thanks for telling your story:-)...

vctry06cocr <no_reply@yahoogroups.com> wrote:I use Holister 3347 disposable
pouches and Hollister 8727 skin
barrier cut to fit. If I ever need to cover the charcoal filter
(stool that is too liquid)....I just put a piece of duck tape over
the filter to prevent leakage. I didn't know it was going to happen
to me until I woke up as well. I beat cancer, survived an ostomy
and one year later my husband died at age 52 suddenly from a brain
tumor leaving me with kids to raise alone. Just tell you mom that
she may not like what has happened to her but that everytime her
system has output....it is a celebration that she is alive, all
systems are go and that she is still here on earth. People who love
us could care less about how we go to the bathroom...life is too
short for that.




--- In peopleswithostomy2@yahoogroups.com, Diana Russell
<russresearcher@y...> wrote:
> Thanks for your response and tips...I'm definitely not enabling
her and she is suffering the consequences. She says she wants to
find solutions, but doesn't want to talk to people about it- also
not sure why she hasn't gone for the 2-piece appliance. I don't
think she's old, but she has mentioned that she is having trouble
dealing with it since she got it so late in life- also, she didn't;
know she was going to get one until she woke up from the
operation.... Is there a particular brand you would recommend?
>
> Appreciatively,
> Diana
>
> vctry06cocr <no_reply@yahoogroups.com> wrote:
> Diana
> About traveling without bathroom facilities. I go camping with
my
> family and deal with an ostomy. I am a 55 year old scout leader.
I
> use a two part disposable system and that is great for any gas
> problems because you can easily open it a little to let gas
escape.
> To dispose of the used bag I simply place it inside a zip-lock
style
> plastic sandwich bag. I then wrap a piece of paper towel around
the
> sandwich bag. I then place the item in a brown paper sandwich bag
> that can easily be dropped into any garbage container without
> drawing any attention. This method works well in hotels as well
and
> prevents any odor from the used item. I pre-wrap my pouches by
> putting each one inside a sandwich bag with a folded paper towel
> sheet inside before I leave home. I also carry a small box of
> disposable baby wipes and liquid hand sanitizer for any clean-up
> that is needed. All of this fits easily in a fanny pack for
camping
> or hiking.
>
> As for your mom being afraid that the bag will explode again.
Well,
> that happened to me just once and I learned quickly to change to a
> two piece system. You might buy a book for your mom called "Who
> Moved my Cheese". The book deals with changes in life and how we
> choose to adapt to them or not. She won't adapt if you enable her
> by feeling sorry for her or by preventing her from suffering the
> consequences of staying with her one piece system. Offer to help
> her order a two piece system or tell her she will have to deal
with
> the consequences on her own and miss out on life...it is her truly
> her choice. None of us can change what has happened to us. We
can
> only choose how we react to the change. I have tried to set a
good
> example for my teenagers...maybe she could consider doing the same
> for you. She isn't a baby...don't treat her like one...and she
> isn't that old either!
>
> There is a philosophy in life that I try to adhere to....To want
> what I have, to take what is given with grace....
> best regards,
> Leah
>
>
>
>
> --- In peopleswithostomy2@yahoogroups.com, Diana Russell
> <russresearcher@y...> wrote:
> > Hi all,
> >
> > Please bear with this rambling message. My mom, in her late
60's,
> has had a colostomy since 7/03 and has not come to accept it. I
know
> it is an individual thing as to how long it takes someone to
process
> such a life change, but I'm hoping I can help her with some
> questions. First, she doesn't have a computer, so it's not likely
> she would ever join this listserv. Second, she's a very private
> person and not much of a joiner to begin with, especially in this
> situation, though she has subscribed to a newsletter that contains
> information.
> >
> > The main issue that plagues her daily is an excessive amount of
> gas. I know gas is an issue for all ostomates, but hers has not
> improved with ANY of the OTC (Maalox, bean-o, Gas-x) or even
> prescription medicines her doctor gave her (unfortunately, I don't
> know the names of the latter at this point). She has tried not
> eating certain foods, but no matter what she eats....tons of gas.
> And, for some reason, she doesn't want the bag with a release
valve
> (can anyone describe the pros and cons of this so I can understand
> her point of view?) She has had at least 2 instances where the bag
> exploded, one of them in a store, the other in the car. She has
been
> scarred by this and, as a result, will not eat before going to a
> movie, for example (though she normally eats frequently...I read
> that skipping meals can cause gas). Afterwards, they go to a
> restaurant and she wants to go home immediately afterwards. This
is
> a quality of life issue that I hope she can overcome even a little
> in the future.
> >
> > The other question is in regards to travelling in a car long
> distances where there are no bathroom facilities available. Is
this
> a situation that can be overcome easily or is it just as well she
> not make such a trip? She doesn't want to be off in the woods
> somewhere dealing with the bag.
> >
> > Thanks, in advance,
> > Diana
> >
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