thanks for the prayers Seesnow and Sondra, I will
also keep Timmy in mine for his eye appointment.Sondra
the ones I am having removed are very bothersome. one
is on my face the rest are in areas where clothes
and shoes rub and cause problems.

Addie<br>How do you know which neurofibromas to
have removed and which not to? I'll be keeping you in
prayer. On Friday I had what I believe to be a
neurofibroma removed (waiting on tests results) it was really
deep. It was the first surgery I had and not very fun.
I had to have external and internal stiches. I am
feeling much better today--but still
sore.<br><br>Sondra<br>Sondra

Addie,<br>I will be glad to keep you in my
prayers! That's the same day we take my Timmy to the
opthamologist so I will be sure to remember you on that
day!<br><br>Colleen,<br>Oh no! I have heard that is awful painful. How long
do they think it will take to pass anyway? I will
continue to keep you in my prayers!<br><br>Cynthia

Hi everyone I am having about 8-10 neurofibromas
removed on wednesday the 10. I am really neurvous because
some of the ones I have had removed in the past have
been really deep. I need some prayers that they arent
too deep and I can be relaxed thanks

AJtm,<br><br> Im praying that your surgery goes
by fast and that you have little pain. I hope it
solves your problems !!! My mom had a hysterectomy years
ago and she said she felt so much better after !! Let
us know how it goes !! <br>take care<br>colleen

still sitting around and causing me pain. Im
drinking alot of water but its not passing like its
supposed to. I dread when it does pass though. Its worse
than having a baby if you can believe it !! Thanks for
asking Cynthia !! Please keep praying . I think I have a
kidney infection now too. :-(

Ok guys I will need prayer on the 19th as I am
going to have surgery.It is a hysterectomy and after
all the problems I am having I am really looking
forward to it.Just keep me and the 2 doctors in your
prayers Thank you AJtm

So how is the kidney stone???<br><br>Cynthia

I actually stayed awake to ring the new year in
last night. We woke the girls up at 11:45 and my
oldest was very excited. My four year old was just happy
to get cookies and juice! LOL! I pray you all have
the best year ever!<br>Cynthia

So sorry to hear about your kidney stone!  I will definitely keep you in my
prayers!<br><br>Cynthia

HI all !! <br><br> I need prayers fast !!!
Fortunately, not due to my Nf but Im suffering from a kidney
stone on my right kidney. Its moving around and causing
some pain. I have had about 5 other stones in the past
and they are not fun. Worse than having a baby !! I
could use some prayers that it either passes with
little pain or that they do soundwave surgery to blast
it to pieces. Im also praying for little pain and
little time recovering. Last time I had a hard time with
it and it took two weeks to feel better. Anyways , I
could use all the prayers I can get . Thank you !
<br>colleen

Jeannean,<br>Thanks! It's so nice to put a face
to your name. I don't know why I had you pictured
much older in my head!!! For heaven's sake - you are
my age! I will 35 in June! Anyone else have pictures
to post? I love seeing the pics of people! I will
have to get some posted after the holidays. Take
care.<br>Cynthia

Hey guys.....I have put in my pic so you all can see me.I sit at this computer
for 3 weeks and the 2 weeks my hubby is off work I am on the other one.Hope I
don't scare you lol ! Jeannean

Hi I'm Dona and I'm 41 (nearly) I have NF1 as
does my oldest son. My NF is getting worse all the
time and I am so glad we all have a place we can come
as christians to pray and have God give yus the
comfort we need. To many times people do not understand
the pain we must endure but God does and I know that
prayers can work. Thanks so much for giving us a place to
come. God Bless you and I do pray for Timmy!!!

