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#661 From: "alanj42" <alanj42@...>
Date: Fri Jan 2, 2004 4:25 am
Subject: Alabama guy here 5 year Ostomate
alanj42
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Would love to chat with anyone.

#660 From: "fowfreedom" <fowfreedom@...>
Date: Sat Dec 27, 2003 3:15 am
Subject: Not that old, but feel like it.
fowfreedom
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Hi:
Just joined the groupe, I had cancer in of the bladder and prostitute,
both were removed about thirteen (13) months ago. My home is in
Florida in the Green Cove Springs area.
I do have a question but I would like just to ask a male member, if
that's possible?

#659 From: "Tina K" <Af12dlite@...>
Date: Thu Dec 25, 2003 2:59 pm
Subject: Happy Holidays
anangelseyes
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Clear DayWe want to wish all of you a Happy Holiday season.
       May it be safe, filled with love of family and friends and

       the creation of wonderful memories.



       For the New Year, we wish for you, good health, love and happiness

       and prosperity in all things.



       Be well and thanks for being a part of our lives! We look forward to many

       more years together! God Bless and keep you safely wrapped in His loving
arms.



       Angel hugs

       Tina and Mark




--------------------------------------------------------------------------




[Non-text portions of this message have been removed]

#658 From: "Walter Hall" <tdevil333@...>
Date: Tue Dec 23, 2003 8:27 pm
Subject: Happy Holidays
tdevil333
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Hello All, I would also like to wish everybody a Merry Christmas and
a safe, and happy New Year. I had my colon taken out July 2002,
because it was severely perforated form ulcerative colitis. I have
learned to adapt to a new way of life. I learned to take care of my
stoma. The biggest fact I learned is that you have to take
Acidophilus to replace the flora that was in the colon, and that you
have to take an anti gas medicine to reduce gas. If you don't reduce
the gas you can blow your bag off and also suffer severe intestinal
pain from trapped gas. I learned this when I went to the doctor with
severe intestinal pain. I am glad that there are much needed support
groups like this to rely on.

#657 From: "Kathy" <kathy_from_england@...>
Date: Sat Dec 13, 2003 4:14 pm
Subject: Ostomy IRC Support Chat - Saturdays
kathy_from_e...
Offline Offline
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www.ostomy.fsnet.co.uk/chat.html

8pm UK Time which is 3pm EST ish.
A clock showing the current UK time is also on that page. Look at it
to see
the current UK then you can work out what 8pm UK is in your part of
the
world.

All ostomists welcome, whatever the condition, whatever the age.

Go to the URL above and can join us in the chat room from there. A
free-to-use Java Client
is embedded into the page that is dead easy to use.

If you use mIRC, or Besirc or some other IRC Chat Client, heres the
server
details you need to connect:

Server: irc.fef.net
Port: 6667
Channel: #ostomyland.

WebTV Users, you need to use your own TV based software to join us -
included free as part
of the WebTV browser software. Use the server and port and channel
info when requested by your software to join

=========

Dont forget that the channel is now open 24/7 for general chit chat
during the week. The more people who visit it regularly the better
the chances of finding ppl to talk to in there at any time of the
day. :o)

Look forward to seeing you in the meeting saturday night, or later on
in the week.

#656 From: "Fursky" <furskybear@...>
Date: Fri Dec 5, 2003 1:01 am
Subject: Re: [peoples with ostomy2] Asking for prayers
fursky1
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I certainly will,,,,,,,,being a cancer patient myself I know how scarey it
can be!

-------Original Message-------

From: peopleswithostomy2@yahoogroups.com
Date: Thursday, December 04, 2003 01:23:31
To: peopleswithostomy2@yahoogroups.com
Subject: [peoples with ostomy2] Asking for prayers

Hi

I'm writing tonight to ask for prayers. I just found out that my 34
year old niece was diagnosed with a rare, aggressive form of breast
cancer.

She is optomistic and will begin Chemo on Monday.

Thanks in advance!  All prayers are appreciated!

