Hi Drew, My name is James, originally from Stockport
U.K but now in Ontario, Canada.

You have some symptoms that could be Piriformis muscle
related by the sound of it. As you probably know the
Piriformis muscle rotates the leg to the outside (a
Charlie Chaplin kind of stance).
I was convinced I had Piriformis Syndrome but that
name only covers a mulititude of possible ailments all
clustered together to descibe a usually unknown exact
cause. The deep buttock pain is typical as are some of
the other symptoms you describe.
Sitting is usually very painful. Are you experiencing
nerve (Sciatic)pain that radiates down the back of the
leg ?
Standing after sitting is also painful. I too had
every kind of test which showed nothing more than DDD
(deteriorating disc disease) in the back but no other
back problems to speak of.
Nerve tests in the leg were also negative. Exploratory
surgery in 2004 discovered "vein clusters" trapping
the sciatic nerve in the area of the right buttock
right where the deep buttock pain and sciatic nerve
burning was coming from. The surgeon was able to put
his finger into the area of the piriformis muscle and
sciatic nerve and determined there was no nerve
entrapment there. He removed the vein clusters from
around the sciatic nerve. I am better (50%)after the
surgery and can sit for longer periods of time before
it gets too painful and the leg starts to burn. I have
also discovered (MRI)since the surgery that I have a
cyst in my knee joint that is right were most of the
pain is now centered and could be the cause of the
pain. I now have to wait a year for arthroscopic knee
surgery. I believe that the vein clusters and cyst
were the culprits although I was convinced the
Piriformis was the culprit. I took me from 2000 to
2004 to get surgery after having all the tests and
getting nowhere. Very rarely will you get a "concrete
dianosis" of Piriformis Syndrome as a syndrome is very
non specific.
If you have any more questions please do not hesitate
to ask.
James.




--- drew3039 <no_reply@yahoogroups.com> wrote:

> Hi!
>
> My name is Drew & I live in the UK.
> I have had the symptoms below for about 20 years,I
> was 17 when I
> first felt my first symptoms.
> I must point out that I have seen many "Specialists"
> and so far I
> have had no luck with a concrete diagnosis.
>
> Below are my symptoms.
>
> Deep Left buttock pain.
> Sharp pain in my left groin and hip.
> left lower back pain
> Left side pain above my left hip.
> Left leg sometimes comes out at a angle after
> sitting down for a
> while.
> The only way I can describe this in words is that
> the I look like a
> compass,you know what you use with a pencil to draw
> a circle
> with.when this happens the pain in my left groin
> region is very
> sharp and painful and i can not move my left
> leg.After a while it
> settles down and i can move again.
> I hate sitting in cars or chairs.The pain can be
> bad.
> If I stand for a while the pain can be bad too.
>
> The above symptoms are the main symptoms but there a
> few others.
> The specialist have said that I have a small L5 disc
> prolapse but
> nothing serious.Everytime I have a MRI scan or Xray
> the specialist
> asks me if I have been in an accident? and I
> haven't!
> My MRI scan on my My Left hip has a bit of arthritis
> but the
> specialist thinks that my problem is something else.
> Is this something else the Piriformis syndrome ?
> After searching the internet I came across the
> condition and there
> are a few things that I recognize.
> Could you please give me your honest opinion after
> reading the above
> and tell me if my symptoms match that of a
> piriformis syndrome
> sufferer.
>
> Thank you for your time.
> Any help or advice will be appreciated.
>
> Drew in the UK.
>
>
>
>
>


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