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New To Group - Unfortunately Not to PS   Message List  
Reply | Forward Message #2146 of 2544 |
Re: New To Group - Unfortunately Not to PS

I have been recently diagnosed with Small Fiber Nueropathy at the
Cleveland clinic. For 21 years I have suffered pain starting at my
feet, has gotten worse and also has effected my back, buttocks and
neck. All my symtoms are similar to piriformas syndrome you have
mentioned. To my dismay there is no know cure for SFN. It is mainly
caused from exsposure to toxins or heavy alchol usage. It was
detected after having a skin biopsy perform.

Thanks --- In piriformissyndrome@yahoogroups.com, "Writingmom"
<writingmom85283@...> wrote:
>
> Oh - a couple corrections (sorry).
>
> I used PT instead of PS in some places. Hopefully you can tell
when I'm
> talking about the syndrome and not physical therapy.
>
> Also - forgot to mention a symptom - I guess because this is
fairly (last 3
> months) new. I sometimes have the pins and needles feeling that
travels
> from my hip/buttocks area to my pelvic and anal area. It stops on
the left
> side which is fairly weird - I have all this sensation on the left
and none
> on the right. Sometimes I have aching pain in that same area when
my
> buttocks & leg is aching but it is pretty much just part of the
pain and not
> a separate kind of feeling unless I focus to figure out exactly
where I
> hurt. The pins and needles happens often when I have no pain at
all or very
> little symptoms in the other areas. I have no idea what it means
but the
> pins and needles feeling isn't BAD (actually feels a lot like I
have one of
> those nerve stimulators on but in a different area than I ever put
it on!).
>
> I looked this up and this seems to be a feeling that a lot of
people with a
> lot of different nerve issues get - male and female. I don't know
if this
> is normal for PS or not. I have not mentioned it to my doctor
since I
> haven't seen him since it began. I am concerned that it might
mean my
> condition is getting worse, though.
>
>
> <http://geo.yahoo.com/serv?
s=97359714/grpId=5497224/grpspId=1705094694/msgId
> =2144/stime=1226424418/nc1=5191951/nc2=5191948/nc3=4025304>
>





Wed Nov 12, 2008 2:01 am

jimmyrocs1
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Forward
Message #2146 of 2544 |
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I just joined the group and see that we are being asked for our medical history in regards to our PS diagnosis. I am not a medical doctor and don't have all...
writingmom85283
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Nov 11, 2008
5:26 pm

Oh - a couple corrections (sorry). I used PT instead of PS in some places. Hopefully you can tell when I'm talking about the syndrome and not physical...
Writingmom
writingmom85283
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Nov 12, 2008
12:16 am

I have been recently diagnosed with Small Fiber Nueropathy at the Cleveland clinic. For 21 years I have suffered pain starting at my feet, has gotten worse and...
jimmyrocs1
Offline Send Email
Nov 12, 2008
2:28 am

That is the most frustrating thing - it feels like there should be a definite thing we can do or not do that will "fix" us. My doctor basically said this is...
Writingmom
writingmom85283
Offline Send Email
Nov 12, 2008
4:23 am

Here are some possibilities - We have a member who did the tennis ball thing for years with limited relief. One day, she mentioned the pain to her...
Mary Smith
piriformis_m...
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Nov 12, 2008
4:41 am

Hi, One thing you may want to look up is pudendal neuropathy (PN) or pudendal neuralgia. Many with pudendal nerve issues also have piriformis issues. There are...
Tiff
bestel63
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Nov 13, 2008
5:11 am

Hi Tiffany, What were the symptoms of Pudendal nerve problems ?   Thanks, James. ... From: Tiff <bestel63@...> Subject: [Piriformis syndrome] Re: New To...
james weber
redjay25
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Nov 13, 2008
12:00 pm

Hi James, Check out the following web sites for more info. Pelvic pain of all sorts can be due to pudendal neuralgia. Urinary problems, pain with intercourse,...
Tiffany
bestel63
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Nov 14, 2008
7:12 pm

If you have any questions on the pelvic pain issue, please let me know :) And if you feel this may be something you want to see a gynecologist or physical...
Tiff
bestel63
Offline Send Email
Nov 13, 2008
5:39 am
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