Angel hugs

Tina


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#655 From: "Warren Smith" <docmskitty@...>
Date: Thu Dec 4, 2003 9:04 pm
Subject: Re: [peoples with ostomy2] Asking for prayers
ccitydoc
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Hi Tina--Just said a prayer for your niece and will continue to do so. Chin up,
keep positive.Warren


   ----- Original Message -----
   From: TK
   To: peopleswithostomy2@yahoogroups.com
   Sent: Thursday, December 04, 2003 12:23 AM
   Subject: [peoples with ostomy2] Asking for prayers


   Hi

   I'm writing tonight to ask for prayers. I just found out that my 34
   year old niece was diagnosed with a rare, aggressive form of breast
   cancer.

   She is optomistic and will begin Chemo on Monday.

   Thanks in advance!  All prayers are appreciated!

   Angel hugs

   Tina


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#654 From: "TK" <Af12dlite@...>
Date: Thu Dec 4, 2003 6:23 am
Subject: Asking for prayers
anangelseyes
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Hi

I'm writing tonight to ask for prayers. I just found out that my 34
year old niece was diagnosed with a rare, aggressive form of breast
cancer.

She is optomistic and will begin Chemo on Monday.

Thanks in advance!  All prayers are appreciated!

Angel hugs

Tina

#653 From: ltrapp
Date: Sun Nov 30, 2003 8:53 pm
Subject: Preventative Measures are a Must for Fall and Winter
ltrapp
Offline Offline
 
Hello,

The link below will take you to a list of Fall and Winter measures for
ostomates in general:

http://tinyurl.com/x48i

Larry Trapp/ Webmaster / http://www.ostomy.evansville.net

#652 From: "Tina K" <Af12dlite@...>
Date: Fri Nov 28, 2003 11:40 pm
Subject: Speak Out
anangelseyes
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The following came into my email box today.   Please take time to read it. It
came from a military person.

I was sitting alone in one of those loud, casual steak houses that you find all
over the country. You know the type - a bucket of peanuts on every table, shells
littering the floor, and a bunch of perky college kids racing around with
longneck beers and sizzling platters.

Taking a sip of my iced tea, I studied the crowd over the rim of my glass. My
gaze lingered on a group enjoying their meal. They wore no uniform to identify
their branch of service, but they were definitely "military" clean shaven,
cropped haircut, and that "squared away" look that comes with pride. Smiling
sadly, I glanced across my table to the empty seat where my husband usually sat.
It had only been a few months since we sat in this very booth, talking about his
upcoming deployment to the Middle East. That was when he made me promise to get
a sitter for the kids, come back to this restaurant once a month and treat
myself to a nice steak. In turn he would treasure the thought of me being here,
thinking about him until he returned home to me.

I fingered the little flag pin I constantly wear and wondered where he was at
this very moment. Was he safe and warm? Was his cold any better? Were my letters
getting through to him? As I pondered these thoughts, high pitched female voices
from the next booth broke into my thoughts. "I don't know what Bush is thinking
about. Invading Iraq. You'd think that man would learn from his old man's
mistakes. Good lord. What an idiot! I can't believe he is even in office. You do
know, he stole the election."

I cut into my steak and tried to ignore them, as they began an endless tirade
running down our president. I thought about the last night I spent with my
husband, as he prepared to deploy. He had just returned from getting his
smallpox and anthrax shots. The image of him standing in our kitchen packing his
gas mask still gives me chills.

once again the women's voices invaded my thoughts. "It is all about oil, you
know. Our soldiers will go in and rape and steal all the oil they can in the
name of 'freedom'. Hmph! I wonder how many innocent people they'll kill without
giving it a thought? It's pure greed, you know." My chest tightened as I stared
at my wedding ring. I could still see how handsome my husband looked in his
"mess dress" the day he slipped it on my finger. I wondered what he was wearing
now. Probably his desert uniform, affectionately dubbed "coffee stains" with a
heavy bulletproof vest over it.

