I am so sorry Tina and Mimi that you have not received any responses.
I have been a member for a very long time and have seen much
activity, but it seems to go in cycles. I rarely respond because,
THANK YOU GOD, I have had so little complications from having an
ostomy. I have very little advice or suggestions for most of the
issues people ask about. I do feel one thing though Tina, when you
are in so much pain go to the ER, you should not be having pain. Ask
to see the ET nurse, in my local hospital we ask for the Wounds
Nurse. If your doctor cannot help you find one that can. If you have
a permenant bag you should not be getting stool out of your rectum,
sometimes there white matter but nothing that you described should be
happening nor should ther be pain. If this is occuring while you read
this go to the ER, no matter what youy pay or how you pay will matter
when you are in pain. It sounds as though you have some sort of
leakage to me. GO SEEK HELP!

Acie

--- In peopleswithostomy2@yahoogroups.com, "donka2" <mimi_to_ian@...>
wrote:
>
> Good Morning Tina, I joined this group several weeks ago and and
wrote
> to the group with my questions, not one person, NOT ONE PERSON!!!!!,
> responded.......you might as well find a different group for
support.
> This group has 327 member and NOT ONE response, very disappointing.
>
> So that's my advice Tina.
>
> Mimi
>
> --- In peopleswithostomy2@yahoogroups.com, Tina Olseth <tolseth@>
> wrote:
> >
> > My name is Tina,
> > I have an illyostomy, but my rectum is not closed off my doctor
has
> said i will always
> > have my bag. My problem is i live with cronic pain,,I get stool
and
> hard crystals that
> > i have to flush out with enamas it causes so much pain in my
rectum
> and leftside and
> > body achs. I was wondering has any one experienced this and if
they
> have some advice.
> > Thanks,Tina
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>