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#585 From: "Tina K" <Af12dlite@...>
Date: Sun Jul 6, 2003 11:29 pm
Subject: Re: [peoples with ostomy2] ostomy bag tail cleaning
anangelseyes
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Hi Greg

When I used the drainable pouches, I would fold over the tail before fraining. 
Then used a small squirt bottle to squirt water up into the bag, and holdin the
bottom closed, swish the water around and then let it drain.  Thus all the
excess waste drained away.  Then wiped the bottom of the tail, unfolded and
clipped it closed.

A question... is it possible for him to use closed end pouches?  They are much
easier and less messy.  You just pop off and place in a zip lock bag to dispose
of, clean around the stoma and pop a fresh one on.

Hope this helps

Angel hugs

Tina





----- Original Message -----
From: "riverguy_95945" <riverguy_95945@...>
To: <peopleswithostomy2@yahoogroups.com>
Sent: Sunday, July 06, 2003 3:26 PM
Subject: [peoples with ostomy2] ostomy bag tail cleaning


> Hello--
>
> I'm a new caregiver for my father, who at 89, has just had a
> colostomy.
>
> I'm wondering if anyone has some tips for quick and simple cleaning
> of the inside of the bag tail.
> Little pieces of tp or tissue just don't neatly work, so I've taken
> to using cheap tampons as a "cleaning wick" for this purpose. It
> takes three per cleanup with the pastelike consistency that he
> produces.
> Perhaps a better/cheaper solution (I've not yet tried) would be to
> get some of those dental cotton rolls (about 1 1/2" x 5/16"). In
> either case, the tool acts like a big cylindrical q-tip, and twirling
> three of them nicely cleans out the tail without getting waste
> everywhere.
>
> What does anyone else do?
> Thanks in advance,
> Greg
>
>
>
>
> To unsubscribe from this group, send an email to:
> peopleswithostomy2-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>

[Non-text portions of this message have been removed]

#584 From: "D. Greco" <greco1931@...>
Date: Sun Jul 6, 2003 10:23 pm
Subject: Re: [peoples with ostomy2] ostomy bag tail cleaning
aries_70460
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Greg,

Get a small cup and put luke warm water in it and pour it into the bag tail.
Then seal up the tail by holding it and swishing it around for a short
period. This will help loosen the stool from the bag and tail. Then you can
clean it up with TP. I do this when ever my stool is thick. It seems to
help.

Diana
----- Original Message -----
From: "riverguy_95945" <riverguy_95945@...>
To: <peopleswithostomy2@yahoogroups.com>
Sent: Sunday, July 06, 2003 3:26 PM
Subject: [peoples with ostomy2] ostomy bag tail cleaning


> Hello--
>
> I'm a new caregiver for my father, who at 89, has just had a
> colostomy.
>
> I'm wondering if anyone has some tips for quick and simple cleaning
> of the inside of the bag tail.
> Little pieces of tp or tissue just don't neatly work, so I've taken
> to using cheap tampons as a "cleaning wick" for this purpose. It
> takes three per cleanup with the pastelike consistency that he
> produces.
> Perhaps a better/cheaper solution (I've not yet tried) would be to
> get some of those dental cotton rolls (about 1 1/2" x 5/16"). In
> either case, the tool acts like a big cylindrical q-tip, and twirling
> three of them nicely cleans out the tail without getting waste
> everywhere.
>
> What does anyone else do?
> Thanks in advance,
> Greg
>
>
>
>
> To unsubscribe from this group, send an email to:
> peopleswithostomy2-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#583 From: "riverguy_95945" <riverguy_95945@...>
Date: Sun Jul 6, 2003 8:26 pm
Subject: ostomy bag tail cleaning
riverguy_95945
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Hello--

I'm a new caregiver for my father, who at 89, has just had a
colostomy.

I'm wondering if anyone has some tips for quick and simple cleaning
of the inside of the bag tail.
Little pieces of tp or tissue just don't neatly work, so I've taken
to using cheap tampons as a "cleaning wick" for this purpose. It
takes three per cleanup with the pastelike consistency that he
produces.
Perhaps a better/cheaper solution (I've not yet tried) would be to
get some of those dental cotton rolls (about 1 1/2" x 5/16"). In
either case, the tool acts like a big cylindrical q-tip, and twirling
three of them nicely cleans out the tail without getting waste
everywhere.

