Hi Mimi,

Again, I am so sorry that no one responded! How is Tom doing at this
time? I have nver heard of hte small intestine twisting like you
described. It must be horrible that he is suffering so and you must
feel helpless. He is very fortunate to have someone like you in his
life, talk about a special person you must be.

I too have an Ileostomy due to rectal cancer. I opted ot have my
colon removed since I would always have the risk of colon cancer, why
tempt fate! Do they have him on a liquid diet or is it IV? I wonder
if he has some sort of inflamation that is causing the ileum to swell
and twist? If you still want ot talk let me know what is happening
with him now. I don't know much, but I can help you find out.

Acie

--- In peopleswithostomy2@yahoogroups.com, "donka2" <mimi_to_ian@...>
wrote:
>
> Hi all I am Mimi and I am the foster Mom to an adult with multiple
> disabilities, his name here is Tom. In April 2007 he received an
> Ileostomy. In April 2008 he
> had surgery for a twisted bowel.........he was "sick" for over 6
weeks
> before the medical profession put stock into what i was
> saying........by then he was vomiting feces and his stoma had
stopped
> functioning....it should have never gotten to that point.
>
> Well here we are 8 weeks post-op from the twisted bowel and they
think
> he has another one.........I am waiting for the medical community to
> come up with a plan on how to diagnose it.....I guess they will have
> to insert a gastric nasal tube to get the barium into him as he
> refuses to swallow it............he had an endoscope Monday to rule
> out an ulcer......so now we wait.......I really could use some input
> please.
>
> Mimi
>