Hi Erin,
My name is Sarah. Your story has touched my heart and I hope I can help you in
such a trying time. It was this group that helped me get through the loss of
my son. It saddens me to see that the support system this group had offered has
all but vanished. Remember that there are those who are still here to support
you.
I lost my son in September 2004 by placenta abruption. Unfortunately I don't
have the medical vocabulary you have but I truly hope that I can help you with
any questions you may have.
I was told my abruption was caused by a Premature Rupture of my membranes. The
PROM was caused by an infection, and the infection was caused because I have an
incompetent cervix. The doctors waited way to long to insert my cervical
cerclage 19 weeks even though I had told them early that I had a history of
incompetent cervix. For me, I felt like the answers I was given by the dr's
really didn't touch on the root of my concern. Why did they take so long to
insert the suture? It just seemed as though every dr was protecting another dr.
Especially the dr who I had originally told of my previous condition. For
months I was visiting a high risk clinic and no one detected the infection. I'm
not even sure if they could have? But that is another question that was never
answered. It was by doing my own research and joining groups that I was finally
able to translate many of the scientific terms used to describe my case.
About 8 years ago, my friend gave birth to a baby who was incubated and given
two transfusions because he was hemorraging in the brain and was having liver
complications and his organs were failing. She was told that the lack of oxygen
to his brain and the bleeding would cause developmental problems later in life.
Unfortunately he did not survive, your story just sounded similar to hers. I
wasn't sure what some of the terms you used meant. But I really hope this helps
with some of your questions.
Please feel free to contact me if you need to talk.
Sarah
Erin <kittysigns@...> wrote:
Hi Michele,
Nice to meet you. I don't have a medical degree but I did just
finish my PhD in Clinical Psych and I have assessment experience so
to some extent I'm trained to gather and synthesize relevant
information. Most of the medical info I've picked up just dealing
with Brooke's issues.
I don't have questions right now...we've pretty much exhausted our
experts with all our questions :)...of course I'd have a ton if by
chance someone else here experienced something similar (although I
highly doubt it because our neonatologist says he's seen both oxygen
loss and hemorrhagic shock only 12 times in the 25 years he's worked
in the NICU). I'm sure I will have questions when I am pregnant
because what happened is so unusual they really can't give me a
recurrence rate so I have no idea what to expect other than lots of
monitoring.
Thanks for sharing your experience with both your pregnancies. It
is comforting and hopeful to hear others' stories.
Erin
--- In placentaabruption@yahoogroups.com, Michele Silva <by-
grace@s...> wrote:
>
> Hi Erin,
>
> My name is Michele. I'm not the originator of this group, her
name is Michelle B. I'm not sure what happened to her, she used to
respond to all new people personally and the last couple of new
people at least she hasn't replied to. I'm not sure why people have
stopped writing in this group. I know for me getting pregnant the
second time and having two children now has kept me very busy. I
want to say I read in a post she was expecting a third time but I
could be wrong. I guess if she doesn't respond you could take over
moderating, I for one would like archives to not be public although
it hasn't been a problem so far with them being public.
>
> Your's is a complicated situation. It's difficult when there are
no clear answers and you don't get a why as to what happened. I was
very happy to read that your daughter made it even with all her
health problems and complications. I am a pediatric nurse and have
not heard of some of the stuff you mentioned, you have a very good
handle on all the different scenarios that might have gone on with
your pregnancy. Do you have a medical background?
>
> Anyway, I had a partial abruption in Feb of 02. We were very
fortunate our dd came thru just fine. It was likely caused due to
hypertension although I was not pre-eclamptic. My second pregnancy
was completely normal and I didn't have any hypertension.
>
> I am going to read your original post soon as I can't recall at
the moment if you had any questions that I could help with.
>
> Michele
>
> Erin <kittysigns@h...> wrote:
> Is there a reason why the message archives are public and the list
is
> unmoderated? It seems that might be the reason why the posting
has
> dramatically decreased. Generally members are likely to feel less
> safe knowing that just anyone can read and join the group. When
> spamming happens it is a strong reminder of this fact. If time is
an
> issue, although I'm a new member I'd be happy to try and moderate
> membership for a little while to encourage more safe posting.
>
> Just my .02
>
> Erin
>
>
>
>
>
>
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