What does anyone else do?
Thanks in advance,
Greg

#582 From: "debbie Clark" <deblea4d@...>
Date: Sun Jul 6, 2003 2:03 pm
Subject: Re: [peoples with ostomy2] Greetings
debcrd
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have u tried giving him a glass of grape juice? that's what has been said many
times about a blockage so maybe it will work for him too
   ----- Original Message -----
   From: albatrossvoyages
   To: peopleswithostomy2@yahoogroups.com
   Sent: Saturday, July 05, 2003 11:07 PM
   Subject: [peoples with ostomy2] Greetings


   Greetings All,

   I have just joined this group as I am a caregiver for my father-in-
   law who has recently ( May ) undergone surgery for a Colostomy.
   He as a large tumour that the surgeons did not remove as it was too
   far gone they claimed and the cancer has spread.

   Now, I seem to be handling everything, care wise, so far, but his
   stoma has not settled down to a regular pattern and it is worrying
   me.

   Here in Australia it is Sunday 1pm the last time he had a bowel
   motion was Wednseday 8pm.  That's four days ago..

   Now the palliative care nurses tell me that I shouldn't worry just
   yet, but I am.. Something seems wrong.  I have given him coloxyl and
   senna pills to try and help him along but it doesn't seem to be
   working.

   I don't mean to sound whiny, but I could really use some advice from
   someone who actuallys knows rather that from someone who, with the
   best intentions in the world, has their experience from a text book.

   Oh BTW my name is Carol and I live in Wollongong, NSW, Australia..

   Thanks and sorry for the dramatic introduction.. :-)

   Hugs
   Carol


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#581 From: "albatrossvoyages" <storm@...>
Date: Sun Jul 6, 2003 3:07 am
Subject: Greetings
albatrossvoy...
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Greetings All,

I have just joined this group as I am a caregiver for my father-in-
law who has recently ( May ) undergone surgery for a Colostomy.
He as a large tumour that the surgeons did not remove as it was too
far gone they claimed and the cancer has spread.

Now, I seem to be handling everything, care wise, so far, but his
stoma has not settled down to a regular pattern and it is worrying
me.

Here in Australia it is Sunday 1pm the last time he had a bowel
motion was Wednseday 8pm.  That's four days ago..

Now the palliative care nurses tell me that I shouldn't worry just
yet, but I am.. Something seems wrong.  I have given him coloxyl and
senna pills to try and help him along but it doesn't seem to be
working.

I don't mean to sound whiny, but I could really use some advice from
someone who actuallys knows rather that from someone who, with the
best intentions in the world, has their experience from a text book.

Oh BTW my name is Carol and I live in Wollongong, NSW, Australia..

Thanks and sorry for the dramatic introduction.. :-)

Hugs
Carol

#580 From: "Jacy" <atjch@...>
Date: Sat Jul 5, 2003 4:59 pm
Subject: UOA Youth Rally
nursetatanka
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Hi All!!

Welcome to the new members.  Whitney and I are getting ready to go
to Minnesota for the United Ostomy Association Youth Rally.  I will
be leaving
on July 9.  I am going to go see the covered bridges in Madison
County Iowa on my way.  Will take pictures and post when I get home
( if I can work my scanner-heeheeheehee)  .

Take care and Stay Cool!! (literally this time of year!!)

FOBW

Jacy H.

#579 From: Tim Jaquess <phoenixorigin@...>
Date: Wed Jul 2, 2003 2:37 am
Subject: Re: [peoples with ostomy2] Writing an Ileostomy Booklet
phoenixorigin
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Diana...look for email i sent u...will try to help, if i
can..phoenixorigin@...

Diana <greco1931@...> wrote:Hi,

I am in the process of writing an ileostomy booklet, due to the fact
that I had no assistance from anyone in my area. I would like some
feedback, before I finish it and print it out. If anyone would like
to help me I would appreciate it. It is kind of a big file. (67 pages
on Word right now and I am still not done). I would have to send the
file privately to you due to the fact of it's size. You can email me
at greco1931@c... and let me know if you would like to help.

