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I'm confused   Message List  
Reply | Forward Message #9862 of 19007 |
Re: I'm confused

Hi Jenny

Reading accounts of PD symptoms and medication side effects on this
board has helped me get a handle on my own PD and on my reactions to
medication. I'm glad you weighed in on this topic. Your comments are
right on.

KenA

--- In plwp2@yahoogroups.com, "Jenny Webster" <jenny_picaso@...> wrote:
>
> Hello Lillian, The reason people from this group are willing and
freely giving their advice is because they have already experienced
what you are going through with this. You must take all advice and
think it over run it by your doctor and then make your own decision. I
would like you to know that the best, yes, "even the specialists" make
mistakes or misjudgments because everyone's P.D. is so different.
After you have played this sick P.D. game for a number of years you
will be going to your doctor telling them what you need and you will
find they will work with you. Now you are green and it is your
learning time. I am still green and in my learning time, I still tell
my doctor how I feel and what I have been told is a good alternative
to the med I am on. A very nice group this is and when I first joined
many members told me this is your disease, you take the reigns and
make decisions after studying, asking questions and listening to your
doctor. When you are more comfortable with the different meds and
their exact functions you will be more comfortable to question your
doctors. Be patient with yourself, it all takes time and there is a
huge learning curve as new meds and treatments keep popping up. Good
luck, we are all behind you and on your side trying to help you as
others helped us when we were new too. Together we make a difference.
> ----- Original Message -----
> From: BirdsEtc@...
> To: plwp2@yahoogroups.com
> Sent: Sunday, July 02, 2006 7:31 AM
> Subject: Re: [PLWP2] Re: I'm confused
>
>
>
> As a very new member of this group, I may well be putting my foot
in my mouth when I ask this question. But when you have such serious
question about your medications, dosages, when and how to take them,
shouldn't you be asking these of your doctor? Why in the world do you
pay big money to these people for their expertise, and then turn to a
list full of people whom you've never met, and trust their judgement
over your doctor? And more to the point, why would any of you wish to
take it on yourself to advise another person on how, what, when and
where to take their medication? This whole thing sounds very
irresponsible to me, and I can hardly believe what I'm reading!
>
> And Life Goes On ...
> Lillian, BirdsEtc@...
> Tampa, Fl
>








Mon Jul 3, 2006 5:04 am

kenalo75354
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Forward
Message #9862 of 19007 |
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Hi - I've posted before and you all were very helpful. I feel kind of foolish and think you might find this a silly question. I'm taking .25 of Mirapex at...
starlite273
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Jul 1, 2006
3:40 am

Hi Jerri You will have to experiment. I take 25/100 twice a day -- one in the morning and one mid afternoon. I find the second one kicks in faster and lasts...
kenalo75354
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Jul 1, 2006
5:01 am

Thanx for your reply, Ken. What do I do about the Mirapex? I'm taking one at bedtime. Do I increase that too and if so do I take the Mirapex and Sinemet ...
Jerri browning
starlite273
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Jul 1, 2006
5:44 pm

jerri; I take my mirapex with my simemet three day a day so I guess if you take an extra sinemet you take the mirapex with it. I am not sure about when to...
Marsha Lance
mlance1946
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Jul 1, 2006
7:30 pm

Hi Jerri I take 0.5 mg Mirapex three times a day -- twice with 25/100 and once by itself before bed. PD medication comes back one way or another to dopamine,...
kenalo75354
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Jul 2, 2006
5:47 am

You forgot to ask the neuro so you will ask the guys "here" instead..... Come on guys ....... (and don't give me that "I know my body" stuff, because most of...
bronis60
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Jul 2, 2006
1:46 pm

Dear Ken et al What I said was so long ago - I have almost forgotten and the thread has taken on a life of its own... so I will continue and I hope I clarify ...
bronis60
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Jul 10, 2006
11:18 am

As a very new member of this group, I may well be putting my foot in my mouth when I ask this question. But when you have such serious question about your...
BirdsEtc@...
birdsetc2001
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Jul 2, 2006
2:31 pm

