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That is the most frustrating thing - it feels like there should be a definite thing we can do or not do that will "fix" us. My doctor basically said this is how I'm going to be unless the acupressure/softball thing works.
I mentioned finding information on a web site message area (the one that directed me to this group, actually) and a friend said "Oh you must feel better to know someone else has this, too." I really don't - I'm so sorry anyone has to feel this pain.
From: piriformissyndrome@yahoogroups.com [mailto:piriformissyndrome@yahoogroups.com] On Behalf Of jimmyrocs1
I have been recently diagnosed with Small Fiber Nueropathy at the
Cleveland clinic. For 21 years I have suffered pain starting at my
feet, has gotten worse and also has effected my back, buttocks and
neck. All my symtoms are similar to piriformas syndrome you have
mentioned. To my dismay there is no know cure for SFN. It is mainly
caused from exsposure to toxins or heavy alchol usage. It was
detected after having a skin biopsy perform.
.
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