Thank You

Diana



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#578 From: "Allen T & Jacy H" <atjch@...>
Date: Tue Jul 1, 2003 2:48 am
Subject: Re: [peoples with ostomy2] Writing an Ileostomy Booklet
nursetatanka
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Diana,

I would help you but you don't need to send me the file.  I don't have time to
read that many pages right now.  If you have some questions I could answer let
me know.

Jacy
   ----- Original Message -----
   From: Diana
   To: peopleswithostomy2@yahoogroups.com
   Sent: Monday, June 30, 2003 6:33 AM
   Subject: [peoples with ostomy2] Writing an Ileostomy Booklet


   Hi,

   I am in the process of writing an ileostomy booklet, due to the fact
   that I had no assistance from anyone in my area. I would like some
   feedback, before I finish it and print it out. If anyone would like
   to help me I would appreciate it. It is kind of a big file. (67 pages
   on Word right now and I am still not done). I would have to send the
   file privately to you due to the fact of it's size. You can email me
   at greco1931@c... and let me know if you would like to help.

   Thank You

   Diana



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#577 From: "Diana" <greco1931@...>
Date: Mon Jun 30, 2003 11:33 am
Subject: Writing an Ileostomy Booklet
aries_70460
Offline Offline
Send Email Send Email
 
Hi,

I am in the process of writing an ileostomy booklet, due to the fact
that I had no assistance from anyone in my area. I would like some
feedback, before I finish it and print it out. If anyone would like
to help me I would appreciate it. It is kind of a big file. (67 pages
on Word right now and I am still not done). I would have to send the
file privately to you due to the fact of it's size. You can email me
at greco1931@c... and let me know if you would like to help.

Thank You

Diana

#575 From: "Tina K" <Af12dlite@...>
Date: Tue Jun 24, 2003 12:45 am
Subject: Re: [peoples with ostomy2] not so newbie alert
anangelseyes
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I "heard" my name mentioned???  Hummmmm... I think I resemble that remark.

Moi would never say anything true about Dougie. Ooops... I mean untrue.
Hehehe  (but Tina might)  <evil grin>

Bing a woman and uncontrollably tempted to "check out the pic", I went to
the site... Mark had to get me a cool cloth for my head... I almost passed
out from sheer terror.

I do need to ask... How much did you have to pay that beautiful lady to have
her pic taken with you???  ROFLMSUBBBO!!

Ah... you know we love you Dougie.

Angel Hugs

Tina




----- Original Message -----
From: "Tim Jaquess" <phoenixorigin@...>
To: <peopleswithostomy2@yahoogroups.com>
Sent: Monday, June 23, 2003 4:24 PM
Subject: Re: [peoples with ostomy2] not so newbie alert


> hey, doug, i'm tim...u seem like a card...cards r good!!!...i had an
ileostomy in june, '93 but still may have questions for an old
man..lol....just found the site lately, better late than never, huh? take
tare. tim
>
> paranahbait <paranahbait@...> wrote:hi all, my name is Doug, I used
to go by the screen
> name "mrcdug"......I'm a 40 yr old stay-at home dad, i've had an
> iliostomy since 1987, and it's good to be back as part of this
> group. I know what it's like to be a newbie, going thru the "20
> questions" and that dosen't bother me, so if anyone wants to, feel
> free to "fire away"........there is one person in here that knows
> me, Tina {angeleyes}, but don't listen to what she says about me,
> most of what she says is the truth, oops, i mean
> not....lol.......hope to reaquaint myself with some misplaced
> friends......Doug.........P.S.- I posted a pic, so i should warn
> you, not for those with a weak stomach.....lol
>
>
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>
>
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> [Non-text portions of this message have been removed]
>
>
>
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> peopleswithostomy2-unsubscribe@yahoogroups.com
>
>
>
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>
>
>

