hi all,
im lisa and i have crohns, fistullas ans abcess and this is why i got
my temp colostomy...
but i just saw my surgeon today and i have  to go back to hospital on
tuesday... as he thinks i have  more fistullas   ...god how many more
can i get...lol
i also have a hernia on my stoma and  he wants do a ct scan on
it ..so im a bit nervous
hope all is well and i hope to meet  you soon
lisa

Hello All,

My name is Diana and I have Crohn's Disease for he last 10 years. Due
to my Crohn's I recently (January 2003) had to have an ileostomy.
This was due to medication not working to control the Crohn's.

Before the ileostomy I had to have 2 previous surgeries. One to
remove part of the ileum and another to remove the entire large
intestine. All of this happened in a space of 1 year. Had part of the
ileum removed in November of 2001, the in March of 2002 the large
intestine was removed, then the ileostomy was done in January of 2003.

I am doing much better now. It is such a relief that I do not have to
always run into the bathroom all the time now. Now all I do is empty
a bag 5-7 times a day. Boy that is much better than the 30 times a
day that I was in the bathroom.

Diana

You can go to the convatec website and get a free sample of an Eakin Seal.  They
saved my life.  http://www.convatec.com/
Good Luck,

Jacy
   ----- Original Message -----
   From: James G. Barnes
   To: peopleswithostomy2@yahoogroups.com
   Sent: Wednesday, April 16, 2003 10:34 PM
   Subject: RE: [peoples with ostomy2] Re: Question


   Hi -

   Thanks for the help...what is the eakin seal? and where do you get that? I
   use Convatec already, so switching to another style would be easy...you say
   you go 7 days...that's with the barrier...right? and then you change the
   closed end pouch when needed?

   I've noticed everything seems to behave better for me in public than it does
   at home, almost like my body knows when it needs to be more discreet?

   And, most of my clothes are one to two sizes too big for me because I lost a
   lot of weight in the hospital, so I just look like I have on baggy clothes
   (because I do)

   James :)
     -----Original Message-----
     From: anangelseyes [mailto:no_reply@yahoogroups.com]
     Sent: Wednesday, April 16, 2003 11:25 PM
     To: peopleswithostomy2@yahoogroups.com
     Subject: [peoples with ostomy2] Re: Question


     Hi James

     1.  Relax

     2.  I recommend the closed end pouches - much easier and less messy.
     Just keep some zip lock bags with you to dispose of the used pouch
     in. I also empty the pouch before putting it in the baggie - less
     chance of explosion. LOL

     3.  Relax

     4.  Definitely use the 2-piece system - easier on the skin - less
     changing of complete barrier.  I generall go 7 days - have gone as
     long as 20.  I also use the eakin seal under my barrier.  I use the
     ConvaTec Natura System.

     5.  Relax

     I have no problems at work - in fact, I have to check occasionally
     as I don't feel anything and sometimes the pouch can fill up and I'm
     a bit lop-sided.  LOL  Not too noticeable for me though as I work in
     a lab and can wear scrubs which generally fit looser than most
     clothing.

     Good luck and Be well.

     Hope all are having a Great Week!!

     Angel hugs

     Tina

     --- In peopleswithostomy2@yahoogroups.com, "netsurfergroup"
     <garrisonclark@y...> wrote:
     > Hi There -
     >
     > Could anyone and everyone who has any ideas please reply?  I am
     > about to start working again (hopefully) and need any and all tips
     > on how to handle a colostomy in the workplace?  For instance, I
     > would like to be able to find a folding cup that I can keep in my
     > pocket for when I need to rinse things out?  And, I am going crazy
     > trying to find out squeeze bottles like the one I got from the
     > hospital...does anyone have any suggestions?
     >
     > OR...does anyone think closed end pouches are a better way to go?
     > What do you think of the two-piece systems also?  I notice that my
     > regular pouch starts to come lose early into the 3rd day...which
     > seems to mean I am changing things out totally very often...maybe
     > that's just me...
     >
     > Anyway, if anyone has helpful suggestions, please feel free to
     send
     > them?
     >
     > Thanks
     > James


