Hi Mary - I just made an appointment to see Dr. Filler in early October.
I've read a couple of his studies and decided he would be the best
person to see. I've been messing around with doctors up her for 6
years. I've had unsuccessful marcaine (SP?) and botox injections and
none of the orthopedics I've contacted in the area specialize in
treating PS. If I don't sit, stand or move too much :o) the pain is
tolerable but my quality of life has been seriously impacted. I was
formerly an avid walker and swimmer and am unable to do *any* physical
activity. To be really blunt - IT SUCKS!! As I'm sure all on this
group know. I can only thank heaven above that I don't have "bilateral
PS". My heart goes out to all PS sufferers but especially to the folks
who with pain in both cheeks!
I have 1 and 6 year old sons and it kills me to be the invalid mommy who
can't pick up her baby or play soccer, go on a walk, push a stroller or
shopping cart and the list goes on. So I'm extremely hopeful that Dr.
Filler can get to the bottom (he, he) of this and fix the problem once
and for all!
I'll keep everyone posted on my experience. Look to hear from me in mid
October.
Thanks to everyone for listening,
Eve
________________________________
From: piriformissyndrome@yahoogroups.com
[mailto:piriformissyndrome@yahoogroups.com] On Behalf Of Mary Smith
Sent: Wednesday, September 12, 2007 7:14 PM
To: piriformissyndrome@yahoogroups.com
Subject: [Piriformis syndrome] re: Referral to a Doctor
Hi Eve. Sorry, I am not aware of anyone in the Bay
area. Perhaps someone else in the group can recommend
a doctor.
I checked with a member who went to a doctor/professor
at UCSF. He had "nothing good to say about the
clinical practices up at UCSF. HUGE WAIT TIME TO SEE A
DOCTOR AND THE RUN AROUND once you get there. I have
waited 4 months for a check up visit with the spine
center." Read Message #1196 for more info about his
experience. Ultimately, the "test" injection only gave
him more permanent pain and he never got the P.S.
surgery. (I believe the cause of his P.S. was L-5/S1
surgery.)
Dr. Filler's name is frequently mentioned here because
he devised a minimally invasive outpatient surgery for
P.S. and has published about it. But, as far as I
know, no one here has actually has been treated by
him. That is because people end up going to doctors in
their local area and most of us don't live in
California.
In 2005, someone else had called Filler's clinic.
There was a three month waiting list to get an
appointment with him. Don't know if that is still true
today. We have had so many inquiries about Dr. Filler,
I wish we had some first hand information about him
and his technique .
One of the problems with this group, is we seem to be
a "drop in" point for people on their P.S. journey.
Then they to disappear without ever telling us if they
had the surgery or something else, if it worked, or
what.
So if you see Dr. Filler, PLEASE, PLEASE tell us your
experiences, so other people can benefit for your
knowledge.
It would be great to have a member who actually had
the procedure & if it as successful as his statistics
claim. Please stay in touch. Thanks, Mary
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