Dear Shar~ Sorry I just found your post to me. Out of unusual circumstances, my
husband finally DID hear from someone else the "realities" of PPS. We went to
buy new batteries for my electric power chair. I am able to walk a few steps so
was UP on my feet "looking fine". The man that was assembling a new power chair
commented he was amazed "I was still walking". He said in front of my husband
that he did not have one post polio syndrome customer that was still able to
walk. He asked me how old I was & when I told him he was really shocked. I read
EVERYTHiNG & regardless of even what my physician SON says, I know better than
to have been "toning up & exercising" at a gym. Just this morning I fell again
landing right on my replaced knee. My broken leg IS healing AND the hot dagger
shooting pain at the broken point has let up, so I am very thankful that sharp
pain has subsided. I feel weakness in that leg, but it IS my polio side leg
after all. So now, my husband can not be denial of what I have tried to tell
him. I am not giving up or giving in but I AM realistic.
I also have grandchildren, but my daughter disappeared with her son when he was
a baby. He would be 4 1/2 now. My son lives 2,000 miles away, so I am a grandma
in pictures only. Even that long ago, my daughter's baby son was way too much
for me to ever care for by myself. I would not even try to lift him or carry
him. I would sit on the sofa & have her bring him to me to hold. The couple of
times we had my baby grandson my husband was the one that lifted him & did what
I could not. My grandchildren are ages are now 3,4 & 5.
I wanted to tell all the group that I did have a bone density test of both of my
legs, & I am very blessed that for my age my density is 100% excellent. So polio
did not affect the stability & quality of my bones. That is a huge relief & am
thankful to know that.
Hope more of us keep in touch. Marcia