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HARD TIME WALKING   Message List  
Reply | Forward Message #16583 of 19006 |
Re: [PLWP2] pain and long term parkinsons disease

Hi Jenny, 
 
I have to tell you that your post to PLWP has greatly saddened me. 
 
I realize that you have put up with PD and many of its symptoms for a very long time, but,
SUICIDE IS NOT AN OPTION!  EVER! 
 
re: the pain med pump ...... that is a viable option for pain relief.  I have a close friend who lives in Pontiac, MI and his wife has terrible pains caused by Lupus.  She had a pump implanted several years ago and has proved most beneficial to her.
 
re: your husband .... you mentioned that "he left".  Did you mean that you two are separated, or he just leaves when your pain becomes unbearable?  In any case, IMHO,  that's a poor excuse for a man to leave his wife ... when she needs him the most! 
 
re: the pain/s associated with PD are most often caused by PD associated dystonia.  If that is the case,  have you tried pressure point massage?    Also known as Shiatsu, this has proved to be quite beneficial for me.  An "alternative" treatment that I use in conjunction with my "Western" based medicines and treatments.  
 
I know I've said this to you, and others, many times in the past, but my prayers are with you,  always!
 
Hang in there sweety.  As a long time PWP myself (31 + years and counting) I hear what you are saying ... I "feel" your pain and frustration, and I know full well what you are going through you.  I also know that in a lot of cases words, just words, are no more important than the "paper they are printed on",  but please don't let that fact hinder the sincerity of my words to you. 
 
My prayers for you are for strength to continue your battle against this formidable foe we share, PD, and for cessation of your pain.
 
Regards, 
 
Jim Evridge   "AKA:SILVERFOXX_FIGHTING_BACK"
Pennsville, NJ


jenny c <jencar41048@...> wrote:
well  rob and linda
welcome to the elite pain club
after 25 yrs of meds
i am going into the hospital soon (bethesda hospital in ohio)
for a 3-5 day trial of constant iv pain meds..
if it works
they will implant a perm iv pump directly into my
spine and i will get continual iv drugs like a cancer patient.
the pump battery will only need to be changed every 10
years and the meds will need to be refilled into the pump every 90 days.
i can hardly wait.
i will keep and the list posted
i have lived with this pain now for almost 8-9 years
i was at the point of screaming literally in pain for 7-12
hours a day... it got so  bad that my husband had to leave because
there was just nothing he could do but listen and 7-12 hours
of screaming will test any living soul living with a person in this pain.....
i am at the point of suicide now
so i hope this really works
maybe it will help others in the end of their life with parkinsons disease...
 
the pain is originating from the brain and the central nervous system
and seems to be directly related to the long term of the disease itself.
i pray i can leave this world helping others in some small way.
no one should ever live like i have the past 8-9 years
the pain is horrific
and problem is we are outliving our bodies and this disease
jenny carmack in ky

 

 


"Sometimes our light goes out but is blown into a flame by another human being. Each of us owes our deepest thanks to those who have rekindled that light."   Albert Schweitzer
 
"Always remember to be thankful for what you have. There are those less fortunate than you and I who have hope in their hearts and prayers of thanks on their lips."   Jim Evridge AKA:Silverfoxx_Fighting_Back    02 Apr 2004
 
 
 



Mon Jun 2, 2008 12:39 pm

silfoxx2002
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Message #16583 of 19006 |
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HEY EVERYONE ITS ROB HERE AND IVE GOT A QUESTION TO ALL OF U LATELY IVE BEEN HAVING ALOT OF PROBLEMS WALKING -LEGS HURT SOOOO BAD TO WHERE ITS HARD TO STAND UP...
rjb19842002
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Jun 1, 2008
12:57 am

well&nbsp; rob and linda welcome to the elite pain club after 25 yrs of meds i am going into the hospital soon (bethesda hospital in ohio) for a 3-5 day trial...
jenny c
jencar41048
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Jun 1, 2008
1:28 am

Jenny, &nbsp;&nbsp; I have been thinking since I read your post....trying to understand how a person can exist with the amount of pain you describe, or...
Becky Bigger
dekerah
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Jun 2, 2008
1:43 pm

Hi Jenny, I have to tell you that your post to PLWP has greatly saddened me. I realize that you have put up with PD and many of its symptoms for a very long...
Jim Evridge
silfoxx2002
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Jun 2, 2008
1:47 pm

&nbsp;pain can be caused by dystonia but my pain is directly from the parkinsons disease itself. we are outliving our bodies,, the pain i suffer from is from...
jenny c
jencar41048
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Jun 2, 2008
3:41 pm

Amen, JIm!!!!!!!!!!!&nbsp; Becky &nbsp; ... From: Jim Evridge &lt;silfoxx2002@...&gt; Subject: Re: [PLWP2] pain and long term parkinsons disease To:...
Becky Bigger
dekerah
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Jun 3, 2008
12:24 pm

yeah, i have a hard time with walking sometime also, when i do some heavy work my legs get real weak and i have to sit down for awhile,,,,also have pains in...
chad lawson
safetyoffice...
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Jun 1, 2008
11:31 pm
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