"You know, we should just leave Iraq alone. I don't think they are hiding any
weapons. In fact, I bet it's all a big act just to increase the president's
popularity. That's all it is, padding the military budget at the expense of our
social security and education. And, you know what else? We're just asking for
another 9-ll. I can't say when it happens again that we didn't deserve it."
Their words brought to mind the war protesters I had watched gathering outside
our base. Did no one appreciate the sacrifice of brave men and women who leave
their homes and family to ensure our freedom? Do they even know what "freedom"
is?

I glanced at the table where the young men were sitting, and saw their
courageous faces change. They had stopped eating and looked at each other
dejectedly, listening to the women talking. "Well, I, for one, think it's just
deplorable to invade Iraq, and I am certainly sick of our tax dollars going to
train professional baby killers we call a military." Professional baby killers?
I thought about what a wonderful father my husband is, and of how long it would
be before he would see our children again.

That's it! Indignation rose up inside me. Normally reserved, pride in my husband
gave me a brassy boldness I never realized I had. Tonight one voice will answer
on behalf of our military, and let her pride in our troops be known. Sliding out
of my booth, I walked around to the adjoining booth and placed my hands flat on
their table. Lowering myself to eye level with them, I
smilingly said, "I couldn't help overhearing your conversation. You see, I'm
sitting here trying to enjoy my dinner alone. And, do you know why? Because my
husband, whom I love with all my heart, is halfway around the world defending
your right to say rotten things about him." "Yes, you have the right to your
opinion, and what you think is none of my business. However, what you say in
public is something else, and I will not sit by and listen to you ridicule MY
country, MY president, MY husband, and
all the other fine American men and women who put their lives on the line, just
so you can have the "freedom" to complain. Freedom is an expensive commodity,
ladies. Don't let your actions cheapen it."

I must have been louder that I meant to be, because the manager came over to
inquire if everything was all right. "Yes, thank you," I replied. Then, turning
back to the women, I said, "Enjoy the rest of your meal." As I returned to my
booth applause broke out. I was embarrassed for making a scene, and went back to
my half eaten steak. The women picked up their  check
and scurried away.

After finishing my meal, and while waiting for my check, the manager returned
with a huge apple cobbler ala mode. "Compliments of those soldiers, he said. He
also smiled and said the ladies tried to pay for my dinner, but that another
couple had beaten them to it. When I asked who, the manager said they had
already left, but that the gentleman was a veteran, and
wanted to take care of the wife of "one of our boys." With a lump in my throat,
I gratefully turned to the soldiers and thanked them for the cobbler. Grinning
from ear to ear, they came over and surrounded the booth. "We just wanted to
thank you, ma'am. You know we can't get into confrontations with civilians, so
we appreciate what you did." As I drove home, for the first time since my
husband's deployment, I didn't feel quite so alone. My heart was filled with the
warmth of the other
diners who stopped by my table, to relate how they, too, were proud of my
husband, and would keep him in their prayers. I knew their flags would fly a
little higher the next day. Perhaps they would look for more tangible ways to
show their pride in our country, and the military who protect her. And maybe,
just maybe, the two women who were railing against our country, would pause for
a minute to appreciate all the freedom America offers, and the price it pays to
maintain it's freedom. As for me, I have learned that one voice CAN make a
difference. Maybe the next time protesters gather outside the gates of the base
where I live, I will proudly stand on the opposite side with a sign of my own.
It will simply say, "Thank You!"

(*Lori Kimble is a 31 year old teacher and proud military wife. A California
native, Mrs. Kimble currently lives in Alabama)
To those who fought for our Nation: Freedom has a flavor the protected will
never know. GOD BLESS AMERICA!




[Non-text portions of this message have been removed]

#650 From: "Af12dlite@..." <Af12dlite@...>
Date: Fri Nov 21, 2003 5:07 pm
Subject: RE: [peoples with ostomy2] new here
anangelseyes
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Hi Kat

Welcome to the group.  Hope you'll find lots of good things here.

Angel hugs'

Tina

Original Message:
-----------------
From: kat_pink2003 kat_pink2003@...
Date: Sun, 09 Nov 2003 03:10:30 +0000
To: peopleswithostomy2@yahoogroups.com
Subject: [peoples with ostomy2] new here


hi everyone

im new to this group so thought i'd say hi !