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   [Non-text portions of this message have been removed]


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               ADVERTISEMENT




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[Non-text portions of this message have been removed]

The Eakin Seal is made by ConvaTec and is placed directly around the
stoma under the barrier. It is used in place of stomahesive paste
and helps keep skin from becoming raw from any seeping of waste.  It
also helps if there are any indentations or strange shaping of the
skin around the stoma to help the barrier fit better.

Yes - I wear the barrier about 7 days and since I have an Ileostomy,
I change pouches anywhere from 4 to 7 times a day. It depends on
what I consume. Veggies/fruits, pasta go through my system faster
and more waste comes out - meats - less waste and slower output. I
use tissue and a Q-tip to clean around the inside of the barrier and
directly around the stoma.

One reason you may only get about three days wear time is the water -
  it will tend to break down the barrier seal.  I had that when I
used a drainable pouch and cleaned it out with water. Since I went
to the closed end pouch, I have better wear time, less mess, quicker
bathroom times, etc.

What kind of work do you do and where do you live? How long ago did
you have your surgery?

You can email me direct also at Af12dlite@...

Angel hugs

Tina


--- In peopleswithostomy2@yahoogroups.com, "James G. Barnes"
<jgbarnes@g...> wrote:
> Hi -
>
> Thanks for the help...what is the eakin seal? and where do you get
that? I
> use Convatec already, so switching to another style would be
easy...you say
> you go 7 days...that's with the barrier...right? and then you
change the
> closed end pouch when needed?
>
> I've noticed everything seems to behave better for me in public
than it does
> at home, almost like my body knows when it needs to be more
discreet?
>
> And, most of my clothes are one to two sizes too big for me
because I lost a
> lot of weight in the hospital, so I just look like I have on baggy
clothes
> (because I do)
>
> James :)
>   -----Original Message-----
>   From: anangelseyes [mailto:no_reply@yahoogroups.com]
>   Sent: Wednesday, April 16, 2003 11:25 PM
>   To: peopleswithostomy2@yahoogroups.com
>   Subject: [peoples with ostomy2] Re: Question
>
>
>   Hi James
>
>   1.  Relax
>
>   2.  I recommend the closed end pouches - much easier and less
messy.
>   Just keep some zip lock bags with you to dispose of the used
pouch
>   in. I also empty the pouch before putting it in the baggie - less
>   chance of explosion. LOL
>
>   3.  Relax
>
>   4.  Definitely use the 2-piece system - easier on the skin - less
>   changing of complete barrier.  I generall go 7 days - have gone
as
>   long as 20.  I also use the eakin seal under my barrier.  I use
the
>   ConvaTec Natura System.
>
>   5.  Relax
>
>   I have no problems at work - in fact, I have to check
occasionally
>   as I don't feel anything and sometimes the pouch can fill up and
I'm
>   a bit lop-sided.  LOL  Not too noticeable for me though as I
work in
>   a lab and can wear scrubs which generally fit looser than most
>   clothing.
>
>   Good luck and Be well.
>
>   Hope all are having a Great Week!!
>
>   Angel hugs
>
>   Tina
>
>   --- In peopleswithostomy2@yahoogroups.com, "netsurfergroup"
>   <garrisonclark@y...> wrote:
>   > Hi There -
>   >
>   > Could anyone and everyone who has any ideas please reply?  I am
>   > about to start working again (hopefully) and need any and all
tips
>   > on how to handle a colostomy in the workplace?  For instance, I
>   > would like to be able to find a folding cup that I can keep in
my
>   > pocket for when I need to rinse things out?  And, I am going
crazy
>   > trying to find out squeeze bottles like the one I got from the
>   > hospital...does anyone have any suggestions?
>   >
>   > OR...does anyone think closed end pouches are a better way to
go?
>   > What do you think of the two-piece systems also?  I notice
that my
>   > regular pouch starts to come lose early into the 3rd
day...which
>   > seems to mean I am changing things out totally very
often...maybe
>   > that's just me...
>   >
>   > Anyway, if anyone has helpful suggestions, please feel free to
>   send
>   > them?
>   >
>   > Thanks
>   > James
>
>
>         Yahoo! Groups Sponsor
>
>
>
>   To unsubscribe from this group, send an email to:
>   peopleswithostomy2-unsubscribe@yahoogroups.com
>
>
>
>   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> [Non-text portions of this message have been removed]

