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greetings pam and jim and others,
my prince charming has pps and lives wyth many of it's more charming effects. one being the inability to sleep, or to sleep well. one problem is restless legs syndrome. his legs and sometymes even his arms will twitch, itch, jerk, wiggle, shock, tingle..just generally be a dreadful pain. he takes sinemet and mirapex to help control the movements. one of the biggest causes ( if they really knew what causes rls), is caffeine. that will make him almost a whirling top. it also increases his pain. caffeine is a big no-no.
there are some pp doctors that believe that as your already destroyed nerves and synapses break down even more that you begin to experience what my husband describes as a "shock". he relates it to touching a live wire. there is a medication that is being tried to attempt to control the shocks. the biggest advice he gets is to PACE himself and not drain what little reserves he has. he is still working on learning that pace thing.
husband is also on a cpap machine which has helped greatly. wythout it he would wake up tired and cranky. he would not feel rested at all. the cpap gives him anough oxygen so that his body is able to rest more peacefully. stress is truly a big no no. hope you both continue to do well. best to all.
pamela
pamela bomeisl <snowflake999@...> wrote:
pamela bomeisl <snowflake999@...> wrote:
hi jim, ive been meaning to get back to you, i have the same problem, along
with the fituge and stress, im going to conciling where it does help, they
have me on trazadone and klonapin for sleep, it does help some also im on
efflexor, because it helps me grasp what has been going on with me lately,
exspecially with all the ankle problems ive been having. If you want to
email me sometime, ive got alot of other interesting things that my therpist
helps me with. Sorry for the spelling, having a bad day. your friend as
always, pami
>From: "jdub7344" <jim@...>
>Reply-To: poliosurvivors@yahoogroups.com
>To: poliosurvivors@yahoogroups.com
>Subject: [poliosurvivors] sleep disorder
>Date: Sat, 07 Feb 2004 22:36:36 -0000
>
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> ATTACHMENT part 2 message/rfc822
To: poliosurvivors@yahoogroups.com
From: "jdub7344"
Date: Sat, 07 Feb 2004 22:36:36 -0000
Subject: [poliosurvivors] sleep disorder
I read somewhere that polio survivors typically have trouble with
stress - which at times translates into sleeping problems.
Does anyone have any suggestions on how to deal with this, beyond
such things as listening to relaxation music and taking a warm bath?
Have tried antihistamines and they seem to help somewhat. Muscle
relaxants seem to help more. The problem seems to be in the inability
to relax. Having a couple of beers feels great.....but who wants to
become an alcoholic?
Any ideas?
Jim
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