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#649 From: varshamakvana
Date: Tue Nov 18, 2003 10:33 pm
Subject: (No subject)
varshamakvana
Offline Offline
 
Hi all,

If anyone is interested in joining our lovely new Stoma Care group
(now relocated to Yahoo from AOL), please click on the following
link to join.

http://health.groups.yahoo.com/group/stomacentral/

I am the moderator and Sandara is Owner and here is a message for
our future members:

Stoma Central for ostomates everywhere. Get Support, understanding
and advice. Feel comfortable enough to vent your feelings,whatever
they may be, as we travel the same road together. and we are there
to help.

We would love to hear from all of you., we are in process of
arranging a chat time suitable for all members as we all live in
different time zones so please, come and check us out.   Would love
to share the group with lovely members like you all.


Thank you.

Best wishes from Varsha & Sandara

#643 From: "Greg Johnson" <greg.johnson64@...>
Date: Sun Nov 9, 2003 8:00 am
Subject: RE: [peoples with ostomy2] new here
curly36greg
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I am new as well!
My name is Greg and I live in the Boston area. I attend a support group at
Lahay Clinic in Burlington, MA which is run by the Ostomy Association of
Boston.
So any Boston area folks interested in a great group meeting it happens
every other month!

Hope everyone is doing well!

Best,
Greg



-----Original Message-----
From: kat_pink2003 [mailto:kat_pink2003@...]
Sent: Saturday, November 08, 2003 10:11 PM
To: peopleswithostomy2@yahoogroups.com
Subject: [peoples with ostomy2] new here


hi everyone

im new to this group so thought i'd say hi !




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#642 From: "kat_pink2003" <kat_pink2003@...>
Date: Sun Nov 9, 2003 3:10 am
Subject: new here
kat_pink2003
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hi everyone

im new to this group so thought i'd say hi !

#641 From: mollyb54968
Date: Sun Nov 9, 2003 2:07 am
Subject: ostomy reversal
mollyb54968
Offline Offline
 
has anyone had their ostomy reversed.  i did and would like to know
if anyone has any pointers on getting their bowel movements regular

#640 From: "Kathy" <kathy_from_england@...>
Date: Sat Nov 1, 2003 5:39 pm
Subject: Saturday Ostomy Chat
kathy_from_e...
Offline Offline
Send Email Send Email
 
www.ostomy.fsnet.co.uk/chat.html

8pm UK Time which is 3pm EST ish.
A clock showing the current UK time is also on that page. Look at it
to see
the current UK then you can work out what 8pm UK is in your part of
the world.

All ostomists welcome, whatever the condition, whatever the age.
Go to the URL above and can join us in the chat room from there. A
free-to-use Java Client is embedded into the page that is dead easy
to use.

If you use mIRC, or Besirc or some other IRC Chat Client, heres the
server
details you need to connect:
Server: irc.fef.net
Port: 6667
Channel: #ostomyland.

WebTV Users, you need to use your own TV based software to join us -
included free as part
of the WebTV browser software. Use the server and port and channel
info when requested by your software to join
=========
Dont forget that the channel is now open 24/7 for general chit chat
during the week. The more
people who visit it regularly the better the chances of finding ppl
to talk to in there at any time of the day. :o)
Look forward to seeing you in the meeting saturday night, or later on
in the week.

#632 From: Phoenixorigin <phoenixorigin@...>
Date: Fri Oct 3, 2003 6:20 pm
Subject: Re: [peoples with ostomy2] Clothing issues and Urosotmy
phoenixorigin
Offline Offline
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expandable (elastic) waistlines r good...catalogues like Lands End & the like
have good selections at different times of the year. u'll get the hang of
it.....also wearing loose squared off shirts, not tucked in is more comfortable.
tim

CRobin8681@... wrote:I have a stoma as a result of a colostomy. I had the
same problems. I started
wearing my trousers larger, I looked for longer waist


[Non-text portions of this message have been removed]


