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Re: Digest Number 524   Message List  
Reply | Forward Message #1258 of 1268 |
Re: [postpoliosyndrome] Digest Number 524

Hi Marcia.
My family has dealt with the PPS fairly well, all things considered.  Just took a while to get everyone on board. I'm not married any longer, but, he never had a problem accepting it. Of course, he never talked a lot about it.  I know he would be telling me WHY I shouldn't have fallen, before I was even off the floor.  Who gives a fig at that point!  I just wanted to get past the pain, and not be lectured.  After I broke my leg so bad I had to be in a wheel chair.  After the cast was off I 'd still sit in the chair once in a while if I felt weak.  My middle son definitely had a problem with that.  It took him a long time to accept I was getting weaker.  He was afraid I was not really trying, and giving up. "You have to try, Mom". Well, I WAS trying, and I never give up, but, have had to accept reality.   I fell at the stove last September, when my knee gave out, on my good leg, and pulled the pot of boiling pasta and water, with olive oil in it down on top of me...it was bad.  I was lucky that my oldest son was here to get me up and to the ER. It could have been worse, but, only got on the lower part of my body.  However, my 18 month old grandson was here.  He had just toddled out of the kitchen when it happened, for which I shall be forever grateful.  I told all my sons I can no longer watch their babies if I am here alone.  I can't have them hurt, or me be hurt and unable to get help, so they would have no one to care for them.  Or what could potentially happen if they were too close when I fall. I think they all realize  now that their mother just can't do all the things she once could. I have 7 steps to go up to get to the front door, so, right now, I'd have to say getting groceries into the house is one of the hardest things I do. That, and taking the trash can to the street. I sure could use help then!  If my neighbor sees me, she always comes over and grabs  my grocery bags, and I am very grateful for that.  Anyway...I seem to be rambling.  I hope your family comes to terms soon. I know how frustrating it can be.  Maybe you could go online and get all the info you can on PPS and send it to your husband, or print it out, and leave it where he can find it? You could underline all the things that pertain to you. Have you checked to see if there is a support group in your area?  Just as I joined one, we moved, and there isn't one here.  It's really nice to have someone who's been there, done that, to talk to.  or compare notes with.  Wish we could all get together, but, I realize we are very scattered.  Take care.  I have to go watch the snow falling in South Alabama(Dothan)-a very rare occurrence here.
Your 4ever friend,
~Shar~
In a message dated 2/27/2009 2:48:04 A.M. Central Standard Time, mrcrew@... writes:

Thank you both for answering me. I would like to know how your families treat you?  My husband is in denial & feels I should not accept that the time very well may come I am in a wheel or power chair in a regular basis.  He will not read any of my post polio information, so he does not "think" with informed knowledge.  I belonged to a PPS Support group & almost every one I knew in the group ended up in a wheelchair of some sort. We have talked about moving & I realize I need to build with my coming & present needs considered.  He gets so upset & I don't NEED his lack of  believing, understanding or support.  It is hard enough to deal with daily let alone feel like I am the only one that feels like I do.

Thanks, Marcia Crew



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Date: 27 Feb 2009 00:19:00 -0000
From: postpoliosyndrome@yahoogroups.com
To: postpoliosyndrome@yahoogroups.com
Subject: [postpoliosyndrome] Digest Number 524
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Messages In This Digest (2 Messages)

1a.
Re: Greetings to everyone! From: GCarr85446@...
1b.
Re: Greetings to everyone! From: sweetalgrl@...

Messages

1a.

Re: Greetings to everyone!

Posted by: "GCarr85446@..." GCarr85446@...   ianalex15

Wed Feb 25, 2009 11:37 am (PST)

Mr.Crew- I am older than you by some 14 years and confined to a wheelchair.
Just passed my 26,510 day
with polio. Keeping track of it is good for me! Long ago gave up
remembering when I could swim a mile, fly a glider and other good things. Recently
came by a line from Alfred Lord Tennyson that I'm going to have inscribed on my
tombstone: TO STRIVE, TO SEEK, TO FIND, AND NOT TO YIELD! Hang in there
friend
glad to chat with you anytime via e-mail.
Gerry Carroll
Polio 1935
**************Get a jump start on your taxes. Find a tax professional in your
neighborhood today.
(
http://yellowpages.aol.com/search?query=Tax+Return+Preparation+%26+Filing&ncid=emlcntusyelp00000004)
1b.