Hi -

Thanks for the help...what is the eakin seal? and where do you get that? I
use Convatec already, so switching to another style would be easy...you say
you go 7 days...that's with the barrier...right? and then you change the
closed end pouch when needed?

I've noticed everything seems to behave better for me in public than it does
at home, almost like my body knows when it needs to be more discreet?

And, most of my clothes are one to two sizes too big for me because I lost a
lot of weight in the hospital, so I just look like I have on baggy clothes
(because I do)

James :)
   -----Original Message-----
   From: anangelseyes [mailto:no_reply@yahoogroups.com]
   Sent: Wednesday, April 16, 2003 11:25 PM
   To: peopleswithostomy2@yahoogroups.com
   Subject: [peoples with ostomy2] Re: Question


   Hi James

   1.  Relax

   2.  I recommend the closed end pouches - much easier and less messy.
   Just keep some zip lock bags with you to dispose of the used pouch
   in. I also empty the pouch before putting it in the baggie - less
   chance of explosion. LOL

   3.  Relax

   4.  Definitely use the 2-piece system - easier on the skin - less
   changing of complete barrier.  I generall go 7 days - have gone as
   long as 20.  I also use the eakin seal under my barrier.  I use the
   ConvaTec Natura System.

   5.  Relax

   I have no problems at work - in fact, I have to check occasionally
   as I don't feel anything and sometimes the pouch can fill up and I'm
   a bit lop-sided.  LOL  Not too noticeable for me though as I work in
   a lab and can wear scrubs which generally fit looser than most
   clothing.

   Good luck and Be well.

   Hope all are having a Great Week!!

   Angel hugs

   Tina

   --- In peopleswithostomy2@yahoogroups.com, "netsurfergroup"
   <garrisonclark@y...> wrote:
   > Hi There -
   >
   > Could anyone and everyone who has any ideas please reply?  I am
   > about to start working again (hopefully) and need any and all tips
   > on how to handle a colostomy in the workplace?  For instance, I
   > would like to be able to find a folding cup that I can keep in my
   > pocket for when I need to rinse things out?  And, I am going crazy
   > trying to find out squeeze bottles like the one I got from the
   > hospital...does anyone have any suggestions?
   >
   > OR...does anyone think closed end pouches are a better way to go?
   > What do you think of the two-piece systems also?  I notice that my
   > regular pouch starts to come lose early into the 3rd day...which
   > seems to mean I am changing things out totally very often...maybe
   > that's just me...
   >
   > Anyway, if anyone has helpful suggestions, please feel free to
   send
   > them?
   >
   > Thanks
   > James


         Yahoo! Groups Sponsor



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   peopleswithostomy2-unsubscribe@yahoogroups.com



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[Non-text portions of this message have been removed]

Hi James

1.  Relax

2.  I recommend the closed end pouches - much easier and less messy.
Just keep some zip lock bags with you to dispose of the used pouch
in. I also empty the pouch before putting it in the baggie - less
chance of explosion. LOL

3.  Relax

4.  Definitely use the 2-piece system - easier on the skin - less
changing of complete barrier.  I generall go 7 days - have gone as
long as 20.  I also use the eakin seal under my barrier.  I use the
ConvaTec Natura System.