#574 From: Tim Jaquess <phoenixorigin@...>
Date: Mon Jun 23, 2003 9:24 pm
Subject: Re: [peoples with ostomy2] not so newbie alert
phoenixorigin
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hey, doug, i'm tim...u seem like a card...cards r good!!!...i had an ileostomy
in june, '93 but still may have questions for an old man..lol....just found the
site lately, better late than never, huh? take tare. tim

paranahbait <paranahbait@...> wrote:hi all, my name is Doug, I used to go
by the screen
name "mrcdug"......I'm a 40 yr old stay-at home dad, i've had an
iliostomy since 1987, and it's good to be back as part of this
group. I know what it's like to be a newbie, going thru the "20
questions" and that dosen't bother me, so if anyone wants to, feel
free to "fire away"........there is one person in here that knows
me, Tina {angeleyes}, but don't listen to what she says about me,
most of what she says is the truth, oops, i mean
not....lol.......hope to reaquaint myself with some misplaced
friends......Doug.........P.S.- I posted a pic, so i should warn
you, not for those with a weak stomach.....lol


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#573 From: "paranahbait" <paranahbait@...>
Date: Sat Jun 21, 2003 11:18 am
Subject: not so newbie alert
paranahbait
Offline Offline
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hi all, my name is Doug, I used to go by the screen
name "mrcdug"......I'm a 40 yr old stay-at home dad, i've had an
iliostomy since 1987, and it's good to be back as part of this
group. I know what it's like to be a newbie, going thru the "20
questions" and that dosen't bother me, so if anyone wants to, feel
free to "fire away"........there is one person in here that knows
me, Tina {angeleyes}, but don't listen to what she says about me,
most of what she says is the truth, oops, i mean
not....lol.......hope to reaquaint myself with some misplaced
friends......Doug.........P.S.- I posted a pic, so i should warn
you, not for those with a weak stomach.....lol

#572 From: mrcdug
Date: Fri Jun 20, 2003 8:38 am
Subject: holy cow........
mrcdug
Offline Offline
 
i almost forgot how to post in here, it's been way too
long...although i have stayed in touch with one of the members from
the days i used to come in here {Tina-aka,angeleyes, if she still
uses that name} i did lose contact with a few other freinds i made
in here. just to remind those that might have forgotten , I'm 40 yrs
old, i've had an iliostomy since 1987, due to crones {i know i
spelled that wrong, i always do....maybe it's a mental block} i'm a
stay at home dad to 3 brats that keep me busier than i like, and i
used to be an active member in this group as well as ostomates. i
always liked this group better of the 2, because it was easier to
get a word in edgewise...lol......and on a personal note to jacy,
it's good to hear that bill w is a freind of yours, i met him in
july of '95, and he helped me save my own life.........i hope this
group picks up it's activity again, i sure do miss chatting with all
the nuts...........talk soon, Doug

#571 From: "Jacy" <atjch@...>
Date: Fri Jun 20, 2003 12:45 am
Subject: Welcome, Welcome, Welcome!!!!!!
nursetatanka
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It is so nice to see some new members.  I am Jacy, and I have an
ileostomy.  That is me on the left in the picture.  Whitney is on
the right.  We met face to face last summer at the UOA Youth Rally
in Boulder, CO , and that is where the picture was taken.  Whitney
and I will be meeting again this summer in Minnesota. This site
sort of became "abandoned" due to the problems we were having with
the chat tools.  I haven't been to a Monday night chat in about a
year.  You all are more than welcome to try it and see how it works
now.  If you would like to chat with other ostomates, there is a
chat on Wednesday nites at:
http://groups.msn.com/OstomatesSupport
  There is also a chat on Saturday afternoons at:
http://www.ostomates.org/
and a chat on Tuesday nites at:
http://www.stuartonline.com/

We are glad you are here, esp. newcomers.  I have had a friend for
the last 15 months named Bill W.  I have never met another ostomate
with this same friend.  If you have this same friend, you could
email me at atjch@...     If you all decide to try out the
chat here on Monday nite, I will try to drop in.

Hugs to all.  Stay cool, one day at a time.