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#631 From: CRobin8681@...
Date: Sun Sep 28, 2003 11:44 am
Subject: Re: [peoples with ostomy2] Clothing issues and Urosotmy
spotmydog2003
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I have a stoma as a result of a colostomy. I had the same problems. I started
wearing my trousers larger, I looked for longer waist


[Non-text portions of this message have been removed]

#630 From: amyspov
Date: Sun Sep 28, 2003 6:09 am
Subject: Clothing issues and Urosotmy
amyspov
Offline Offline
 
My father had a urostomy due to bladder cancer a little over a month
ago. He is trying to adjust to the stoma, but is having a hard time
with the waist of his suit pants and his belt..it goes right over the
stoma causing him discomfort, but he's too embarassed to go to the
tailor. Does anyone have experience with how to adjust to wearing
men's pants with a stoma? I hate seeing him so uncomfortable.

#628 From: "Dawn" <abbeytessawaldo@...>
Date: Thu Sep 18, 2003 5:22 pm
Subject: Good Afternoon Everyone
abbeytessawaldo
Offline Offline
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I hope that you all are having a great day.  The last few weeks I
have not been well and now today we are waiting for a Hurricane to
come in our direction.  Given these two events I have decided to go
to NO MAIL until further notice.  I will miss hearing from you all
but, this is something I really feel I have to do.  Thank you for
taking the time to read this note.  Have a great rest of the week and
I will be back as soon as I am able.  Sincerely,   Dawn

#627 From: Phoenixorigin <phoenixorigin@...>
Date: Mon Sep 15, 2003 9:16 pm
Subject: Re: [peoples with ostomy2] Sorry
phoenixorigin
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Diana....Hang in there..u have my prayers(as well as every1 elses, i'm
sure)..concentrate on urself and the other stuff will be there, when ur rdy...u
r way too talented of a writer to let this setback stifel(sp?) that. just think,
when ur up to it again, how much more experience u'll have to pass along for
others' benefit. U Go Girl, & God Bless!!. tim

"D. Greco" <greco1931@...> wrote:Hi All,

Sorry I have not been an active participant in any discussion. Have not been
feeling well lately. My depression is back, big time and last week I found out
my Crohn's Disease is active again. This time my doctor mentioned that the way
my body reacts to this disease, it is like my body is thinking my intestines are
a foreign object and is trying to get rid of it. Now I am back to square one. I
thought I would get a little reprieve from being sick after having the
ileostomy, but no such luck.
I am so tired of being sick, I do not know what to do anymore. He put me on
Imuran and now that is causing me to be real nauseous. Maybe I will talk to him
about Remicade again. He mentioned it but it did not work on me the first time I
used it. But with me having such bad veins I do not know if that would be a good
idea.
Once I start feeling better I will try and be more active, but right now I do
not have the strength, energy or the will to actually do anything. I have lost
all interest in everything I use to do. I just don't know how much more I can
really handle all of this anymore.

Diana
Sorry about the cross posting

[Non-text portions of this message have been removed]


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#626 From: "D. Greco" <greco1931@...>
Date: Mon Sep 15, 2003 12:47 pm
Subject: Sorry
aries_70460
Offline Offline
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Hi All,

Sorry I have not been an active participant in any discussion. Have not been
feeling well lately. My depression is back, big time and last week I found out
my Crohn's Disease is active again. This time my doctor mentioned that the way
my body reacts to this disease, it is like my body is thinking my intestines are
a foreign object and is trying to get rid of it. Now I am back to square one. I
thought I would get a little reprieve from being sick after having the
ileostomy, but no such luck.
I am so tired of being sick, I do not know what to do anymore. He put me on
Imuran and now that is causing me to be real nauseous. Maybe I will talk to him
about Remicade again. He mentioned it but it did not work on me the first time I
used it. But with me having such bad veins I do not know if that would be a good
idea.
Once I start feeling better I will try and be more active, but right now I do
not have the strength, energy or the will to actually do anything. I have lost
all interest in everything I use to do. I just don't know how much more I can
really handle all of this anymore.