5.  Relax

I have no problems at work - in fact, I have to check occasionally
as I don't feel anything and sometimes the pouch can fill up and I'm
a bit lop-sided.  LOL  Not too noticeable for me though as I work in
a lab and can wear scrubs which generally fit looser than most
clothing.

Good luck and Be well.

Hope all are having a Great Week!!

Angel hugs

Tina

--- In peopleswithostomy2@yahoogroups.com, "netsurfergroup"
<garrisonclark@y...> wrote:
> Hi There -
>
> Could anyone and everyone who has any ideas please reply?  I am
> about to start working again (hopefully) and need any and all tips
> on how to handle a colostomy in the workplace?  For instance, I
> would like to be able to find a folding cup that I can keep in my
> pocket for when I need to rinse things out?  And, I am going crazy
> trying to find out squeeze bottles like the one I got from the
> hospital...does anyone have any suggestions?
>
> OR...does anyone think closed end pouches are a better way to go?
> What do you think of the two-piece systems also?  I notice that my
> regular pouch starts to come lose early into the 3rd day...which
> seems to mean I am changing things out totally very often...maybe
> that's just me...
>
> Anyway, if anyone has helpful suggestions, please feel free to
send
> them?
>
> Thanks
> James

James,
I started out with a one piece system and have found them to work out real
good.  I started out with the Hollister one piece but was made aware of the
Colplast one piece that uses a self contained Velcro closer.  This has worked
out real good since you do not have to worry about droping the plastic clip
and I have found that the Velcro is much more comfortable due to it being
flexible and does not dig in like the plastic clip.  I also make use of and
Elkin seal.  My usual wear time is 7 to 10 days.  I am active and ride my
bicycle 30-40 miles several times a week and the exercise does not seem to
effect the wear time.  Colplast is located in Atlanta Georga 1-800-788-0293.
George Irwin


[Non-text portions of this message have been removed]

Hi There -

Could anyone and everyone who has any ideas please reply?  I am
about to start working again (hopefully) and need any and all tips
on how to handle a colostomy in the workplace?  For instance, I
would like to be able to find a folding cup that I can keep in my
pocket for when I need to rinse things out?  And, I am going crazy
trying to find out squeeze bottles like the one I got from the
hospital...does anyone have any suggestions?

OR...does anyone think closed end pouches are a better way to go?
What do you think of the two-piece systems also?  I notice that my
regular pouch starts to come lose early into the 3rd day...which
seems to mean I am changing things out totally very often...maybe
that's just me...

Anyway, if anyone has helpful suggestions, please feel free to send
them?

Thanks
James

2003 UOA YOUTH RALLY

Make plans NOW to join us in July on the campus of the University of
St. Thomas in St. Paul, Minnesota, USA

The United Ostomy Association's Youth Rally is a national five-day
mini-camp held each year at a different location through out the
United States. The UOA Youth Rally provides the opportunity for 11 to
17 year-olds to be with others their own age, who have (or will have)
ostomy or alternative surgical procedures. In July of 2002, 99
campers from over 30 US States attended as well as attendees from
Canada, came together for 5 days in Boulder, Colorado, on the campus
of the University of Colorado.

2003 UOA Youth Rally
University of Saint Thomas
Saint Paul, Minnesota, USA
Saturday, July 12 through Wednesday, July 16, 2003
Web site: http://www.uoa.org/events_youth.htm

2003 UOA Youth Rally Application:
http://www.uoa.org/new/files/camprapp.pdf
Camper Application Deadline: June 1, 2003

2003 UOA Youth Rally site: University of Saint Thomas
http://www.stthomas.edu/

Pictures from 2002 UOA Youth Rally, in Boulder, Colorado, USA
http://hometown.aol.com/uoayoungadults/uoayrpics.html