Jacy

#570 From: Tim Jaquess <phoenixorigin@...>
Date: Thu Jun 19, 2003 1:07 pm
Subject: Re: [peoples with ostomy2] Looking for new friends
phoenixorigin
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Hi, Nancy...i am new to the group. my name is tim...49 yr old..have had
ileostomy for 10 yrs.(cuz of ulcerative colitis) never had chrone's but can
sympathize with ur constant battle with flare-ups & general lifestyle that
accompanies digestive disease..as can we all. this group seems to be good place
to meet folks as well as links from the United Ostomy Assn homepage. hang in
there. tim

tygrlilie2003 <TygrLilie@...> wrote:Hello,
      my name is Nancy and I am a 27yr. old swf with Crohn's Disease
and a permanent Colostomy.  I was diagnosed with Crohn's when I was
15, and since then my life has been quite difficult. So far I've had
13 Crohn's related surgeries and the removal of an infected porta-
cathe. It's been very hard for me to find new friends and especially
hard for me to date since I've had my Colostomy. I am really
interested in meeting new people that have Crohn's in the South
Florida area, I think it would help me to have friends that
understand what it's like to live with such a difficult and sometimes
very painful disease.


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#569 From: "mianbaomb" <mianbaomb@...>
Date: Thu Jun 19, 2003 6:53 am
Subject: Are you a military single or admirer?If you are,please check this out!
mianbaomb
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#568 From: kristie tanski <klt_30@...>
Date: Thu Jun 19, 2003 2:33 am
Subject: Re: [peoples with ostomy2] Looking for new friends
klt_30
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hi , i have a urostomy and colostomy . i do not know any one who has one (or
both) , and i am looking for new friends ,. i have had my osotmy's since age 9 ,
i am now 33 ,. i live in pennsylvania . anyone wish to  talk , please feel free
. ty .

Bifida affection <abbeytessawaldo@...> wrote:Hi Nancy,
      I am relatively new to the group too. My name is Dawn and I am thirty six
years old.  I have an ileostomy.  I have Spina Bifida too.  It is nice to see
another new perons here.  Welcome. Sincerely, Dawn

tygrlilie2003 <TygrLilie@...> wrote:
Hello,
      my name is Nancy and I am a 27yr. old swf with Crohn's Disease
and a permanent Colostomy.  I was diagnosed with Crohn's when I was
15, and since then my life has been quite difficult. So far I've had
13 Crohn's related surgeries and the removal of an infected porta-
cathe. It's been very hard for me to find new friends and especially
hard for me to date since I've had my Colostomy. I am really
interested in meeting new people that have Crohn's in the South
Florida area, I think it would help me to have friends that
understand what it's like to live with such a difficult and sometimes
very painful disease.


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#567 From: Bifida affection <abbeytessawaldo@...>
Date: Thu Jun 19, 2003 12:58 am
Subject: Re: [peoples with ostomy2] Looking for new friends
abbeytessawaldo
Online Now Online Now
Send Email Send Email
 
Hi Nancy,
      I am relatively new to the group too. My name is Dawn and I am thirty six
years old.  I have an ileostomy.  I have Spina Bifida too.  It is nice to see
another new perons here.  Welcome. Sincerely, Dawn

tygrlilie2003 <TygrLilie@...> wrote:
Hello,
      my name is Nancy and I am a 27yr. old swf with Crohn's Disease
and a permanent Colostomy.  I was diagnosed with Crohn's when I was
15, and since then my life has been quite difficult. So far I've had
13 Crohn's related surgeries and the removal of an infected porta-
cathe. It's been very hard for me to find new friends and especially
hard for me to date since I've had my Colostomy. I am really
interested in meeting new people that have Crohn's in the South
Florida area, I think it would help me to have friends that
understand what it's like to live with such a difficult and sometimes
very painful disease.


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#566 From: "debcrd" <deblea4d@...>
Date: Wed Jun 18, 2003 8:07 pm
Subject: Re: Looking for new friends
debcrd
Offline Offline
Send Email Send Email
 
Hi,

I too am from new york
i found talking to people in support groups a great help
I have made a few friends on yahoo with ostomy's that we can laugh
and have fun talking on here with..
Keep up with groups on here..support on here and emails or yahoo chat
keeps your mind busy and off your problems..cause there is always
someone else worse off..so i keep that in mind and keep a positive
attitude
I had crohns since i was probably 15 they think so its been many many
years..mised events..accidents to embarrass...and a marriage it cost
me
i am now married have had an ostomy surgery last october have been on
a cruise..on a car ride for more then 30 mins with out a potty
stop..life does get alot better and yes there are days not as
good..but more and more are getting better...

Debbie i am usually on line 24/7 and do emails alot..i am a retired
stay at home person now..and loving doing what i want and when i
want...and not living in a bathroom..