Diana
Sorry about the cross posting

[Non-text portions of this message have been removed]

#623 From: Bifida affection <abbeytessawaldo@...>
Date: Tue Sep 9, 2003 9:17 pm
Subject: Re: [peoples with ostomy2] New to group; Ileostomy since 1984
abbeytessawaldo
Offline Offline
Send Email Send Email
 
Hi Jean, welcome to the group.   My name is Dawn.  I am thirty seven years old
and have had an illeostomy bag since I was two.  This is because I was born with
a birth defect called Spina Bifida and my bladder is not functioning at all. 
The illeostomy is only to collect Urine.  I am able to basically handle the
other issue on my own. I am however confined to a wheelchair and I have water on
the brain too (that is called Hydrocephalous) so I have a tube in my head
(called a shunt) that drains water off my brain.  I am sorry for the long story.
I really just wanted to say welcome to the group. I am really long winded at
times LOL!!!!!!!!!!!!!!!!  Sincerely, Dawn

lazy_laza_lizard <lazy_laza_lizard@...> wrote:Hi,  I just joined the
group, although I've had my ileostomy since
1984 (after many years of crhons, severe ulcerative colitis and
finally toxic megacolon).  I'm a SWF of 66 and live in Florida's
capital city.  After several surgeries due to parastomal hernias, I'm
down to 2-3 ft of small intestine only.  I am a diabetic also and
have to take insulin and those B12 shots each month.  But, I try to
be as active as possible.  Love movies, museums, folk festivals,
classical and world music concerts at the local university and
travel.  Skin problems under the wafer seem to be my biggest
problem.  And the daily nutritional juggling act to keep my stoma AND
my diabetes happy.  That's about it!     jean


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#622 From: "debbie Clark" <deblea4d@...>
Date: Tue Sep 9, 2003 5:59 pm
Subject: Re: [peoples with ostomy2] New to group; Ileostomy since 1984
debcrd
Offline Offline
Send Email Send Email
 
hi...thanks to antibacterial zest..other one didn't work..and kenalog  spray i
no longer have skin problems under my wafers...
   ----- Original Message -----
   From: lazy_laza_lizard
   To: peopleswithostomy2@yahoogroups.com
   Sent: Tuesday, September 09, 2003 1:54 PM
   Subject: [peoples with ostomy2] New to group; Ileostomy since 1984


   Hi,  I just joined the group, although I've had my ileostomy since
   1984 (after many years of crhons, severe ulcerative colitis and
   finally toxic megacolon).  I'm a SWF of 66 and live in Florida's
   capital city.  After several surgeries due to parastomal hernias, I'm
   down to 2-3 ft of small intestine only.  I am a diabetic also and
   have to take insulin and those B12 shots each month.  But, I try to
   be as active as possible.  Love movies, museums, folk festivals,
   classical and world music concerts at the local university and
   travel.  Skin problems under the wafer seem to be my biggest
   problem.  And the daily nutritional juggling act to keep my stoma AND
   my diabetes happy.  That's about it!     jean


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#621 From: "lazy_laza_lizard" <lazy_laza_lizard@...>
Date: Tue Sep 9, 2003 5:54 pm
Subject: New to group; Ileostomy since 1984
lazy_laza_li...
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Hi,  I just joined the group, although I've had my ileostomy since
1984 (after many years of crhons, severe ulcerative colitis and
finally toxic megacolon).  I'm a SWF of 66 and live in Florida's
capital city.  After several surgeries due to parastomal hernias, I'm
down to 2-3 ft of small intestine only.  I am a diabetic also and
have to take insulin and those B12 shots each month.  But, I try to
be as active as possible.  Love movies, museums, folk festivals,
classical and world music concerts at the local university and
travel.  Skin problems under the wafer seem to be my biggest
problem.  And the daily nutritional juggling act to keep my stoma AND
my diabetes happy.  That's about it!     jean

#619 From: "Peter Folk" <peter.folk@...>
Date: Sat Sep 6, 2003 2:14 pm
Subject: Vitamin B12
Peterfolk
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VITAMIN B12- YOU CAN'T B2 SURE!
Continent Diversons, Shawnee Mission, KS; via Belleville, ON; Metro
Halifax News, March 2001

There have been recent articles in the urology literature about
Vitamin B12 deficiency appearing in patients who had surgery
involving the terminal ileum-a portion of small bowel which is
commonly used in continent urinary diversions. Most of the Vitamin
B12 we ingest is absorbed by the blood vessels in this particular
area of the colon.