Wanted:
Young people ages 11 to 17 who have (or may have) an ostomy
(colostomy, ileostomy, urostomy), Continent ostomy (J-Pouch, BCIR,
Kock Pouch, Indiana Pouch, Mitrofanoff, etc.), use self-
cathererization, are incontinent, have an alternative procedure, or
inflammatory bowel disease (IBD) (Crohn's disease, ulcerative colitis)

Activities:
* Educational sessions on personal hygiene, sexuality, self-esteem,
self-care
* Formal and informal discussion groups
* Swimming, softball, volleyball, skating and other sports
* Dances, picnics, crafts, sightseeing, hiking, outings and other
recreational activities
* Peer support and sharing

Fees:
$300 per person – includes room and board,
Transportation to and from Minneapolis / St. Paul International
Airport.
(Some special activities may require an additional admission fee.)

Staff:
ET Nurses (specialist in ostomy care)
UOA Counselors (One for every five youths)
Psychology counselor for the camp

For more information:
Please contact The United Ostomy Association, 19772 MacArthur Blvd.,
Suite 200, Irvine, CA 92612 or call toll-free 1-800-826-0826 or go to
the following web site: http://www.uoa.org

Camper Application Deadline: June 1, 2003

Please note:
For more Information on how to sponsor a camper, and / or an event at
the UOA Youth Rally, please contact the The United Ostomy Association
through the above address or call toll-free at 1-800-826-0826

2003 UOA Young Adult Conference

Join us in St. Paul, MN, USA for the 2003 UOA Young Adult Conference.
www.uoa.org/events_yan.htm

How about joining us this summer to network with other young adults
in a face-to-face gathering?

We are inviting you to attend the first-ever UOA Young Adult
Conference, scheduled July 17–19, 2003, in St. Paul, Minnesota, and
sponsored by the United Ostomy Association.
www.uoa.org/events_yan.htm

Why should you attend the UOA Young Adult Conference?

We are bringing together young adults between the ages of 18+ who
have undergone or are considering diversionary surgery to discuss
what's important to you—the latest management solutions and lifestyle
concerns—and to give you the opportunity to make friendships that
will last a lifetime.

What are some of the conference features?

The conference offers panel discussions by other young adults with
intestinal or urinary diversions, expert presenters on medical,
insurance, nutrition and sports topics, rap sessions and one-on-one
consultations with manufacturers and a product exhibition. There will
be plenty of time for socializing, sightseeing, relaxing and catching
up with old friends. A big Plus is the trip to the Mall of America!

How do you register?
It's easy; just:
         Visit: www.uoa.org/events_yan.htm or
         E-mail: info@... or
Call the UOA Central Office at: 1 800 826-0826 to receive a
conference promotional brochure.

Let us know if you have any questions. Our e-mail addresses are noted
below. You can also contact the Central Office of UOA directly for
registration information by calling (800) 826-0826.

We can't wait to see you all this summer in Minnesota. Bringing this
group together for the first time is a long-time dream, and the day
has finally arrived!

Hi everybody! I'm new, and wanted to introduce myself. My name is
Jennifer. I'm 21 y/o, and I live in Beaumont, Texas. I an illeostomy
and a uterostomy due to complications associated with Spina Bifida. I
am very excited to be apart of this group, and I hope to make some
new friends!

Love Always,

Jenn

Hi all,

I guess the attachments did not go through. The page with all the conference
information is at:

http://members.shaw.ca/saskatoonostomy/conference2003.htm

as well as the registration form. Hope to see you there!

Peter Folk
Saskatoon Ostomy Association webpage --> http://members.shaw.ca/saskatoonostomy/


   ----- Original Message -----
   From: Peter Folk
   To: ostomatessupport@yahoogroups.com
   Cc: peopleswithostomy2@yahoogroups.com
   Sent: Monday, March 17, 2003 8:42 PM
   Subject: [peoples with ostomy2] You are invited


   Join us at our 6th Annual Conference 2003 of UOA of Canada Inc. - August 14 to
16, 2003 in Saskatoon, Saskatchewan at the beautiful Delta Bessborough Hotel
located overlooking the South Saskatchewan River.