--- In peopleswithostomy2@yahoogroups.com, "tygrlilie2003"
<TygrLilie@a...> wrote:
> Hello,
>      my name is Nancy and I am a 27yr. old swf with Crohn's Disease
> and a permanent Colostomy.  I was diagnosed with Crohn's when I was
> 15, and since then my life has been quite difficult. So far I've
had
> 13 Crohn's related surgeries and the removal of an infected porta-
> cathe. It's been very hard for me to find new friends and
especially
> hard for me to date since I've had my Colostomy. I am really
> interested in meeting new people that have Crohn's in the South
> Florida area, I think it would help me to have friends that
> understand what it's like to live with such a difficult and
sometimes
> very painful disease.

#565 From: claritza martinez <candygrl1luv@...>
Date: Wed Jun 18, 2003 7:52 pm
Subject: Re: [peoples with ostomy2] Looking for new friends
candygrl1luv
Offline Offline
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hi nancy i know how you feel trust me but as long as you have a good support
system things seem a lot easier hopefully you get responses from florida i live
in new york if you ever want to talk i am here.

tygrlilie2003 <TygrLilie@...> wrote:Hello,
      my name is Nancy and I am a 27yr. old swf with Crohn's Disease
and a permanent Colostomy.  I was diagnosed with Crohn's when I was
15, and since then my life has been quite difficult. So far I've had
13 Crohn's related surgeries and the removal of an infected porta-
cathe. It's been very hard for me to find new friends and especially
hard for me to date since I've had my Colostomy. I am really
interested in meeting new people that have Crohn's in the South
Florida area, I think it would help me to have friends that
understand what it's like to live with such a difficult and sometimes
very painful disease.


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#564 From: "tygrlilie2003" <TygrLilie@...>
Date: Wed Jun 18, 2003 2:49 am
Subject: Looking for new friends
tygrlilie2003
Offline Offline
Send Email Send Email
 
Hello,
      my name is Nancy and I am a 27yr. old swf with Crohn's Disease
and a permanent Colostomy.  I was diagnosed with Crohn's when I was
15, and since then my life has been quite difficult. So far I've had
13 Crohn's related surgeries and the removal of an infected porta-
cathe. It's been very hard for me to find new friends and especially
hard for me to date since I've had my Colostomy. I am really
interested in meeting new people that have Crohn's in the South
Florida area, I think it would help me to have friends that
understand what it's like to live with such a difficult and sometimes
very painful disease.

#563 From: "D. Greco" <greco1931@...>
Date: Sat Jun 14, 2003 4:00 am
Subject: Re: [peoples with ostomy2] dealing with ostomys
aries_70460
Offline Offline
Send Email Send Email
 
Claritza,

Hi, I am currently on disability and also Medicaid. It takes a while to get
the disability. But it can be done. I also have Crohn's and have been
disabled for 3 years now. Just recently had my 3 surgery in a period of 1
year, so my doctor does not want me to work yet. If you have any questions
on what helped me email me privately and I will discuss it with you.
Diana
greco1931@...



----- Original Message -----
From: "candygrl1luv" <candygrl1luv@...>
To: <peopleswithostomy2@yahoogroups.com>
Sent: Friday, June 13, 2003 10:10 PM
Subject: [peoples with ostomy2] dealing with ostomys


> i have a question regarding insurance i am applying for medicaide
> because i have no health coverage people tell me to apply also for
> disability ins does anyone have it i have had chrones since i was
> fifteen and i am now 22 and i need help with this matter its
> expensive and since i am not in school i got cut off the insurance but
> my chrones acts up and i cant continue with school when i am in the
> hospital i am to scared to start. any advice on managing all these
> problems i think this desease has taken a toll on my life i just want
> to feel normal again thank you in advance for all your help claritza
>
>
>
> To unsubscribe from this group, send an email to:
> peopleswithostomy2-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#562 From: gjimai@...
Date: Fri Jun 13, 2003 11:19 pm
Subject: Re: [peoples with ostomy2] dealing with ostomys
gjimai
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Candy,
I would suggest that you check  uoa.com   and locate a local Ostomy Support
Group.  I am sure that you should be able to obtain some help and advice how to
contact help.
George