Sorry, didn't mean to cause an uproar. I did speak to my neuro about additional meds and her nurse told me what to take but I neglected to ask her how and...
Jerri browning
starlite273
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Jul 2, 2006
4:11 pm

jerri, Don't be concerned at all. We all share what has worked for us and then you need to decide what to do. We are just giving you options to concider....
Marsha Lance
mlance1946
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Jul 3, 2006
12:34 pm

you may not like what your about to hear,but yyour gonna find that these doctors your putting so much faith in know very little about what you are going to go...
john middaugh
iggy_o5000
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Jul 3, 2006
3:08 am

There are so many messages that i've not yet read after this one, that I probably should wait to comment until I have read others' responses. HOWEVER,...
gloria sanchez
sancglo
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Jul 5, 2006
3:03 pm

I am sure you will get many great answers to your questions. I will share with you my own opinion. I believe you should stay on the schedule your doctor put...
Jenny Webster
jenny_picaso
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Jul 2, 2006
8:01 pm

Hello Lillian, The reason people from this group are willing and freely giving their advice is because they have already experienced what you are going through...
Jenny Webster
jenny_picaso
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Jul 2, 2006
8:01 pm

Hi Jenny Reading accounts of PD symptoms and medication side effects on this board has helped me get a handle on my own PD and on my reactions to medication....
kenalo75354
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Jul 3, 2006
5:11 am

Gloria, you are not an idiot this P.D. business takes a long time to get. There are just too many things to take into consideration. You will get more used to...
Jenny Webster
jenny_picaso
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Jul 5, 2006
7:19 pm

Hi All. I want to take this opportunity to thank all of you for answering me and for all your help and to Ken who helped me understand the medications the...
Jerri browning
starlite273
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Jul 8, 2006
3:14 am

Thanks Jerri This has been a long and interesting thread. After you asked, Marsha and I responded, Bron and Lillian doubted the propriety of it all. Which...
kenalo75354
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Jul 8, 2006
5:44 am

Boy thats the truth! kenalo75354 <kenalo75354@...> wrote: Thanks Jerri This has been a long and interesting thread. After you asked, Marsha and I...
Marsha Lance
mlance1946
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Jul 8, 2006
4:01 pm

To Ken et al, What I said was so long ago - I have almost forgotten and the thread has taken on a life of its own... so I will follow that path... which is to ...
bronis60
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Jul 10, 2006
4:52 pm

Hi Bron I agree with your five points. I would only add that consulting other people with PD gives me more things to discuss with my neuro rather than causing...
kenalo75354
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Jul 11, 2006
5:30 am

Marsha, I apologize. I didn't see your post until just now and want to personally thank you too. We are all adults and should be able to draw our own ...
Jerri browning
starlite273
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Jul 8, 2006
6:43 pm

There was quite a few messages sent to me via private e-mail that agreed with me, as well as a few who did not, and who wished to be argumentative. I thanked...
BirdsEtc@...
birdsetc2001
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Jul 8, 2006
3:51 pm

Hi, I have Parkinson, I was dx a year ago. One month before that my father died. He had Parkinson and the dementia that seems to happen with it so often. I...
Marsha Lance
mlance1946
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Jul 8, 2006
4:44 pm

While I don't 'play with my meds' based on posts from this or other lists, I do take ideas and suggestions back to my PD doctor and run them by him. So from...
Norm Cohen
ncohen6969
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Jul 9, 2006
2:45 pm

While I don't 'play with my meds' based on posts from this or other lists, I do take ideas and suggestions back to my PD doctor and run them by him. So from...
Norm Cohen
ncohen6969
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Jul 9, 2006
3:12 pm

Hi Lillian Sorry to hear about your husband. I had an aunt and an uncle who had dementia and it seems to me that it is a whole order of magnitude worse than PD...
kenalo75354
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Jul 9, 2006
4:00 pm

I am glad finding this group has helped you, I feel the same way. This is a unique group of some of the kindest most caring people I have ever met. Everyone...
Jenny Webster
jenny_picaso
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Jul 8, 2006
6:13 pm

To all who admitted to confusion I have been thinking about what has been said and I realised that some of you do not know what actual drugs you are taking and...
bronis60
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Jul 11, 2006
1:59 pm
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