Re: Greetings to everyone!

Posted by: "sweetalgrl@..." sweetalgrl@...   sweetalgrl

Wed Feb 25, 2009 12:15 pm (PST)

Gerry, and Mr. Crew, and all....
*Hello, Gerry. I never thought about counting...wow! I got it when I was
almost 8, and I'm 58( June of '58) , so you do the math for me, lol.
*Mr. Crew...my knee is ready for full replacement, too, as the ligament is
shot, from so many falls, bone to bone, and arthritis(in both) and that was my
so-called 'good' leg. The dr is itching to replace it, yet, other doctors
in the past, who dealt with polio patients, have always said full recovery
after surgery of any kind on the legs involved cannot be expected. And
complications were common. You have confirmed that. When I broke my 'bad' leg in 3
places, they opted not to do the surgery then and kept me in a full leg cast
for over 4 months. Think I will keep trying those gel injections, as painful
as they are(next step after steroid shots). I can still walk, these days
it's slowly and carefully, with a cane and my knee brace, tho, I do have a
regular wheelchair and an electric one that just sits, gathering dust, as I have
no ramp to get it out! The cat loves it, though, lol. Anyway, I digress.
This morning my neighbor came over to dig holes for my 4 new cedar trees ,
as I can't keep my balance for that. What's harder for me than losing the
ability to do what I once did is accepting help. I hear tell many of us who
had polio have that same affliction. but, I'm working on it.
*Gerry...my motto, and what I tell my family will be on my tombstone, is an
early to mid 90's song...it goes...."I get knocked down, but I get up again,
no they're never gonna keep me down!" Seems the writer knew me and my
penchant for eating the floor. It's wonderful we have a place to share our
thoughts. Wish I could meet you all.
*Jack, I do hope things are beginning to look up for you and your wife.
That new grand baby should help cheer you up. Good luck, dear.
Your 4ever friend,
~Shar~(Sharon-seems to be a lot of them online so I use Shar to make it less
complicated)


In a message dated 2/25/2009 1:37:55 P.M. Central Standard Time,
GCarr85446@aol.com writes:

Mr.Crew- I am older than you by some 14 years and confined to a wheelchair.
Just passed my 26,510 day
with polio. Keeping track of it is good for me! Long ago gave up
remembering when I could swim a mile, fly a glider and other good things. Recently
came by a line from Alfred Lord Tennyson that I'm going to have inscribed on my
tombstone: TO STRIVE, TO SEEK, TO FIND, AND NOT TO YIELD! Hang in there
friend
glad to chat with you anytime via e-mail.
Gerry Carroll
Polio 1935

____________________________________
Get a jump start on your taxes. _Find a tax professional in your neighborhood
today_
(
http://yellowpages.aol.com/search?query=Tax+Return+Preparation+&+Filing&ncid=emlcntusyelp00000004) .

**************A Good Credit Score is 700 or Above. See yours in just 2 easy
steps!
(
http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID
%3D62%26bcd%3DfebemailfooterNO62)
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Sun Mar 1, 2009 9:49 pm

sweetalgrl
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Message #1258 of 1268 |
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Thank you both for answering me. I would like to know how your families treat you?  My husband is in denial & feels I should not accept that the time very...
mrcrew@...
yegan00
Offline Send Email
Feb 27, 2009
8:47 am

Dear Marcia, You are a very important person and I know that having the stress of a spouse that is not sensitive to your condition is totally frustrating to...
jauntyjulie@...
jauntyjulie
Online Now Send Email
Feb 27, 2009
12:40 pm

Hi Marcia. My family has dealt with the PPS fairly well, all things considered. Just took a while to get everyone on board. I'm not married any longer, but,...
sweetalgrl@...
sweetalgrl
Offline Send Email
Mar 1, 2009
9:49 pm

Dear Shar~ Sorry I just found your post to me. Out of unusual circumstances, my husband finally DID hear from someone else the "realities" of PPS. We went to...
Marcia R. Crew-Yegan
yegan00
Offline Send Email
Mar 25, 2009
3:42 am
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