   More information here.

   Peter Folk
   Saskatoon Ostomy Association webpage -->
http://members.shaw.ca/saskatoonostomy/


   [Non-text portions of this message have been removed]


[Non-text portions of this message have been removed]

Join us at our 6th Annual Conference 2003 of UOA of Canada Inc. - August 14 to
16, 2003 in Saskatoon, Saskatchewan at the beautiful Delta Bessborough Hotel
located overlooking the South Saskatchewan River.



More information here.

Peter Folk
Saskatoon Ostomy Association webpage --> http://members.shaw.ca/saskatoonostomy/


[Non-text portions of this message have been removed]

Hello fellow ostomate,

Linked below is an online ostomy newsletter article designed for the
new ostomate:

http://www.ostomy.evansville.net/junenews2.htm#FOR_THE_NEW_OSTOMATE

Larry Trapp / Webmaster / http://www.ostomy.evansville.net

Thanx Kerrie, that seems to be the most popular answer that I have
recieved today. I really do appreciate your help.


--- In peopleswithostomy2@yahoogroups.com, "Kezzie" <kscott5@b...>
wrote:
> try lighting a few matches before and after u empty bag
>
> Kerrie
>   ----- Original Message -----
>   From: W.E.B. <ihaveacolostomy2@y...>
>   To: peopleswithostomy2@yahoogroups.com
>   Sent: Sunday, February 09, 2003 4:15 PM
>   Subject: [peoples with ostomy2] I DON'T MEAN TO BE VULGAR, BUT...
>
>
>   I have a colostomy and I have begun using flushable liners so
that
>   when I'm out I can change it with minimal problems. The one
problem I
>   has is odor. When you go into someone else bathroom and have to
>   change that bag, it can leave a terrible odor from being in that
>   closed up plastic. Even after spraying air spray, it is still
>   present. Has anyone come up with a way of killing the odor before
>   they leave the bathroom. A bathroom that is at someone else's
house.
>
>   Please help.
>
>
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>
>
>
>
>   To unsubscribe from this group, send an email to:
>   peopleswithostomy2-unsubscribe@yahoogroups.com
>
>
>
>   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> [Non-text portions of this message have been removed]

try lighting a few matches before and after u empty bag

Kerrie
   ----- Original Message -----
   From: W.E.B. <ihaveacolostomy2@...>
   To: peopleswithostomy2@yahoogroups.com
   Sent: Sunday, February 09, 2003 4:15 PM
   Subject: [peoples with ostomy2] I DON'T MEAN TO BE VULGAR, BUT...


   I have a colostomy and I have begun using flushable liners so that
   when I'm out I can change it with minimal problems. The one problem I
   has is odor. When you go into someone else bathroom and have to
   change that bag, it can leave a terrible odor from being in that
   closed up plastic. Even after spraying air spray, it is still
   present. Has anyone come up with a way of killing the odor before
   they leave the bathroom. A bathroom that is at someone else's house.

   Please help.


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               ADVERTISEMENT




   To unsubscribe from this group, send an email to:
   peopleswithostomy2-unsubscribe@yahoogroups.com



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[Non-text portions of this message have been removed]

I have a colostomy and I have begun using flushable liners so that
when I'm out I can change it with minimal problems. The one problem I
has is odor. When you go into someone else bathroom and have to
change that bag, it can leave a terrible odor from being in that
closed up plastic. Even after spraying air spray, it is still
present. Has anyone come up with a way of killing the odor before
they leave the bathroom. A bathroom that is at someone else's house.

Please help.