Initial symptoms that suggest B12 deficiency include: fatigue,
weakness, numbness, sore tongue, muscle spasms, appetite loss,
weight loss, and forgetfulness.

Over a period of time, Vitamin B12 deficiency can cause some
illnesses, including anemia and neuropathics. A deficiency is easily
corrected by monthly injection in your local physician's office, or
you can be taught to give it at home.

Your Vitamin B12 1evel is checked through a simple blood test. Talk
with your doctor to see if this test is part of your regular and
annual follow-up. If not see to it immediately.

A new product, Nascobal, delivers B12 by nose instead of by needle.
After the blood level has been stabilized by injection therapy, many
people can maintain the proper level of B12 with this intranasal
product.

The odourless, flavourless gel comes in a nasal squeeze bottle. This
convenient, injection-free method delivers a precise 500 mg, once-
weekly dose. It is available by prescription only.

Vitamin B12 blood levels and peripheral blood counts must be
monitored initially at one month after the start of treatment and
then at intervals of 3-6 months. A decline in levels after one month
of treatment may indicate that the dose may need to be adjusted
upward.

There are contraindications for people sensitive to cobalt and/or
B12. Those with a hereditary form of Leber's disease suffered severe
and swift optic atrophy. Beware! Folic acid is not a substitute for
Vitamin B12, and can result in progressive and irreversible
neurologic damage.

#618 From: "Peter Folk" <peter.folk@...>
Date: Sat Sep 6, 2003 2:12 pm
Subject: Re: Vitamin B12
Peterfolk
Offline Offline
Send Email Send Email
 
VITAMIN B12- YOU CAN'T B2 SURE!
Continent Diversons, Shawnee Mission, KS; via Belleville, ON; Metro
Halifax News, March 2001

There have been recent articles in the urology literature about
Vitamin B12 deficiency appearing in patients who had surgery
involving the terminal ileum-a portion of small bowel which is
commonly used in continent urinary diversions. Most of the Vitamin
B12 we ingest is absorbed by the blood vessels in this particular
area of the colon.

Initial symptoms that suggest B12 deficiency include: fatigue,
weakness, numbness, sore tongue, muscle spasms, appetite loss,
weight loss, and forgetfulness.

Over a period of time, Vitamin B12 deficiency can cause some
illnesses, including anemia and neuropathics. A deficiency is easily
corrected by monthly injection in your local physician's office, or
you can be taught to give it at home.

Your Vitamin B12 1evel is checked through a simple blood test. Talk
with your doctor to see if this test is part of your regular and
annual follow-up. If not see to it immediately.

A new product, Nascobal, delivers B12 by nose instead of by needle.
After the blood level has been stabilized by injection therapy, many
people can maintain the proper level of B12 with this intranasal
product.

The odourless, flavourless gel comes in a nasal squeeze bottle. This
convenient, injection-free method delivers a precise 500 mg, once-
weekly dose. It is available by prescription only.

Vitamin B12 blood levels and peripheral blood counts must be
monitored initially at one month after the start of treatment and
then at intervals of 3-6 months. A decline in levels after one month
of treatment may indicate that the dose may need to be adjusted
upward.

There are contraindications for people sensitive to cobalt and/or
B12. Those with a hereditary form of Leber's disease suffered severe
and swift optic atrophy. Beware! Folic acid is not a substitute for
Vitamin B12, and can result in progressive and irreversible
neurologic damage.
?

#617 From: Phoenixorigin <phoenixorigin@...>
Date: Thu Sep 4, 2003 9:42 pm
Subject: Re: [peoples with ostomy2] Re: Vitamin B12
phoenixorigin
Offline Offline
Send Email Send Email
 
Don't feel bad, Carmen.....I've had my ileo since June, '93 and, today, was
awakened to the B12 info. I 2nd ur thanks to all.