[Non-text portions of this message have been removed]

#561 From: "candygrl1luv" <candygrl1luv@...>
Date: Sat Jun 14, 2003 3:10 am
Subject: dealing with ostomys
candygrl1luv
Offline Offline
Send Email Send Email
 
i have a question regarding insurance i am applying for medicaide
because i have no health coverage people tell me to apply also for
disability ins does anyone have it i have had chrones since i was
fifteen and i am now 22 and i need help with this matter its
expensive and since i am not in school i got cut off the insurance but
my chrones acts up and i cant continue with school when i am in the
hospital i am to scared to start. any advice on managing all these
problems i think this desease has taken a toll on my life i just want
to feel normal again thank you in advance for all your help claritza

#560 From: Bifida affection <abbeytessawaldo@...>
Date: Thu Jun 12, 2003 5:19 pm
Subject: Re: [peoples with ostomy2] (unknown)
abbeytessawaldo
Online Now Online Now
Send Email Send Email
 
Hi Debbie,
      Thank you very much for all of this information.  My Urologist told me that
all my kidney stones are formed by infections. He did a twenty four hour urine
stone profile about two months ago, and showed no matter what I eat and drink,
this is not going to change.  He does tell me to drink as much water as I can
but, has said nothing about the Calcium as this is obvioiusly not my problem
YET.  I am sorry you have had to endure all of this too.  Since I am completely
paralyzed and unable to pass these stones myself, my doctor has to perform a
major operation to go into the kidney to get the stone or stones. That is why I
have had twenty operations to date.  Not all of them have been on the kidney but
quite a few have. Anyway, thank you so much for trying to help me.  I hope you
have a very pleasant day.   Sincerely, Dawn

debbie Clark <deblea4d@...> wrote:
Dawn i have had kidney stones for years due to crohns diease for over 30
yrs..all i'm ever told is don't drink dairy with milk they form faster doing
that..and drink drink drink drink...i even tried the calcuim magnesium citrate
which is suppose to make the stones form in the tubes not the kidneys..no luck
there..so the er knows me well with my stones.since i can't seem to pass them
with out an iv/pain meds..pills just don't work anymore...
   ----- Original Message -----
   From: Bifida affection
   To: peopleswithostomy2@yahoogroups.com
   Sent: Thursday, June 12, 2003 1:00 PM
   Subject: Re: [peoples with ostomy2] (unknown)


   Hi CRobin,
         Thank you for the welcome.  I have had my ostomy for many years.  I am
almost thirty seven years old and I have had my ostomy since I was four.  The
only real issue I have with it at the moment is my urologist says that I am
getting a lot of kidney infections due to having an ostomy.  There is nothing
that can be done about this as I cannot be hooked up the regular way again.  I
just asked him one day in his office, why did he think, I was getting so many
infection and subsequent kidney stones because of the infections and this is
what he said. That is one reason why I joined this group.  I wanted to see if
anyone else was going through the same issues as I am.  Anyway, other than that
I thank God for my ostomy.  It saved my life.  Thanks again for the welcome.
Sincerely, Dawn

   CRobin8681@... wrote:
   Dawn;

   welcome to the world of having made a transistion(ostomy), how long have you
   had your ostomy ? I am now approaching my third year and have almost adjusted
   to the reality that it is there. I hope your adjustment went well or is going
   well, at any rate, hang on in there.

   CRobin


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#559 From: "debbie Clark" <deblea4d@...>
Date: Thu Jun 12, 2003 5:05 pm
Subject: Re: [peoples with ostomy2] (unknown)
debcrd
Offline Offline
Send Email Send Email
 
Dawn i have had kidney stones for years due to crohns diease for over 30
yrs..all i'm ever told is don't drink dairy with milk they form faster doing
that..and drink drink drink drink...i even tried the calcuim magnesium citrate
which is suppose to make the stones form in the tubes not the kidneys..no luck
there..so the er knows me well with my stones.since i can't seem to pass them
with out an iv/pain meds..pills just don't work anymore...
   ----- Original Message -----
   From: Bifida affection
   To: peopleswithostomy2@yahoogroups.com
   Sent: Thursday, June 12, 2003 1:00 PM
   Subject: Re: [peoples with ostomy2] (unknown)


