, but I always say a prayer when a new message comes up. We had my 6 year old's eye appointment (annual) yesterday. We were sure she...
Sorry to hear that your children are having problems. Its harder to see someone you love suffer or know they may have to, than to go through it ourselves, I...
Hi all, went to loads of doctors to find out why I ws having so much back pain and joint pain. Found out it wasn't anything like rhuematoid arthritis or...
Littleloud, Did you ever have an operation? How are things going? Everyone, Sorry about the spam lately. I am zapping the messages and the authors as soon as...
Hello, I found that the tumor pressing on my spine is quite large, and filling up much of my spinal cord. BUT, if I do surgury, the nerve that is affected by...
Hello, all-- I haven't posted here in ages, but I do read the stuff that comes through; you are all in my thoughts & prayers. My request is for prayers for my...
will be praying for you and Genna (quieebaby) Mary Lee ... From: dkacams [mailto:no_reply@yahoogroups.com] Sent: Sunday, December 19, 2004 12:48 AM To:...
hi all how many are going though not know what to take now all 3 of the medcid i was taking for the pain . like voxx and two other i can not take any more.I...
Lisa, this is cathy from the nf camp o rode in the car with you, I know that you can make it i am on oxeycotton and that seams to help but you just have to...
Lisa,I take gabapentin &amitriptyline together and these have worked well for me.When my neurologist closed his office and I saw a new doctor and he took me...