Carmen Haltiwanger <sonny2270us@...> wrote:Thanks everyone for this info I
did not know this about the B12 and I've have my ostomy for 13yrs and did not
know maybe thats why I feel bad all the time my doctor didnt tell me this info I
had mine done by a navy doctor and at that time they where just learning this
about ostomys so know when I go to the doctor Monday they can check my level of
B12 again thanks


kajyann <no_reply@yahoogroups.com> wrote:
--- In peopleswithostomy2@yahoogroups.com, "Russ" <trustyruss@y...>
wrote:
> My wife has had an ileostomy since 1989.  Within the past several
> months, she has been diagnosed with a vitamin B12 deficiency.  Does
> anyone know of a possible relationship between the ileo and the
> deficiency?

Hiya
Its funny you should ask that - Ive just had my B12 injection this
morning!!

B12 is only absorbed in part of the terminal ileum, at the end of the
small intestine. If you have that removed, there is no way to absorb
B12 from your food. The body can retain its B12 for quite a long
time, but eventually its stores run out. After that ,you need to have
3 monthly injections to keep up your levels. If you delay it, as I
did this time, you can feel weak and quite ill. I was a week late
getting my jab, and have felt quite grotty - now I'm waiting 24 hrs
or so for the jab to kick in! Its no big deal haivg the injection -
just keep a record of when its due!!!

Hope that helps
Take care
Karen
~~~XXX~~~


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#616 From: Carmen Haltiwanger <sonny2270us@...>
Date: Thu Sep 4, 2003 6:35 pm
Subject: Re: [peoples with ostomy2] Re: Vitamin B12
sonny2270us
Offline Offline
Send Email Send Email
 
Thanks everyone for this info I did not know this about the B12 and I've have my
ostomy for 13yrs and did not know maybe thats why I feel bad all the time my
doctor didnt tell me this info I had mine done by a navy doctor and at that time
they where just learning this about ostomys so know when I go to the doctor
Monday they can check my level of B12 again thanks


kajyann <no_reply@yahoogroups.com> wrote:
--- In peopleswithostomy2@yahoogroups.com, "Russ" <trustyruss@y...>
wrote:
> My wife has had an ileostomy since 1989.  Within the past several
> months, she has been diagnosed with a vitamin B12 deficiency.  Does
> anyone know of a possible relationship between the ileo and the
> deficiency?

Hiya
Its funny you should ask that - Ive just had my B12 injection this
morning!!

B12 is only absorbed in part of the terminal ileum, at the end of the
small intestine. If you have that removed, there is no way to absorb
B12 from your food. The body can retain its B12 for quite a long
time, but eventually its stores run out. After that ,you need to have
3 monthly injections to keep up your levels. If you delay it, as I
did this time, you can feel weak and quite ill. I was a week late
getting my jab, and have felt quite grotty - now I'm waiting 24 hrs
or so for the jab to kick in! Its no big deal haivg the injection -
just keep a record of when its due!!!

Hope that helps
Take care
Karen
~~~XXX~~~


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peopleswithostomy2-unsubscribe@yahoogroups.com



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[Non-text portions of this message have been removed]

#615 From: "debbie Clark" <deblea4d@...>
Date: Thu Sep 4, 2003 1:28 pm
Subject: Re: [peoples with ostomy2] Vitamin B12
debcrd
Offline Offline
Send Email Send Email
 
yes i have had the problem for years...its was due to part of the ileum being
taken out that doesn't produce b12 anymore..very common ...
   ----- Original Message -----
   From: Russ
   To: peopleswithostomy2@yahoogroups.com
   Sent: Thursday, September 04, 2003 9:08 AM
   Subject: [peoples with ostomy2] Vitamin B12


   My wife has had an ileostomy since 1989.  Within the past several
   months, she has been diagnosed with a vitamin B12 deficiency.  Does
   anyone know of a possible relationship between the ileo and the
   deficiency?


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