   Hi CRobin,
         Thank you for the welcome.  I have had my ostomy for many years.  I am
almost thirty seven years old and I have had my ostomy since I was four.  The
only real issue I have with it at the moment is my urologist says that I am
getting a lot of kidney infections due to having an ostomy.  There is nothing
that can be done about this as I cannot be hooked up the regular way again.  I
just asked him one day in his office, why did he think, I was getting so many
infection and subsequent kidney stones because of the infections and this is
what he said. That is one reason why I joined this group.  I wanted to see if
anyone else was going through the same issues as I am.  Anyway, other than that
I thank God for my ostomy.  It saved my life.  Thanks again for the welcome.
Sincerely, Dawn

   CRobin8681@... wrote:
   Dawn;

   welcome to the world of having made a transistion(ostomy), how long have you
   had your ostomy ? I am now approaching my third year and have almost adjusted
   to the reality that it is there. I hope your adjustment went well or is going
   well, at any rate, hang on in there.

   CRobin


   [Non-text portions of this message have been removed]


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#558 From: Bifida affection <abbeytessawaldo@...>
Date: Thu Jun 12, 2003 5:00 pm
Subject: Re: [peoples with ostomy2] (unknown)
abbeytessawaldo
Online Now Online Now
Send Email Send Email
 
Hi CRobin,
       Thank you for the welcome.  I have had my ostomy for many years.  I am
almost thirty seven years old and I have had my ostomy since I was four.  The
only real issue I have with it at the moment is my urologist says that I am
getting a lot of kidney infections due to having an ostomy.  There is nothing
that can be done about this as I cannot be hooked up the regular way again.  I
just asked him one day in his office, why did he think, I was getting so many
infection and subsequent kidney stones because of the infections and this is
what he said. That is one reason why I joined this group.  I wanted to see if
anyone else was going through the same issues as I am.  Anyway, other than that
I thank God for my ostomy.  It saved my life.  Thanks again for the welcome.
Sincerely, Dawn

CRobin8681@... wrote:
Dawn;

welcome to the world of having made a transistion(ostomy), how long have you
had your ostomy ? I am now approaching my third year and have almost adjusted
to the reality that it is there. I hope your adjustment went well or is going
well, at any rate, hang on in there.

CRobin


[Non-text portions of this message have been removed]


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#557 From: CRobin8681@...
Date: Thu Jun 12, 2003 12:53 am
Subject: Re: [peoples with ostomy2] (unknown)
spotmydog2003
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Dawn;

welcome to the world of having made a transistion(ostomy), how long have you
had your ostomy ? I am now approaching my third year and have almost adjusted
to the reality that it is there. I hope your adjustment went well or is going
well, at any rate, hang on in there.

CRobin


[Non-text portions of this message have been removed]

#556 From: Bifida affection <abbeytessawaldo@...>
Date: Wed Jun 11, 2003 9:29 pm
Subject: (No subject)
abbeytessawaldo
Online Now Online Now
Send Email Send Email
 
Hi everyone,
      Thank you for allowing me into the group.  I have an illeostomy.  I also
have Spina Bifida, Hydrocephalous and Arnold Chairi Malformation. I joined this
group to meet other people in the same situation I am in, in the hopes we can
help each other.  Thank you again for allowing me into the group. Oh, by the
way, my screen name is AbbeyTessaWaldo. These are the names of three of five of
my animals. My animals are my life. I have three dogs, a cat and a fish.  I hope
to talk to you soon.  Sincerely, Dawn


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#555 From: Bifida affection <abbeytessawaldo@...>
Date: Wed Jun 11, 2003 9:21 pm
Subject: (No subject)
abbeytessawaldo
Online Now Online Now
Send Email Send Email
 
Hi everyone,
      Thank you so much for allowing me in the group.  My name is Dawn.  I have
an illeostomy.  I also have Spina Bifida, Hydrocephalous and Arnold Chairi
Malformation.  My screen name is AbbeyTessaWaldo.  Those names are the names of
three of my five animals.  I have three dogs, one cat and a fish.  I joined this
group to be able to make new friends and to see how other people are handling
this situation with the ostomy and to see if I can be able to help others.
Again, thank you for allowing me in the group. Sincerely, Dawn


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