mary -- I know my SI joint is out of alignment. Yes I've had this problem
for almost 22 years - way too long. How did you get better iwth pelvic
floor dysfunction? Did you have exercises to do? What were they? I'm
curious about it. Don't know if I can get to see another doc since this is
a worker's comp case and don't know if they would approve it. Could not do
it on my own if it is expensive -- as I had to retire (early) last year
because of my problem and am on a fixed income. But I will check it out.

Thanks for the info, Mary. Take Care, Maureen




----- Original Message -----
From: "Mary Smith" <filmfest12@...>
To: <piriformissyndrome@yahoogroups.com>
Sent: Saturday, May 10, 2003 11:17 AM
Subject: [Piriformis syndrome] Duragesic & diagnosis


> Maureen- It's nice to find someone, who has had this
> almost as long as I have. It has been one misdiagnosis
> after another. And I think Piriformis Syndrome is yet
> another misdiagnosis. Something else has to be causing
> the piriformis muscle to press on the sciatic nerve.
>
> I bet your pelvic mechanics are not stable. The reason
> you are better while in PT is because the therapist
> re-adjusts your pelvis every time. But the proper
> pelvis mechanics can't be maintained after PT because
> you are hypermobile. (The bending over problems are
> another indication of hypermobility.) The
> hypermobility is probably due to some problem with the
> Pelvic Floor muscles & ligaments.
>
> The main problem is so few people are knowledgeable
> about the role of Pelvic Floor dysfunction in low back
> problems & pain. Most PTs have minimal knowledge &
> doctors appear to have none. Even worse, most people
> treating Pelvic Floor problems are only treating
> incontinence. It is very hard to find someone
> knowledgeable enough to follow the clues & treat the
> underlying problem.
>
> A neurologist is no help. He can't fix the problem: he
> can only give you things to make the pain slightly
> more bearable. After decades of experience, I can only
> say TREATING THE PAIN W/O TREATING THE CAUSE OF PAIN
> -DOES NO GOOD. Duragesic will only be another bandaid.
>
> Now that my pelvic floor problem has been diagnosed &
> treatment begun, I take extraordinarily little
> medication. My quality of life has dramatically
> improved.
>
> I encourage you to find a PT with specialized training
> in treating pelvic floor induced back pain
> problems.Get get an evaluation that includes sensors
> placed in both the vagina & rectum. Many evaluations
> only use the vaginal sensor, thus missing the problems
> in the rear part of the floor, which cause the most
> back, hip & leg problems.
>
> If Pelvic Floor problems are causing your Piriformis
> Syndrome, it is worth fixing. (Sometimes, you have to
> go to several therapists before you find one, who uses
> the techniques that are right for you. We really need
> more research & teaching in this area!)
>
> But there is hope for a life that is relatively pain &
> drug free! Check it out. Mary
>
>
>
>
>
>
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