Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with PRS. The purpose of our group is to share experiences with each other to benefit those with PRS. We do not offer medical advice, only support and ideas to take to your child's doctors for their approval. This is not just an information group, we offer support and sometimes generate up to 50 emails per day. You can set your subscription to digest format (which is a group of 25 messages) and then you will only get 1-2 digests per day.

We have experienced members who have all dealt with a variety of issues related to PRS. Our goals are to make parents and families of PRS individuals not feel alone and to educate the public about PRS issues.