Hello James,
My name is Pam. I have had an ielostomy for almost 11
years now. I know it is hard and it will take time for
you to accept it.It is good however their may be hope
to get yours reversed. I could not get mine reversed.
Good luck to you and if you have any questions to ask
me , just e-mail me back. I don't mind answering any
questions.
Your friend,
Pam
--- "James <garrisonclark@...>"
<garrisonclark@...> wrote:
> Hi There: I'm a new member of the group, and have
> had a colostomy
> since early December.  Doctor says it's possible
> that it will be
> temporary (as in 6 months or so), but no guarantees
> yet.  Anyway,
> basically just wanted to say Hi and ask if anyone
> has any helpful
> hints or suggestions on where to obtain supplies or
> any other
> insights you might want to provide on
> cleaning/etc...in other words,
> anything anyone has to say would probably be useful
> to someone new
> to all of this :)
>
> Thanks
> James (32y/o in North Fl)
>
>


__________________________________________________
Do you Yahoo!?
Yahoo! Mail Plus - Powerful. Affordable. Sign up now.
http://mailplus.yahoo.com

Hi There: I'm a new member of the group, and have had a colostomy
since early December.  Doctor says it's possible that it will be
temporary (as in 6 months or so), but no guarantees yet.  Anyway,
basically just wanted to say Hi and ask if anyone has any helpful
hints or suggestions on where to obtain supplies or any other
insights you might want to provide on cleaning/etc...in other words,
anything anyone has to say would probably be useful to someone new
to all of this :)

Thanks
James (32y/o in North Fl)

Please join us at Starchat (directions can be found along with a
tutorial) on the ChronniesChat Messageboard, Wednesday, January 29th
at 9:30PM -10:30PM EDT for a general crohns chat, and the fun chat to
follow!  If you need directions or a tutorial - please go to our
messageboard. There are also things posted there that might help you
if you are having trouble being seen - "or heard".

If you do have problems getting into the chat or the above, please be
specific and post a note to Robin who can help figure out what is
going on. Please remember that Robin works on Wednesday and will help
as she can.

I want to remind you that using IM is the best way to talk off topic,
and while we are on topic, to please limit your remarks to the topic,
and let's give everyone a chance to be heard on this subject.
Here are the links:

Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htm

Please change my address to:

maud2k@...

Alice


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Please join us at Starchat (directions can be found along with a
tutorial) on the ChronniesChat Messageboard, Wednesday, January 8th
at 9:30PM -10:30PM EDT for a general crohns chat, and the fun chat to
follow!  If you need directions or a tutorial - please go to our
messageboard. There are also things posted there that might help you
if you are having trouble being seen - "or heard".

If you do have problems getting into the chat or the above, please be
specific and post a note to Robin who can help figure out what is
going on. Please remember that Robin works on Wednesday and will help
as she can.

I want to remind you that using IM is the best way to talk off topic,
and while we are on topic, to please limit your remarks to the topic,
and let's give everyone a chance to be heard on this subject.
Here are the links:

Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htmWe

Thanks and hope to see you tonight! Debbie

Please change e-mail address from:  maud2k@...
to  maud2k@...


[Non-text portions of this message have been removed]

Please change address to:

maud2k@...



[Non-text portions of this message have been removed]

We want to invite you

to our special Holiday Party Chat on Saturday at 9:00PM Saturday
night at Starchat in ChronniesChat.  Need directions, Please see the
messageboard, or ask me and I will be happy to send them to you.

From all of us at ChronniesChat who make this work, we want to thank
you for supporting us in the chatroom at Starchat and on the
messageboard and personally.  We know how hard it is to sometimes
talk about what is going on and we appreciate the trust that you show
in sharing your most personal things in chats.  I want to thank
specifically and of course will leave some out as I always do, but
hey, here is the New Years Message!!!

