Hello, all. I rarely post, but I always say a prayer when a new
message comes up.
We had my 6 year old's eye appointment (annual) yesterday. We were
sure she needed glasses, based on how she wasn't seeing things.
Apparently she's not nearsighted (I wear glasses, half my family does
too), and with her NF history the doctor was concerned. Now we have
to set up an MRI to find out what's wrong with her perception past a
certain point on the visual test. I think too that my 2 year old
might have NF as well; spots are just beginning to show (my husband
has NF, so we already meet one of the diagnostic criteria). I am
trying not to completely freak out.
We've been blessed for so long to be spared the worst parts of NF;
please pray that my little girl is ok. I'm supposed to go away with
my husband today for the first time in a bazillion years, but now
this is hanging over my head.....anyway, thank you all for being
here. It's so hard to find people who really understand what this is
all about. Any prayers are appreciated.