Dear Sondra,<br> I just had a lump removed from
the right side of my neck it was not a neurofibroma
he called it a scwnomia if I spelled it right. I
wish you the very best. I have alot of numbness in my
left ear lobe and some going down my shoulder I pray
that you have none of this,its a terrible feling not
to be able to feel your ear.<br> Youcan e-mail me if
you like. Dona

Sondra,<br>You are welcome and let us know how your operation goes.  You will be
in my prayers of course!:)<br><br>Timmy's Mom:D

Thanks for starting up this page. The power of
prayer is great. I am having a small lump removed from
the side on my neck on 1/5/02.My doctor thinks it's a
neurofibroma, but I am not as certain. It seems different from
the other ones I have.<br>Sondra

Hi Cynthia,<br><br> Im saying a prayer for Timmy
. I hope its nothing at all !!! Please let us know
how it turns out. <br><br> I hope you and your family
have a wonderful Christmas and a happy New Year. I
probably will be busy the next few days and wont beable to
get on line as much as I would like. Take care and
Ill be thinking of your family this holiday season.
<br>Colleen

Hi Cynthia and best wishes for your prayer club...<br>Also, wishing you a very
Merry Christmas and a  Happy and Healthy New Year.<br>Take Care...and a big hug
to Timmy...Dee

Hi Cynthia,<br>A prayer or two can't hurt, anyway.<br>Consider it done.<br>Mark

Hi everyone! Timmy's opthamology visit is set for
January 10th to see if he has a wandering eye. Our
neurologist had told us last year that it could be the sign
of an optic glioma. We aren't overly concerned
because both of my girls had the wandering eye too, but
the concern is still there.<br><br>Cynthia

I will certainly keep you in my prayers and you
can pray for me too. I am sick and home from church
this morning. I was going to finish up shopping this
weekend and I have just been drained so I wrapped a few
presents, but didn't accomplish near what I wanted to this
weekend! <br><br>The club should pretty much take care of
itself, so don't worry about anything. I hope you feel
better soon!:)<br><br>Cynthia

Thanks Cynthia <br><br> Just let me know if you
need me to do anything. Im alittle bit of a space case
when it comes to these things, but I will learn ! I
probably wont be on too much during the next week or so ,
but I will be sure to check in . Please e-mail me if
you need anything. Just incase I dont check this
board. I also would like to post a prayer request. I am
having some problems with my back. It always starts in
the winter weather. It aches terribly and I feel like
I cant straighten it because it is so stiff.
Sleeping is difficult. It may be just the stress of the
holidays combined with cold ( very cold ) weather here in
Chicago ! Not to mention the more than 17 inches of snow
that has fallen over the past week and a half!! But I
would like it to go away !! :-) <br>Thanks <br>colleen

There - you are officially the Co-founder now!
Congratulations! The "Administrator Tools" will be on the left
hand side right above the "Member Tools". We can
change color settings, post a club picture, edit
members, and send group e-mails, etc. I tried to get
Christmas colors for this month, but couldn't get a good
red. My husband will be able to help me get a good
Christmas red later!!!<br><br>Cynthia

Yes, If you would like to list me as a co-founder
you can. How will I beable to help when you are away
? Im a little challanged when It comes to learning
this stuff ;-) . Must be my Nf ! I will do whatever I
can. You will just have to teach me. I tend not to
catch on to things very quickly , but I will try my
best.

Hi Cynthia,<br>I'm Mark, not married, and no kids. My NF is fairly mild. I hope
lots of people find comfort here. A little prayer can't hurt, and can sometimes
make all the difference.

Welcome and please introduce yourself.<br><br>A
little about myself:<br>My name is Cynthia and I am
happily married and we have three wonderful children -
two girls and a boy. Timmy, my youngest, is the one
that we believe has NF1 due to a spontaneous
mutation.<br><br>Cynthia

May I please list you as co-founder then? That
way if I am away, you can take care of things from
your end too!<br><br>I need prayers that my tree will
last through Christmas! LOL! Timmy is stripping off
the tinsel as I type!<br><br>I too believe that
research is finding out new and exciting information every
day. God is faithful!<br><br>Cynthia

This is wonderful Cynthia<br><br><br> I would
just like to pray that this site is successful and
that it meets the needs of people that visit it. I
also want to say a prayer and be in agreement that a
cure or effective treatment is coming soon !! I feel
really positive about this !! Good things are coming !
<br><br>Colleen

Welcome to the Yahoo! Message Board for Prayers for NF