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aarrgghh.....I hate this thing!   Message List  
Reply | Forward Message #1361 of 1565 |
Re: [peoples with ostomy2] aarrgghh.....I hate this thing!

I just had my colostomy done in January and talk about trouble, It would leak
and it would irritate my skin and I was miserable, then I started doing research
and talking to every nurse at every supply company. I found that my stoma is not
out away from the skin as far as it should be so I went to the deep convex pouch
and until my skin healed I used the eakin seal ( made by convatex ) and I could
mold it so close around the stoma that we would cut the wafer just a little
bigger and bury it in the eaken seal and that really worked. Now I change every
four or five days and I also use the gas release seal and now I am real happy
with it. I fought the surgery tooth and nail but now I would not go back for
anything. Plus the cancer is gone and I am now taking chemo to make sure it does
not come back. I hope this helps because it took a long painful time to
discover the cure. Also there is a patch called 3210 and it also can go under
the pouch and that will help the skin
heal also.It is made by coloplast. Judy Good Luck !!!!!!!

James Gole <orca15@...> wrote: i had mine in 2001. my skin
rejected the wafer & i have to change every day. not fun. have leakage all the
time. i have to live with it. Jim
----- Original Message -----
From: kevin
To: peopleswithostomy2@yahoogroups.com
Sent: Friday, May 04, 2007 10:03 AM
Subject: [peoples with ostomy2] aarrgghh.....I hate this thing!

...I had my ileostomy way back in 1984. The doctor said then, "Don't
worry, in 6 monthes you'll be used to it, and no one will even notice."
Well, now here we are 23 years later, and I'm still not used to it,
and EVERYBODY notices...
I had tried for a reversal surgery but I had two surgeons
tell me I was not a good candidate for the operation. So, what's a guy
to do....
Kevin~

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Sun May 6, 2007 12:12 am

juotis
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Message #1361 of 1565 |
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...I had my ileostomy way back in 1984. The doctor said then, "Don't worry, in 6 monthes you'll be used to it, and no one will even notice." Well, now here we...
kevin
rightynmight...
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May 4, 2007
3:09 pm

i had mine in 2001. my skin rejected the wafer & i have to change every day. not fun. have leakage all the time. i have to live with it. Jim ... From: kevin ...
James Gole
orca1927
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May 4, 2007
3:26 pm

I had problems with the wafers too when i first had surgery ended up using kenalog spray an spray steroid for the first yr til my skin got use to them..now...
debbie
debcrd
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May 4, 2007
3:58 pm

i use kenalog too. doesnt help my skin ... From: debbie To: peopleswithostomy2@yahoogroups.com Sent: Friday, May 04, 2007 10:56 AM Subject: Re: [peoples with...
James Gole
orca1927
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May 4, 2007
9:25 pm

Kevin I don't know that we ever 'be used to it'. I have days I forget I have my ileostomy and days that I seem to notice it constantly. In my case it seems to...
anangelseyes
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May 5, 2007
4:32 am

What product are you using? I was allergic to the Stomahesive barrier from ConvaTec and had weeping, sore skin. I went to the Durahesive barrier from ConvaTec...
anangelseyes
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May 5, 2007
4:40 am

i use coloplast 2 piece. nothing helps. my skin is always sore & sometimes bleeding. nothing helps. Jim ... From: anangelseyes To:...
James Gole
orca1927
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May 5, 2007
6:43 pm

I just had my colostomy done in January and talk about trouble, It would leak and it would irritate my skin and I was miserable, then I started doing research...
Judy Jarvis
juotis
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May 6, 2007
12:12 am

Jim Have you tried Eakin seals? It has healing properties as well as the protective barrier it provides. When my skin was raw and bleeding, I put that on and...
anangelseyes
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May 6, 2007
10:01 pm

i looked at their site & cant find where to order the seals. ... From: anangelseyes To: peopleswithostomy2@yahoogroups.com Sent: Sunday, May 06, 2007 5:01 PM ...
James Gole
orca1927
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May 6, 2007
10:19 pm

Jim Go to this link http://www.convatec.com/convatec/jsp/CVTUSCContactUsLinks.do and their contact information is there. I called them when I was having ...
anangelseyes
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May 6, 2007
10:44 pm

tina, thank you. i have contacted them. Jim ... From: anangelseyes To: peopleswithostomy2@yahoogroups.com Sent: Sunday, May 06, 2007 5:43 PM Subject: Re:...
James Gole
orca1927
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May 6, 2007
11:10 pm

You're welcome. Please let me know how they work out for you or if you have any questions about using them. Tina ... From: "James Gole" <orca15@...> ...
anangelseyes
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May 6, 2007
11:17 pm
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