Ellie for posting the chat, Jean for doing the cheat sheets, so many
of you, Kit, Tori, Wayne a kinda behind the scenes and much needed
and valued person, and the people who just write - gloria, renee,
sheryl, leeann, she, dez, carol, sandra, who keeps CCNL alive despite
our puny efforts but we will come back now with ANGIE !!!! , who
touch people's lives that you don't even realize.  Board owners -
Caz, Jen, Shaz, thank you for setting a standard that has been
followed and respectful always, you have been copied, the best form
of flattery.  For those that we have not seen in a while, know you
are missed and thought of frequently.

But most of all a pain free happy day, perhaps week, a great new Year
and for those of you not feeling well, those who don't feel loved,
know that you are, a special wish for you that are not well enough,
that you may join us soon.  We wish you all Health, Happiness, and
Love.

From Debbie and the people who love you at ChronniesChat


Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htm

Change address to:  maud2k@...


[Non-text portions of this message have been removed]

Please join us at Starchat (directions can be found along with a
tutorial) on the ChronniesChat Messageboard, Wednesday, Dec. 18th at
9:30PM -10:30PM EDT for a general crohns chat.  If you need
directions or a tutorial - please go to our messageboard. There are
also things posted there that might help you if you are having
trouble being seen - "or heard".
If you do have problems getting into the chat or the above, please be
specific and post a note to Robin who can help figure out what is
going on. Please remember that Robin works on Wednesday and will help
as she can.
I also want to remind you that if someone is seen but not heard - ask
for a signal - perhaps maybe they can sign off and on so that you
know they are having trouble and can therefore have a better
understanding of why they are not talking.
Here are the links:

Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htmWe

Thanks and hope to see you tonight! Debbie

Please join us at Starchat (directions can be found along with a
tutorial) on the ChronniesChat Messageboard, Wednesday, Dec. 11th at
9:30PM -10:30PM EDT for a general crohns chat.  If you need
directions or a tutorial - please go to our messageboard. There are
also things posted there that might help you if you are having
trouble being seen - "or heard".
If you do have problems getting into the chat or the above, please be
specific and post a note to Robin who can help figure out what is
going on. Please remember that Robin works on Wednesday and will help
as she can.
I also want to remind you that if someone is seen but not heard - ask
for a signal - perhaps maybe they can sign off and on so that you
know they are having trouble and can therefore have a better
understanding of why they are not talking.
Here are the links:

Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htmWe

Thanks and hope to see you tonight! Debbie

Please join us at our regular chat on Saturday night at 9:00PM in
Starchat, http://www.starchat.net/chat.php?chan=ChronniesChat This is
the one designed for fun and of course any newcomers that come in we
pay special attention to as we do any questions that are raised.
Thanks and we look forward to seeing you there.
We have a list of rules that we follow during a Wednesday topic chat
and they are listed on our web page,
http://www.tinkertech.net/crohns/ As a reminder, using IM (instant
messanger) is the best way to talk off topic during the business part
of the chat. While we are on topic please limit your remarks to THE
TOPIC, and let's give everyone a chance to be heard on this subject.
Here are all the links:
Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htm

Please join us at Starchat (directions can be found along with a
tutorial) on the ChronniesChat Messageboard, Wednesday, Dec. 5th at
9:30PM -10:30PM EDT for a general crohns chat.  If you need
directions or a tutorial - please go to our messageboard. There are
also things posted there that might help you if you are having
trouble being seen - "or heard".
If you do have problems getting into the chat or the above, please be
specific and post a note to Robin who can help figure out what is
going on. Please remember that Robin works on Wednesday and will help
as she can.
I also want to remind you that if someone is seen but not heard - ask
for a signal - perhaps maybe they can sign off and on so that you
know they are having trouble and can therefore have a better
understanding of why they are not talking.
Here are the links:

Message board: http://pub54.ezboard.com/bchronnieschat
Chatroom: http://www.starchat.net/chat.php?chan=ChronniesChat
Tutorial: http://www.putertutor.net/paint/mirc.htmWe

Thanks and hope to see you tonight! Debbie