Sorry to hear that your children are having problems. Its harder to
see someone you love suffer or know they may have to, than to go
through it ourselves, I think. Having NF myself, that's something
that I pray often -- that my children (should God bless me with them)
will be spared.

But I don't know what God's plans are -- sometimes we don't understand
why things happen to us, or why God allows it. I guess that's where
faith comes in, and where you trust God to work it out there. My
heart aches for you, because no one wants to see their children
suffer.

I don't know why God allowed me or anyone else to be born with NF --
I'm not totally overjoyed that I have NF, but... it has shaped me. I
think I learned alot about life through having to deal with this -- in
all areas. How I treat others, what I consider valuable in a person,
and how to deal with difficulties and pain and frusterations. And
alot about faith and trusting God.

So while we can't always understand God, He is watching out for us,and
he does love us, and he is watching over you and your babies -- and he
loves you and them all very much, and he always hears your prayers. :)

Will keep you in my thoughts and prayers. Please let us know how
things go.

take care,

nora
--- In prayersfornf@yahoogroups.com, dkacams <no_reply@y...> wrote:
> Hello, all. I rarely post, but I always say a prayer when a new
> message comes up.
>
> We had my 6 year old's eye appointment (annual) yesterday. We were
> sure she needed glasses, based on how she wasn't seeing things.
> Apparently she's not nearsighted (I wear glasses, half my family
does
> too), and with her NF history the doctor was concerned. Now we have
> to set up an MRI to find out what's wrong with her perception past a
> certain point on the visual test. I think too that my 2 year old
> might have NF as well; spots are just beginning to show (my husband
> has NF, so we already meet one of the diagnostic criteria). I am
> trying not to completely freak out.
>
> We've been blessed for so long to be spared the worst parts of NF;
> please pray that my little girl is ok. I'm supposed to go away with
> my husband today for the first time in a bazillion years, but now
> this is hanging over my head.....anyway, thank you all for being
> here. It's so hard to find people who really understand what this
is
> all about. Any prayers are appreciated.